Guest guest Posted June 4, 1999 Report Share Posted June 4, 1999 Group, Boy does this sound familiar. I used to weigh around 130 to 150 lbs depending on the level of prednisone I was on. Now that I am down to 9mg per day and having been through a 6 month course of severe edema and very low albumin I weigh 104lbs. At the beginning of 1998 I weighed 109 and managed to get up to 115 about a month ago. I started feeling a lot more energetic and decided to pick rhubarb and make jam for my family. In three days I lost 8 lbs. It seems in order for me to gain weight right now I must do absolutely nothing or my metabolism just races ahead. I eat everything in sight, including a protein supplement, drink 6 - 8 glasses of water a day. If I drink any more water I have no room for food. SOLUTION - need one soon or I'll be blowing away in the wind. ( I am 5 ft 3 inches tall) Carol/Piney At 08:06 AM 99/6/4 -0700, you wrote: >Hi Group, > > wrote about excessive weight loss and loss of appetite. Sure wish I had an answer. In fact, I have the same problem, but without the loss of appetite. > >This is my dilemma: I want to do everyhing possible to improve my heath and beat this RA. Hence, I have cut out all sugar, cut way back on fruit (my favorite food), only use olive oil in a very limited amount and cut back on carbohydrates (mostly rye and rice). Dr. Mercola would be proud of me, right? However, I was weighed in a doctor's office yesterday and tipped the scales at 9l, yes, 91 pounds. I was 94 a week ago. Yikes, at this rate I'll be the Invisible Woman by Christmas. I'm usually around 102. Was always a lightweight, but this is rediculous. Any director would quickly snap me up for a death-camp scene. I eat well, but how can anyone maintain their weight on veggies, a little fruit, limited carbs, and a few legumes. I'm one of Dr. Franco's patients. So, I get lots of vitamins and minerals through supplements including UltraImflamX which has 200 calories per scoop of which I take 2 per day. Dr. F thought this would help with the weight loss. I love the stuff, but it's a washout as far as weight maintenance let alone weight gain. I'm on the verge of eating sugar and fats just to gain some weight. Believe me, it would only take a little nudge since I LOVE sweets. > >Does anyone have an answer? I'm completely stumped. Thanks. > >Shrinking Sheila, RA 2 years, AP 1-l/2 months: Minocin 200mg MWF ><!DOCTYPE HTML PUBLIC " -//W3C//DTD W3 HTML//EN " > ><HTML> ><HEAD> > ><META content=text/html;charset=iso-8859-1 http-equiv=Content-Type> ><META content=' " MSHTML 4.72.3110.7 " ' name=GENERATOR> ></HEAD> ><BODY bgColor=#ffffff> ><DIV><FONT size=2>Hi Group,</FONT></DIV> ><DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV> ><DIV><FONT color=#000000 size=2> wrote about excessive weight loss and >loss of appetite. Sure wish I had an answer. & nbsp; In fact, I have the same >problem, but without the loss of appetite. & nbsp; </FONT></DIV> ><DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV> ><DIV><FONT color=#000000 size=2>This is my dilemma: & nbsp; I want to do everyhing >possible to improve my heath and beat this RA. & nbsp; Hence, I have cut out all >sugar, cut way back on fruit (my favorite food), only use olive oil in a very >limited amount and cut back on carbohydrates (mostly rye and rice). & nbsp; Dr. >Mercola would be proud of me, right? & nbsp; However, I was weighed in a doctor's >office & nbsp; yesterday and tipped the scales at 9l, yes, 91 pounds. & nbsp; I was >94 a week ago. & nbsp; Yikes, at this rate I'll be the Invisible Woman by >Christmas. & nbsp; & nbsp; I'm usually around 102. & nbsp; Was always a lightweight, >but this is rediculous. & nbsp; Any director would quickly snap me up for a >death-camp scene. & nbsp; I eat well, but how can anyone maintain their weight on >veggies, a little fruit, limited carbs, and a few legumes. & nbsp; </FONT><FONT >color=#000000 size=2>I'm one of Dr. Franco's patients. & nbsp; So, I get lots of >vitamins and minerals through supplements including UltraImflamX which has 200 >calories per scoop of which I take 2 per day. & nbsp; Dr. F thought this would >help with the weight loss. & nbsp; I love the stuff, but it's a washout as far as >weight maintenance let alone weight gain. </FONT><FONT color=#000000 size=2>I'm >on the verge of eating sugar and fats just to gain some weight. & nbsp; Believe >me, it would only take a little nudge since I LOVE sweets.</FONT></DIV> ><DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV> ><DIV><FONT color=#000000 size=2>Does anyone have an answer? & nbsp; I'm completely >stumped. Thanks.</FONT></DIV> ><DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV> ><DIV><FONT color=#000000 size=2>Shrinking Sheila, & nbsp; RA 2 years, AP 1-l/2 >months: & nbsp; Minocin 200mg MWF </FONT></DIV></BODY></HTML> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 1999 Report Share Posted June 5, 1999 Sheila - I tried sugar, fats, etc. They don't help put weight on. They taste REAL GOOD though! One day (not too long ago) when I was real depressed I ate a cheeseburger, 2 Hershey bars and 3 cinnamon rolls in addition to 3 square meals. No change! I don't recommend this and I feel kind of guilty but I didn't gain any weight. Lea wight wrote: > Hi Group, wrote about excessive weight loss and > loss of appetite. Sure wish I had an answer. In fact, I > have the same problem, but without the loss of > appetite. This is my dilemma: I want to do everyhing > possible to improve my heath and beat this RA. Hence, I > have cut out all sugar, cut way back on fruit (my favorite > food), only use olive oil in a very limited amount and cut > back on carbohydrates (mostly rye and rice). Dr. Mercola > would be proud of me, right? However, I was weighed in a > doctor's office yesterday and tipped the scales at 9l, > yes, 91 pounds. I was 94 a week ago. Yikes, at this rate > I'll be the Invisible Woman by Christmas. I'm usually > around 102. Was always a lightweight, but this is > rediculous. Any director would quickly snap me up for a > death-camp scene. I eat well, but how can anyone maintain > their weight on veggies, a little fruit, limited carbs, > and a few legumes. I'm one of Dr. Franco's patients. So, > I get lots of vitamins and minerals through supplements > including UltraImflamX which has 200 calories per scoop of > which I take 2 per day. Dr. F thought this would help > with the weight loss. I love the stuff, but it's a > washout as far as weight maintenance let alone weight > gain. I'm on the verge of eating sugar and fats just to > gain some weight. Believe me, it would only take a little > nudge since I LOVE sweets. Does anyone have an answer? > I'm completely stumped. Thanks. Shrinking Sheila, RA 2 > years, AP 1-l/2 months: Minocin 200mg MWF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 I have the same problem......it has been suggested that I also check on thyroid issues. On 12/15/05, bentleyfam26 <mclarke@...> wrote: Olsen <kiaraellisonabby@...> asked: " Has anyone experienced weightloss while on LDN? Normally one wouln'tmind losing a few pounds, I just don't want to find an underlyingproblem. " I've lost ten-fifteen pounds. I've always been thin, so weight loss is not a particularly welcome side-effect. I've always had to workhard to keep weight on... LDN makes it even harder.Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 and it's a problem? I'm having the time of my life! Before LDN, for 20 years, I could never get down below 135. I longed for the old days of 120 and a flatter stomach. My metabolism feels like it did when I was a teen. I'm loving it! Re: [low dose naltrexone] Weight loss I have the same problem......it has been suggested that I also check on thyroid issues. On 12/15/05, bentleyfam26 <mclarke@...> wrote: Olsen <kiaraellisonabby@...> asked:"Has anyone experienced weightloss while on LDN? Normally one wouln'tmind losing a few pounds, I just don't want to find an underlyingproblem."I've lost ten-fifteen pounds. I've always been thin, so weight loss is not a particularly welcome side-effect. I've always had to workhard to keep weight on... LDN makes it even harder.Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 yep...I get the lecture weekly about not losing anymore weight On 12/18/05, LarryGC <larrygc@...> wrote: and it's a problem? I'm having the time of my life! Before LDN, for 20 years, I could never get down below 135. I longed for the old days of 120 and a flatter stomach. My metabolism feels like it did when I was a teen. I'm loving it! Re: [low dose naltrexone] Weight loss I have the same problem......it has been suggested that I also check on thyroid issues. On 12/15/05, bentleyfam26 <mclarke@... > wrote: Olsen < kiaraellisonabby@...> asked: " Has anyone experienced weightloss while on LDN? Normally one wouln'tmind losing a few pounds, I just don't want to find an underlyingproblem. " I've lost ten-fifteen pounds. I've always been thin, so weight loss is not a particularly welcome side-effect. I've always had to workhard to keep weight on... LDN makes it even harder.Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 Yeah... funny that. When I was 135+ and 140+ I was being warned how unhealthy I'd be, I should lose some, I'm looking a little heavy. When I was 124-127 I heard that I lost weight, looking good... and those were 2 good years. But when I showed up this July at 114, oh, that's too much, you better not lose more, we'd better watch. So since July I weigh myself and take my BP at my chiro's office, so it's the same scale and same BP machine. 114 in July, 120 in September, 117 since. I'd say I've levelled off. We'll see how it goes in the future. I don't worry about enjoying meals when I'm hungry any more Re: [low dose naltrexone] Weight loss yep...I get the lecture weekly about not losing anymore weight Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2005 Report Share Posted December 20, 2005 I am seriously jealous of all of you losing weight on LDN! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 > > My husband brought a scale into my house for the first time in 25 > years. They make me crazy, I can't stay off them. He's literally got it > locked up and it'll come down once a month. The cool thing is, I've > lost 35 lbs over the 2 or so years I've been doing NT, 20 in the last 6 > months. I haven't even been trying. Lynn S., good on you Lynn! I hope you're feeling better? B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 > good on you Lynn! I hope you're feeling better? Yes and no. My heart issues have cleared to the point I'm noticing my underlying fibromyalgia, which I guess is a good thing! I'm working on my treadmill, gingerly. I'm learning what foods trigger me, and while I don't think I'm ready for the full-on SCD I'm noticing certain combinations of foods just don't work for me--potatoes and cream, for instance. Fried potatoes don't bother me, but potatoes in soup with cream don't sit well, and I don't think it's the cream because I can drink that straight with no troubles. So gradually I'm figuring this stuff out. I wish it were easier. Lynn S. ------ Mama, homeschooler, writer, web developer, activist, spinner & knitter Main: http://www.thenewhomemaker.com Portfolio: http://www.siprelle.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 --- In , Lynn Siprelle <lynn@s...> wrote: > > My husband brought a scale into my house for the first time in 25 > years. They make me crazy, I can't stay off them. He's literally got it > locked up and it'll come down once a month. The cool thing is, I've > lost 35 lbs over the 2 or so years I've been doing NT, 20 in the last 6 > months. I haven't even been trying. > > Lynn S. > > ------ > Mama, homeschooler, writer, web developer, activist, spinner & knitter > Main: http://www.thenewhomemaker.com Portfolio: http://www.siprelle.com Wow thats encouraging..thats for sharing and congrats on your losses... I do myself own a scale and due to excersise and cutting down the alcohol..*cough* , I have lost weight this year but it is soo slow..(like a lb a month) I am beginning to think I have metabolic prolems who knows !...I have dusted off the Nourishing traditions cookbook and am looking forward to this new year of health and happinesss. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Hi all. I have CMT1a. Diagnosed last fall. I’m 44 yrs old. I saw Dr.Shy in Detroit who told me to take good care of myself (especially my feet and joints). I am 25 lbs overweight and would like to lose it but have tried several diets and can’t seem to get it off. My hospital has a program called New Directions. It involves losing weight rapidly through low cal diet involving 2 shakes and a sensible meal. The program is headed by a cardiologist and nurse practitioners. It puts the body in a state of ketosis. During the weight loss “journey” there are weekly classes that help you identify why one overeats and the goal is to educate on nutrition and exercise before maintenance begins. I know many people who have had success losing and maintaining. Can being in a state of ketosis be harmful for someone with CMT? I know if the body doesn’t have enough fuel, it can burn muscle tissue and as we all know this is the last thing we with CMT want. The nurse practitioner told me that while in ketosis the body burns fat and that the diet has just the right combination of protein and carbs. Does anyone have any experience or advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 , Best to loose weight slowly, through cutting back on calories, trans fats and increased exercising. Anything that causes drastic weight loss of more than 2 lbs. a week can be harmful to one's heart - whether one has CMT or not. Taking " good care " of yourself is good advice. Remember, the excess pounds didn't come on overnight and they can't be lost overnight either. My own experience with daily exercise and cutting back on calories has worked well for me and still does. It is a " lifestyle " that is centered on discipline. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Geri and Matt, Congratulations on the weight loss! Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 My appetite has been a real roller coaster, & I have lost a little weight recently; dispite prednisone . I find though that when I do feel hungry I usually reach for something sweet/high fat or even worse...a shop bought icecream (I'm lactose intolerant). Dispite being able to quit smoking a few years ago, my willpower when food is involved is weak. Weight loss must be desirable surely, less weight on joints etc. Sharon > > Kathy and .... > > I feel like I've lost my appetite sometimes. I am around 120- 125.. But I > have found that the craving for food has left me. I do remember my first rheumy > telling me that r/a can sometimes do that. Maybe it's the meds. > > Hugs..a > > > ************** > New MapQuest Local shows what's happening at your > destination. Dining, Movies, Events, News & amp; more. Try it out > (http://local.mapquest.com/?ncid=emlcntnew00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 : You can go to your doctor and try to find out why you are not loosing weight. Your thyroid can be a reason too. Marin Quote Link to comment Share on other sites More sharing options...
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