Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Yes, google "MCS lyme" and you should find lots. If you don't, let me know. I and one of my son's also have MCS. Heidi N Is Multiple Chemical Sensitivity also linked to infections like this?Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Hi , If you want, you can run IGeneX;s Complete Co-Infection Panel #5090, plus WA-1 form of Babesia (duncani) #710 if you live in the West Coast. Here are my comments on your test results: Your son's: ______________________________ IFA, B Burgdorferi G/M/A --> Positive Lyme IgM Western Blot --> Inconclusive (Please note that band #31 is Borrelia-specific. The indetermination on this band will render the test inconclusive. Band #41 is not Borrelia-specific, but it often shows up earliest in Lyme patients.) Lyme IgG Western Blot --> Negative (IgM is more important than IgG. IgG can only reflect an evidence of an infection in the past and cannot be used to suggest the presence of an infection. IgM reflects an acute, on-going infection.) Yours: ________ IFA, B Burgdorferi G/M/A --> Negative Lyme IgM Western Blot --> Inconclusive (See the reasoning mentioned above. Please also note that if you have symptoms, in Dr. Burrascano view, this is a positive result. Positive on band #41 plus Lyme symptoms is what he looks for in order to diagnose Lyme.) Lyme IgG Western Blot --> Inconclusive (Both band #31 and #39 are Borrelia-specific.) Hope this helps. Limin amandasathome wrote: Hi All, I just got the test results back for my son and myself. My husband is dragging his feet on getting to the lab for the draw, so his will be pending for a LONG time. Below is what I just receive via fax. I'm still pondering and researching. The appointment with my son's doctor is on monday. Any input from the group in the meantime would be much appreciated! I think I should have added co-infections to the blood draw. Same lab? Different lab? BTW - I've had a number of infections in my youth. Mono, bacterial meningitis and Ross River Fever (a mosquito borne virus - only in australia? Not sure of the breadth of it's range). IgeneX Test Results My son ----------------------------------- IFA B Bugdorferi G/M/A: 1:80 TITER Lyme IgM Western Blot Igenex IgM Result: Negative CDC/NYS: Negative All bands negative, except **31 kDa: IND **41 kDa: IND Lyme IgG Western Blot Igenex IgG Result: Negative CDC/NYS: Negative All bands negative, except **41 kDa: IND Multiplex B Bugdorferi Sample Serum Genomic - B Bugdorferi: Negative Plasmid - B Bugdorferi: Negative Multiplex B Bugdorferi Sample Whole Blood Genomic - B bugdorferi: Negative Plasmid - B bugdorferi: Negative ___________________________________________ Me ------------ IFA B Bugdorferi G/M/A: <1:40 TITER Lyme IgM Western Blot Igenex IgM Result: Negative CDC/NYS: Negative All bands negative, except **31 kDa: IND **41 kDa: + Lyme IgG Western Blot Igenex IgG Result: Negative CDC/NYS: Negative All bands negative, except **31 kDa: IND **39 kDa: IND **41 kDa: ++ Multiplex B Bugdorferi Sample Serum Genomic - B Bugdorferi: Negative Plasmid - B Bugdorferi: Negative Multiplex B Bugdorferi Sample Whole Blood Genomic - B bugdorferi: Negative Plasmid - B bugdorferi: Negative Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 I'm confused, I thought band 31 means you have lyme. If so, then why are they saying negative here. Did you do any lyme-killing treatments before testing? Heidi N > > Hi All, > > I just got the test results back for my son and myself. My husband is > dragging his feet on getting to the lab for the draw, so his will be > pending for a LONG time. > > Below is what I just receive via fax. I'm still pondering and > researching. The appointment with my son's doctor is on monday. Any > input from the group in the meantime would be much appreciated! I > think I should have added co-infections to the blood draw. Same lab? > Different lab? > > BTW - I've had a number of infections in my youth. Mono, bacterial > meningitis and Ross River Fever (a mosquito borne virus - only in > australia? Not sure of the breadth of it's range). > > IgeneX Test Results > > My son > ----------------------------------- > IFA B Bugdorferi G/M/A: 1:80 TITER > > Lyme IgM Western Blot > Igenex IgM Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **41 kDa: IND > > Lyme IgG Western Blot > Igenex IgG Result: Negative > CDC/NYS: Negative > All bands negative, except > **41 kDa: IND > > Multiplex B Bugdorferi Sample Serum > Genomic - B Bugdorferi: Negative > Plasmid - B Bugdorferi: Negative > > Multiplex B Bugdorferi Sample Whole Blood > Genomic - B bugdorferi: Negative > Plasmid - B bugdorferi: Negative > > ___________________________________________ > > > Me > ------------ > IFA B Bugdorferi G/M/A: <1:40 TITER > > Lyme IgM Western Blot > Igenex IgM Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **41 kDa: + > > Lyme IgG Western Blot > Igenex IgG Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **39 kDa: IND > **41 kDa: ++ > > Multiplex B Bugdorferi Sample Serum > Genomic - B Bugdorferi: Negative > Plasmid - B Bugdorferi: Negative > > Multiplex B Bugdorferi Sample Whole Blood > Genomic - B bugdorferi: Negative > Plasmid - B bugdorferi: Negative > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Hi Limin, Thanks for the detailed reply. I got the part of positive for the antibodies for my son, but the rest of it.... I'm not sure of the implications. I assume the antibody means he has been exposed to the bacteria, but perhaps the inconclusive blot means he doesn't have an active infection any more. Meaning his immune system had an appropriate response and killed it? Or it's hiding out, biding it's time waiting for an opportunity to activate and run amok? He has serum IgA and IgG deficiencies(IgA is the most severe but improving!) so if those are the usually killers/suppressors, then I'm pretty sure they weren't able to do their job at the time of infection. IgM has always been within ref range though. First serum Ig panel was run when he was 12 months old, so he was possibly born with a messed up immune system. If it wasn't for the low cholesterol and hyper-coagulation I might consider it a non-threat in it's current state. BUT with low cholesterol, he's not remyelinating and detoxing mercury as well as he could. And with thick blood, he's not transporting nutrients in and biochemical waste out as well as he potentially could. Apart from that he's really doing very well. Recovered from all ASD symptoms and looks like he's glowing with health and vitality. He's in pre-K summer school with no aide and no mention of his previous diagnosis. He loves school, is making friends and has no problems fitting in with the crowd or completing his assigned school work. UNLESS he's exposed to chemicals (like smoke from the fires, stinky white board markers, toxic cleaners) then he's an emotional unreasonable wreck. I'm always trying to keep one step ahead of chemical exposures. Is Multiple Chemical Sensitivity also linked to infections like this? One more question - do you have any idea if can I get the lab to run the add-on tests you mentioned from the same blood sample? Or is it insufficient or disposed of at this point and another kit/draw is necessary? Thanks again for taking the time to reply. > > > > Hi All, > > > > I just got the test results back for my son and myself. My husband is > > dragging his feet on getting to the lab for the draw, so his will be > > pending for a LONG time. > > > > Below is what I just receive via fax. I'm still pondering and > > researching. The appointment with my son's doctor is on monday. Any > > input from the group in the meantime would be much appreciated! I > > think I should have added co-infections to the blood draw. Same lab? > > Different lab? > > > > BTW - I've had a number of infections in my youth. Mono, bacterial > > meningitis and Ross River Fever (a mosquito borne virus - only in > > australia? Not sure of the breadth of it's range). > > > > IgeneX Test Results > > > > My son > > ----------------------------------- > > IFA B Bugdorferi G/M/A: 1:80 TITER > > > > > > > Lyme IgM Western Blot > > Igenex IgM Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **41 kDa: IND > > > > Lyme IgG Western Blot > > Igenex IgG Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **41 kDa: IND > > > > Multiplex B Bugdorferi Sample Serum > > Genomic - B Bugdorferi: Negative > > Plasmid - B Bugdorferi: Negative > > > > Multiplex B Bugdorferi Sample Whole Blood > > Genomic - B bugdorferi: Negative > > Plasmid - B bugdorferi: Negative > > > > ___________________________________________ > > > > Me > > ------------ > > IFA B Bugdorferi G/M/A: <1:40 TITER > > > > Lyme IgM Western Blot > > Igenex IgM Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **41 kDa: + > > > > Lyme IgG Western Blot > > Igenex IgG Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **39 kDa: IND > > **41 kDa: ++ > > > > Multiplex B Bugdorferi Sample Serum > > Genomic - B Bugdorferi: Negative > > Plasmid - B Bugdorferi: Negative > > > > Multiplex B Bugdorferi Sample Whole Blood > > Genomic - B bugdorferi: Negative > > Plasmid - B bugdorferi: Negative > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Yes - Boluoke for two weeks before the blood draw. Not sure if it actually kills lyme. I thought it just breaks down their shields. But his immune system may have had a try though? No fevers, illness or inflammation since starting the supp. He did have meltdowns a week or so ago - but I attributed it to chemical exposures from school supplies and smoke from the fires. Air filter and change of pens & cleaners in the classroom fixed immediately. > > I'm confused, I thought band 31 means you have lyme. If so, then why > are they saying negative here. Did you do any lyme-killing > treatments before testing? > > Heidi N Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Heidi, You may want to ignore the CDC standard interpretation on the Western Blot. Their approach is exactly what Dr. criticizes. Limin ambitionn01 wrote: I'm confused, I thought band 31 means you have lyme. If so, then why are they saying negative here. Did you do any lyme-killing treatments before testing? Heidi N > > Hi All, > > I just got the test results back for my son and myself. My husband is > dragging his feet on getting to the lab for the draw, so his will be > pending for a LONG time. > > Below is what I just receive via fax. I'm still pondering and > researching. The appointment with my son's doctor is on monday. Any > input from the group in the meantime would be much appreciated! I > think I should have added co-infections to the blood draw. Same lab? > Different lab? > > BTW - I've had a number of infections in my youth. Mono, bacterial > meningitis and Ross River Fever (a mosquito borne virus - only in > australia? Not sure of the breadth of it's range). > > IgeneX Test Results > > My son > ----------------------------------- > IFA B Bugdorferi G/M/A: 1:80 TITER > > Lyme IgM Western Blot > Igenex IgM Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **41 kDa: IND > > Lyme IgG Western Blot > Igenex IgG Result: Negative > CDC/NYS: Negative > All bands negative, except > **41 kDa: IND > > Multiplex B Bugdorferi Sample Serum > Genomic - B Bugdorferi: Negative > Plasmid - B Bugdorferi: Negative > > Multiplex B Bugdorferi Sample Whole Blood > Genomic - B bugdorferi: Negative > Plasmid - B bugdorferi: Negative > > ___________________________________________ > > > Me > ------------ > IFA B Bugdorferi G/M/A: <1:40 TITER > > Lyme IgM Western Blot > Igenex IgM Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **41 kDa: + > > Lyme IgG Western Blot > Igenex IgG Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **39 kDa: IND > **41 kDa: ++ > > Multiplex B Bugdorferi Sample Serum > Genomic - B Bugdorferi: Negative > Plasmid - B Bugdorferi: Negative > > Multiplex B Bugdorferi Sample Whole Blood > Genomic - B bugdorferi: Negative > Plasmid - B bugdorferi: Negative > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 my son had a similar result....a week later i qualified for CDC + on labcorp....4 years ago showed and IgM to 23 (quest missed 41)...a year and a half before...negative on crappy serum test...but all the text book symptons and rashes...so they put me on prednisone/tylenol....i was clueless and really a pregnant mess...couldn't even change a roll of toilet paper....let alone google.  the results are devastating--i have one inflamed/toxic really low functioning kid. lisa The Famous, the Infamous, the Lame - in your browser. Get the TMZ Toolbar Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 , I wouldn't suggest that you run a coinfection panel using the same blood sample. From your another post on the same subject, it does seem that you have done some Lyme related antimicrobial for some duration. The antimicrobial either prescribed or natural, herbal will help the body to recognize the microbes and produce antibody response to the antigens used for the test. This will help to improve the accuracy of the test. Limin amandasathome wrote: Hi Limin, Thanks for the detailed reply. I got the part of positive for the antibodies for my son, but the rest of it.... I'm not sure of the implications. I assume the antibody means he has been exposed to the bacteria, but perhaps the inconclusive blot means he doesn't have an active infection any more. Meaning his immune system had an appropriate response and killed it? Or it's hiding out, biding it's time waiting for an opportunity to activate and run amok? He has serum IgA and IgG deficiencies(IgA is the most severe but improving!) so if those are the usually killers/suppressors, then I'm pretty sure they weren't able to do their job at the time of infection. IgM has always been within ref range though. First serum Ig panel was run when he was 12 months old, so he was possibly born with a messed up immune system. If it wasn't for the low cholesterol and hyper-coagulation I might consider it a non-threat in it's current state. BUT with low cholesterol, he's not remyelinating and detoxing mercury as well as he could. And with thick blood, he's not transporting nutrients in and biochemical waste out as well as he potentially could. Apart from that he's really doing very well. Recovered from all ASD symptoms and looks like he's glowing with health and vitality. He's in pre-K summer school with no aide and no mention of his previous diagnosis. He loves school, is making friends and has no problems fitting in with the crowd or completing his assigned school work. UNLESS he's exposed to chemicals (like smoke from the fires, stinky white board markers, toxic cleaners) then he's an emotional unreasonable wreck. I'm always trying to keep one step ahead of chemical exposures. Is Multiple Chemical Sensitivity also linked to infections like this? One more question - do you have any idea if can I get the lab to run the add-on tests you mentioned from the same blood sample? Or is it insufficient or disposed of at this point and another kit/draw is necessary? Thanks again for taking the time to reply. > > > > Hi All, > > > > I just got the test results back for my son and myself. My husband is > > dragging his feet on getting to the lab for the draw, so his will be > > pending for a LONG time. > > > > Below is what I just receive via fax. I'm still pondering and > > researching. The appointment with my son's doctor is on monday. Any > > input from the group in the meantime would be much appreciated! I > > think I should have added co-infections to the blood draw. Same lab? > > Different lab? > > > > BTW - I've had a number of infections in my youth. Mono, bacterial > > meningitis and Ross River Fever (a mosquito borne virus - only in > > australia? Not sure of the breadth of it's range). > > > > IgeneX Test Results > > > > My son > > ----------------------------------- > > IFA B Bugdorferi G/M/A: 1:80 TITER > > > > > > > Lyme IgM Western Blot > > Igenex IgM Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **41 kDa: IND > > > > Lyme IgG Western Blot > > Igenex IgG Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **41 kDa: IND > > > > Multiplex B Bugdorferi Sample Serum > > Genomic - B Bugdorferi: Negative > > Plasmid - B Bugdorferi: Negative > > > > Multiplex B Bugdorferi Sample Whole Blood > > Genomic - B bugdorferi: Negative > > Plasmid - B bugdorferi: Negative > > > > ___________________________________________ > > > > Me > > ------------ > > IFA B Bugdorferi G/M/A: <1:40 TITER > > > > Lyme IgM Western Blot > > Igenex IgM Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **41 kDa: + > > > > Lyme IgG Western Blot > > Igenex IgG Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **39 kDa: IND > > **41 kDa: ++ > > > > Multiplex B Bugdorferi Sample Serum > > Genomic - B Bugdorferi: Negative > > Plasmid - B Bugdorferi: Negative > > > > Multiplex B Bugdorferi Sample Whole Blood > > Genomic - B bugdorferi: Negative > > Plasmid - B bugdorferi: Negative > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 Hi I am replying your mail from the Australian group here – no one would understand the results over there. I am living in New Zealand, but our ASD journey start with Dr. Varipatis in Sydney. Do believe you have nice stay in Australia (Good on ya). I send a message to their group regarding LIA conference, and have replies with question about IGenex Testing. This is my son (5-1/2yo) test which does not differ from your son one (no co-infection panel unfortunately), and he is considered as positive by his LLMD: IgeneX Test Results ----------------------------------- IFA B Bugdorferi G/M/A: > 1:80 TITER Lyme IgM Western Blot All bands negative, except **31 kDa: IND **41 kDa: + Lyme IgG Western Blot Igenex IgG Result: Negative CDC/NYS: Negative All bands negative, except **41 kDa: IND 58 kDa: + Multiplex B Bugdorferi Sample Serum Genomic - B Bugdorferi: Negative Plasmid - B Bugdorferi: Negative Multiplex B Bugdorferi Sample Whole Blood Genomic - B bugdorferi: Negative Plasmid - B bugdorferi: Negative Regards, Ivan > > Hi All, > > I just got the test results back for my son and myself. My husband is > dragging his feet on getting to the lab for the draw, so his will be > pending for a LONG time. > > Below is what I just receive via fax. I'm still pondering and > researching. The appointment with my son's doctor is on monday. Any > input from the group in the meantime would be much appreciated! I > think I should have added co-infections to the blood draw. Same lab? > Different lab? > > BTW - I've had a number of infections in my youth. Mono, bacterial > meningitis and Ross River Fever (a mosquito borne virus - only in > australia? Not sure of the breadth of it's range). > > IgeneX Test Results > > My son > ----------------------------------- > IFA B Bugdorferi G/M/A: 1:80 TITER > > Lyme IgM Western Blot > Igenex IgM Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **41 kDa: IND > > Lyme IgG Western Blot > Igenex IgG Result: Negative > CDC/NYS: Negative > All bands negative, except > **41 kDa: IND > > Multiplex B Bugdorferi Sample Serum > Genomic - B Bugdorferi: Negative > Plasmid - B Bugdorferi: Negative > > Multiplex B Bugdorferi Sample Whole Blood > Genomic - B bugdorferi: Negative > Plasmid - B bugdorferi: Negative > > ___________________________________________ > > > Me > ------------ > IFA B Bugdorferi G/M/A: <1:40 TITER > > Lyme IgM Western Blot > Igenex IgM Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **41 kDa: + > > Lyme IgG Western Blot > Igenex IgG Result: Negative > CDC/NYS: Negative > All bands negative, except > **31 kDa: IND > **39 kDa: IND > **41 kDa: ++ > > Multiplex B Bugdorferi Sample Serum > Genomic - B Bugdorferi: Negative > Plasmid - B Bugdorferi: Negative > > Multiplex B Bugdorferi Sample Whole Blood > Genomic - B bugdorferi: Negative > Plasmid - B bugdorferi: Negative > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 Hi Ivan, Wow, the test results are very similar aren't they! I'd be very interested to know if the combination of bands are common to the USA as well, or just to us with the Australian connection? Perhaps the infections are specific to that geography? I'm going to talk to the doctor tomorrow about getting the co-infections panel. Before I order it though, I want to know if they only test for pathogens that are specific to North America. I moved to the USA when I was 20, but contracted Ross River (from Wagga mozzies), Mono (aka glandular fever) and bacterial meningitis (from surfing at Harbord beach during the sewage pipe break incident) in my teenage years before leaving. My son returned to Australia twice before his Dx - as an infant and as a young toddler. So there could be either congenital or direct infection of australian specific bugs. He was already showing minor pre-ASD behaviors by the second visit, so if does turn out to be a local infection I'd lean more towards congenital. I don't believe he could have been bitten by an insect during the first visit. He was 5 months old and covered from head to toe because it was the middle of winter in Canberra. I can't imagine many bugs survive the freezing temps! I've heard Dr V in Manly is great. We were lined up with him in case of a problem while we were there. Plus Dr Turtle in Canberra. No medical issues though (except for Jack Jumper stings) so it wasn't nessassary to meet either of them. It was a fantastic 3 month visit, but it took half a year to plan and execute! My son was on a LOT of supplements at that time, so almost everything had to be shipped in advance. Jan of the australian biomed group was an angel. Couldn't have managed without her help. I'm so glad this is an international group! It gives more breadth to our joint research and discoveries. > > > > Hi All, > > > > I just got the test results back for my son and myself. My husband > is > > dragging his feet on getting to the lab for the draw, so his will be > > pending for a LONG time. > > > > Below is what I just receive via fax. I'm still pondering and > > researching. The appointment with my son's doctor is on monday. Any > > input from the group in the meantime would be much appreciated! I > > think I should have added co-infections to the blood draw. Same lab? > > Different lab? > > > > BTW - I've had a number of infections in my youth. Mono, bacterial > > meningitis and Ross River Fever (a mosquito borne virus - only in > > australia? Not sure of the breadth of it's range). > > > > IgeneX Test Results > > > > My son > > ----------------------------------- > > IFA B Bugdorferi G/M/A: 1:80 TITER > > > > Lyme IgM Western Blot > > Igenex IgM Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **41 kDa: IND > > > > Lyme IgG Western Blot > > Igenex IgG Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **41 kDa: IND > > > > Multiplex B Bugdorferi Sample Serum > > Genomic - B Bugdorferi: Negative > > Plasmid - B Bugdorferi: Negative > > > > Multiplex B Bugdorferi Sample Whole Blood > > Genomic - B bugdorferi: Negative > > Plasmid - B bugdorferi: Negative > > > > ___________________________________________ > > > > > > Me > > ------------ > > IFA B Bugdorferi G/M/A: <1:40 TITER > > > > Lyme IgM Western Blot > > Igenex IgM Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **41 kDa: + > > > > Lyme IgG Western Blot > > Igenex IgG Result: Negative > > CDC/NYS: Negative > > All bands negative, except > > **31 kDa: IND > > **39 kDa: IND > > **41 kDa: ++ > > > > Multiplex B Bugdorferi Sample Serum > > Genomic - B Bugdorferi: Negative > > Plasmid - B Bugdorferi: Negative > > > > Multiplex B Bugdorferi Sample Whole Blood > > Genomic - B bugdorferi: Negative > > Plasmid - B bugdorferi: Negative > > > Quote Link to comment Share on other sites More sharing options...
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