Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 In a message dated 9/28/2005 4:53:40 P.M. Mountain Daylight Time, petite_isla@... writes: I'm not sure what your diagnosis is, but I'm SED and I've vibrated since I was around 7 years old. Unfortunately at that time no one paid much attention. Seems my C1 vertebrae was slowly slipping and damaging my spinal cord. Luckily for me it took it's time and didn't leave me paralyzed. When I had surgery in 1997, decompression, lamectomy (sp), and my C1 fused to C2 it more or less stopped. I did vibrate for the 5 days after surgery, constantly. But, all of a sudden it stopped. Through the years there has been some damage done and now I only feel the vibration when I'm either stressed or over tired. You should have it checked out. Okay, I don't know what SED is. Did anyone confirm you are vibrating? I have OI. I have rather sever scoliosis. One of my lowerish vertibrae pops throughout the day. I actually stretch it into moving because it feels better. Nevermind the 90+ fractures in my life, the back pain is my real inhibitor. However, besides the dexi scan I had last Thursday, I stay far away from anything that may turn me into someone's patient. B*B S Blessed Be! S Get a Free Single Card Tarot Reading, Read my Card of the Day Page. _www.tarotreadings.net_ (http://www.tarotreadings.net/) _www.customclergy.com_ (http://www.customclergy.com/) _www.customtarot.com_ (http://www.customtarot.com/) _www.lifecycletarot.com_ (http://www.lifecycletarot.com/) _http://www.ulcseminary.org_ (http://www.ulcseminary.org/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 " I vibrate. " I'm not sure what your diagnosis is, but I'm SED and I've vibrated since I was around 7 years old. Unfortunately at that time no one paid much attention. Seems my C1 vertebrae was slowly slipping and damaging my spinal cord. Luckily for me it took it's time and didn't leave me paralyzed. When I had surgery in 1997, decompression, lamectomy (sp), and my C1 fused to C2 it more or less stopped. I did vibrate for the 5 days after surgery, constantly. But, all of a sudden it stopped. Through the years there has been some damage done and now I only feel the vibration when I'm either stressed or over tired. You should have it checked out. As the years went on, I was very uncomfortable riding in cars, airplanes or anything that vibrated also. It exacerbated the situation. " I would lie there resting and stop vibrating. " I also find that it calms down considerably when I lay down, not sure if it's just the fact that I calm down or that the position is better for me. I also have days I sit in a poor position and even being aware of this and straightening my neck helps to stop it. " It is way inside, in my core. It can't be seen. " It's very much an internal vibration, I could hold out my hands and they are steady as a rock. maria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 > Okay, I don't know what SED is. Spondyloepiphyseal dysplasia congenita More commonly known as SEDc, or simply as SED, this genetic condition results in short stature, with adult height usually varying from slightly under three feet to slightly over four feet, although some adults are much taller. Other characteristics can include clubfeet, a cleft palate, and a barrel-chested appearance. SED is associated with a variety of medical problems, mainly orthopedic. SED occurs approximately once in every 100,000 births, making it, along with achondroplasia and diastrophic dysplasia, one of the most common forms of dwarfism. > Did anyone confirm you are vibrating? I confirmed I was vibrating. He confirmed that the vertebrae was rubbing my spinal cord via series of x-rays, cat scans and some other scan. > However, besides the dexi scan I had last Thursday, I stay far away from anything that may turn me into someone's patient. And that is your choice not to have it looked at and diagnosed. I just know that the years of compression began to display themselves as other symptoms and he had warned me that if I let it go it would eventually sever my spinal cord or at least compress it enough to cause paralysis. I chose to believe what was confirmed by 3 doctors. Before the surgery the symptoms were worsening to the point of variety of problems including what appeared to be carpel tunnel, burning sensations in one thigh as if I had been out on a beach tanning for extended hours and loss of grip. Not to mention continuous long bouts of vibrating and at times an inability to maintain a variety of positions, including sitting. The last time I flew before surgery was excruciating because of the sensations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 Hello All! Can anyone explain to me why my feet vibrate? What exactly causes this sensation. Sometimes it is so extreme that someone else in the room can feel it too! Creepy!!! Thanks, Teri Quote Link to comment Share on other sites More sharing options...
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