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Neurologist for Addie

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Hey all,

Just wanted to post and say that I took my 3 year old Addie to the

neurologist today. I'm facing the reality that she has CMT and its

scary. Especially with this new baby here.

He said she has almost no reflexes in her lower legs and hammered them to death

with about three different hammers. Why no reflexes with CMT? He said he hasnt

seen it in a child this young in 15 years. She got her blood work done as well.

I feel bad, sad, guilty all of the above. I hope she will be okay. Thanks for

listening.

Amelia

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