Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 << I feel that I don't want to know too much in case I start to 'imagine' more symptons, a case of denial or just feeling safe in my own little world? >> I think that's really normal! Ajay actively avoids people who have MS and avoids talking about her symptoms. She finds that she feels ill if she thinks about symptoms and if she mixes with people who aren't well. It's the main reason I 'chat' with people about MS rather than her (although I do want to do it!). Also - if she reads about other symptoms then she finds that she gets them! Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Shirley, O'siyo! (Hello! in Cherokee) Best wishes, Kip King --- Original Message --- " parrssewingmachines " Wrote on Fri, 5 Jan 2001 11:51:47 -0000 ------------------ ------=_NextPart_000_0033_01C0770D.E20A9B40 Content-Type: text/plain; charset= " iso-8859-1 " Content-Transfer-Encoding: quoted-printable hello, my name is Shirley and I come from England, I have been reading the = mail for a few months and thought that I should introduce myself. I find t= hat reading your messages gives me an insight into the MS that I would'nt o= therwise get. I was diagnosed 6 years ago and so far I have only had one r= elapse, pretty bad, but now I am coping and manage to live a very much ordi= nary life, unless I forget and overdo something! Is this the general run o= f things? I feel that I don't want to know too much in case I start to 'i= magine' more symptons, a case of denial or just feeling safe in my own litt= le world? Thankyou for giving me the time and Happy New Year to everyone. = kind regards Shirley ------=_NextPart_000_0033_01C0770D.E20A9B40 Content-Type: text/html; charset=US-ASCII Content-Transfer-Encoding: 7bit <!DOCTYPE HTML PUBLIC " -//W3C//DTD HTML 4.0 Transitional//EN " > <HTML><HEAD> <META content= " text/html; charset=iso-8859-1 " http-equiv=Content-Type> <META content= " MSHTML 5.00.2614.3500 " name=GENERATOR> <STYLE></STYLE> </HEAD> <BODY bgColor=#ffffff> <DIV><FONT face=Arial size=2>hello, my name is Shirley and I come from England, I have been reading the mail for a few months and thought that I should introduce myself. I find that reading your messages gives me an insight into the MS that I would'nt otherwise get. I was diagnosed 6 years ago and so far I have only had one relapse, pretty bad, but now I am coping and manage to live a very much ordinary life, unless I forget and overdo something! Is this the general run of things? I feel that I don't want to know too much in case I start to 'imagine' more symptons, a case of denial or just feeling safe in my own little world? Thankyou for giving me the time and Happy New Year to everyone. kind regards Shirley</FONT></DIV> <br> <!-- |**|begin egp html banner|**| --> <table border=0 cellspacing=0 cellpadding=2> <tr bgcolor=#FFFFCC> <td align=center><font size= " -1 " color=#003399><b>eGroups Sponsor</b></font></td> </tr> <tr bgcolor=#FFFFFF> <td width=470><a href= " http://rd.yahoo.com/M=163100.1220844.2856387.2/D=egroupmail/S=1700061772:N\ /A=524804/*http://www.classmates.com/index.tf?s=2629 " target= " _top " ><img width=468 height=60 src= " http://us.a1.yimg.com/us.yimg.com/a/cl/classmates_com2/1001fab4.gif " alt= " Click Here! " border=0></a></td> </tr> </table> <!-- |**|end egp html banner|**| --> <br> <tt> ...<BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Shirley, I think it is wise of you not to delve into symptoms etc., if you feel you could have the problem of imagining symptoms. I never worried about that - maybe I should have, but I did most of my research before I received by 'official' diagnosis and I was trying to figure out what I had. I have had MS since 1993, or at least that was when I experienced my first noticeable symptoms, and wasn't officially diagnosed until 1997. That was 4 long years of stewing about it and researching to get answers for myself. By the time a doctor told me I had MS, I was positive of it myself, and was already on my diet and had been for a year. I can't really tell you if your experience is the usual, as I have Primary Progressive MS and have never been without symptoms, since I first got them. My symptoms are, however, much better than they were even a year ago, and I attribute the improvement to my diet, mainly. From what I've read and heard about from friends who have Relapsing/remitting MS, you do sound about on track for that. Carol hello, my name is Shirley and I come from England, I have been reading the mail for a few months and thought that I should introduce myself. I find that reading your messages gives me an insight into the MS that I would'nt otherwise get. I was diagnosed 6 years ago and so far I have only had one relapse, pretty bad, but now I am coping and manage to live a very much ordinary life, unless I forget and overdo something! Is this the general run of things? I feel that I don't want to know too much in case I start to 'imagine' more symptons, a case of denial or just feeling safe in my own little world? Thankyou for giving me the time and Happy New Year to everyone. kind regards Shirley. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 In a message dated 1/8/01 4:25:43 PM Pacific Standard Time, elaineannkelly@... writes: << Dr Swank, who worked out a forerunner of this diet,[ see your search engine!] says that his diet has helped to haltthe spread of the disease in most of his patients! >> ~~~~~I don't think Swank has anything to do with it at all. Swank's diet simply eliminates saturated fat, period. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 DEAR OLIVIA would it be too stressful for you to find out your blood group and accordingly leave out those foods which are listed as likely to make the conditon worse? Iwas diagnosed at age 11 WITH M.S.,RECENTLY NOW AGED 56, I STARTED FALLING AND BEING UNABLE TO GET UP. After 6MONTHS IN HOSPITAL I left , confined to a wheelchair.only able to take a short walk with a zimmer frame! GIVEN A VERY POOR OUTLOOK I DID NOT FEEL UP TO DOING A LOT ABOUT IT. hOWEVER THIS ALL CHANGED, WHEN i CAME ACROSS 'THE EAT RIGHT DIET' At school I had had a 'photographic memory,but round about the time of my diagnosis my mental powers and energy seemed very much to be a lot less than average. I have been on the diet for nearly 12 months now and find that my memory is a lot better, I have even begun to use the computer! Dr Swank, who worked out a forerunner of this diet,[ see your search engine!] says that his diet has helped to haltthe spread of the disease in most of his patients! The EAT RIGHT DIET IS AVAILABLE FROM MOST GOOD BOOKSHOPS-U.K.price £6.99, but also worldwide, century books ,writer, Dr, d,Adamo see www,dadamo.com , Elaine >From: Oliviavdw@... >Reply-To: mscuredegroups >To: mscuredegroups >Subject: Re: hello everyone >Date: Fri, 5 Jan 2001 15:06:32 EST > > >In a message dated 5/1/01 11:44:10 am, parrssewingmachines@... >writes: > ><< I feel that I don't want to know too much in case I start to >'imagine' >more symptons, a case of denial or just feeling safe in my own little >world? > >> > >I think that's really normal! Ajay actively avoids people who have MS and >avoids talking about her symptoms. She finds that she feels ill if she >thinks about symptoms and if she mixes with people who aren't well. It's >the >main reason I 'chat' with people about MS rather than her (although I do >want >to do it!). Also - if she reads about other symptoms then she finds that >she >gets them! > >Olivia _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 Welcome Georgie, Hope you continue to find this a safe haven. I too thought that there was something extremely unique and bizaar about me. The hardest part, however, is in a relationship, when a person doesn't understand and internalizes your reactions as a judgement. It tears away at self esteem on both sides, especially if the communication wasn't there to begin with. I hope you find this helpful! Lynn Hello everyone Hello everyoneI am so glad I found this group after years of thinking I was the only one (I notice that is a common theme!). I first developed SSSS when I was about 11 and my parents started to trigger me when they made a funny sort of clicking noise when they yawned. I'm now 42 and my SSSS has got worse in the sense that more triggers have developed. I now cannot stand to be in the same room as my mother, which is a situation I find incredibly hard to deal with. Even speaking to her on the phone can be a trial. My triggers now include chewing and breathing sounds, with my mother at least. My ex-fiancee found my SSSS difficult to understand and I have no doubt it was a major factor in our break-up. She particularly couldn't understand how she could affect me so much when strangers could do the same thing and I wouldn't bat an eyelid. I can't blame her for not understanding when I don't understand it myself. I know there is an emotional component to my SSSS as I have noticed over the years that if I hear someone who triggers me really badly make an offending sound but then I realise I am mistaken and it was actually someone else, the panic reaction dissipates almost immediately. Anyway, it's a real comfort to know this group exists (although it saddens me greatly that so many other people have this horrible affliction). Although I would love there to be a cure or effective therapy, I think all we can hope for in the short term is greater public awareness. I wish you all strength in adversity. georgie Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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