Re: Hand involvement in CMT 2A

March 16, 2007

,

I was diagnosed with CMT 2, but don't know whether it's type 2A or not. Mine was

late onset, no symptoms as a child, numbness & tingling started at my feet &

crept up to my upper thighs, and in the last few years I've begun having trouble

with my hands. Numbness so that it's harder to turn pages & do buttons, lack of

strength so I'm constantly dropping things. Much slower at typing and tying

shoes, and my handwriting has gotten awful. It seems to be slowly getting worse.

It's a nuisance, but I compensate pretty well.

What's happening with your hands, ?

Ruth

March 16, 2007

,

I have CMT2 - we haven't really settled whether it's 2A or 2D. There

were no observable symptoms until I was about 40 y/o, and these were

lower extremity.

Sometime in the mid-90s (mid 40s age), hand wasting became apparent,

ie., the interosseous spaces and the thenar area.

Both hand are weak with loss of dexterity. Sensory is pretty good - my variant

is almost entirely motor.

Dan

March 16, 2007

I don't have the results yet on my blood test, but the neurologist

thinks that I am CMT 2. As a child, I was not good at sports or

anything like that (but then, when I was a kid, girls weren't overly

involved in sports, either), but there was not anything obviously

wrong with me. Over time. though....

As for my hands, my hands have always been thin, shaky since I was in

college, and in the last few years, they have become weak and achy.

This is most unfortunate and frustrating, since I like crocheting,

needlework, and making pysanky (Ukrainian eggs). Try holding a whole,

raw egg while trying to draw on it (especially the straight lines!)

with a stylus filled with liquid wax - all with achy, shaky hands!

Pretty funny! And tomorrow morning, I am to teach 20 ladies how to do

this!!!

March 16, 2007

I am having some minor sensory loss. I am a musician and my hands are

so important. They help me do the thing that brings me great joy. I

honestly don't care about my feet so much. But my hands! I get an EMG

on my right hand next week to see how bad it really is.

March 17, 2007

Oh gosh..I know how you must feel...the losses are not fun to deal with. I love

to paint and also love sculpture. I don't have use of my thumbs....and it

effects so may other things in my everyday life as well.....Good Luck be

thinking of you...Would love to see some of you eggs.

Geri

March 17, 2007

Good for you for staying involved. It is difficult to lose the ability to do

the things we enjoy. Am having some trouble with pinning while sewing.

P.

March 18, 2007

Hey everybody! I just thought I would put a picture with a name. I am

the one, who has been asking about the hands. I put a pic in the

photos section of the site.

Anybody else live in Houston? I don't know anyone else here, except

for my mom, who has CMT.

March 20, 2007

I was not diagnosed until I was in my late 40's. My right hand (dominant) is

very thin, with little musculature appearing; however, it is still my better

hand for work. Can't do some small things as well as I used to do them, but all

in all, not too bad. However, I feel it looks like a " chicken claw " if you know

what I mean. My left hand is pretty good, with musculature moreso in the palmar

area; the top of the hand has much less musculature. I am still able to type

well, and bowl weekly.

Must admit that the strength in both hands is really diminished, i.e. don't do

much good in the way of scrubbing, etc.

P.

March 28, 2007

,

My hands hurt all the time. If I do not take opiate pain medication I am in a

fetal position in the bed crying. Thankfully with the help of my pain doctor, I

have pain levels of 0-2 normally. Sometimes it will go to 5, but rarely.

They are stiff, I have lost strength, and many fine-motor skills.

My neuro told me that if he didn't know I had CMT, he would have said I have

carpal tunnel.

March 28, 2007

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