Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 , a warm welcome to you, I am always happy to meet another artist. Thanks for introducing yourself. I have CMT 2 (diagnosed from EMG/NCV's,) but my diagnosis was as a child. I'm 54, haven't had what I once feared as " progression " . For the last 24 or so years, have been involved in regular exercise programs - plus have always biked, hiked, swam, and horsebackriding on my own. For the last 15 or so years have really put effort into nutritional needs, tossed the junk (slowly!) and feel very good. For the last 10 years I've been taking Vitamin E 1000 IU daily, and since May 06 started a B and C complex. I also drink nothing but Fijiwater (also for 10 years now) it has good amounts of Magnesium, Calcium and Silica that have proven beneficial to me. Have not had the genetic test. It appeared on the scene much later/after my childbearing years. Growing up I didn't have much info on CMT, there were some theories floating around it " might be " genetic, but I appear to be the only one in my family (now deceased) Nonetheless, I chose not to have children because I " intuited " I would pass it on to offspring. There are only a handfull of CMT 2 subtypes currently known. http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html I hope you'll get alot out of the community. ~ Gretchen ( Founder and ELC) Quote Link to comment Share on other sites More sharing options...
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