Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 in Missouri, I haven't been at the computer for a while, so even though this is a month old I hope it will help. I have CMT type 2. If I am correct this effects the axon of the nerve. They still at this time can not test for this genetically. I was told that a nerve biopsy would not tell anything either. So, from my understanding, they can do EMG, symptoms, and family history. I am responding because I wanted you to know that I have severe pain. I take narcotics and other meds 24 hours a day 7 days a week. I have been told that type 2 usually is associated with pain. I pray that your son isn't in pain, but I wanted to give you my 10 cents worth. Quote Link to comment Share on other sites More sharing options...
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