Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Ok, I just searched past messages again after spelling cholestyramine incorrectly the first time. Looks like I'm opening a can of worms here that has been recently discussed. Anyway, sorry if this is redundant for some, but I'm still interested in replies! Heidi in particular: I read your posts with great respect and saw your previous comments about this. Like you, I tend towards naturals whenever possible and so does our beloved MD. I want to make an additional note here that after 2 years and numerous supplement regimes, this is the first prescription drug he has suggested. Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 I have seen several postings on cholestyramine. Many love it, some don't. They also talk about cholestepure as being an alternative. Are you saying that your doc thinks the germs are gone but the toxins from them are still making people sick. I do feel that many have difficulty ridding toxins, but I also feel they are still full of germs. I see too many people saying they are getting well continuing their lyme-killing treatments over a long time period. Thus, killing the germs in my opinion must continue. Toxins or die-off is rid at my house by lithium orotate by Ortho Molecular, Burbur by Nutramedix, cod liver oil by Nordic Naturals, Pectasol Chelation Complex by EcoNugenics and Mellatonin by Kirkman. We do more stuff too. There are probably other things one could do as well. I have heard that most children with autism have very low cholesterol, that is why many do well on eggs. I do agree that you will get very quick symptom reduction in removing toxins. Much of my protocol is based on protection from or ridding toxins. I hate die-off, and I have great difficulty ridding toxins. Thus, I support ridding toxins, just keep killing germs also. Love and prayers, Heidi N > > I read here daily but rarely post because I have more questions than answers. Now I have a > treatment question for all the knowledgeable members of this group: > Has anyone had experience with a treatment for biotoxin illnesses (including Lyme, > autism, MS, CFS, fibromyalgia, etc.) using cholestyramine? Apparently this is from Dr. > Ritchie Shoemaker's book Mold Warriors (we are awaiting it from Amazon), and my > brilliant doctor has arrived at this strategy to treat Lyme and autism in my family. > His explanation was that " biotoxin illness " is an underlying theory for most of these > diagnoses, and that people's bodies cannot inactivate the toxins even if they go after the > infections. So, we can treat symptoms, treat systemic problems like > yeast/bacteria/viruses/etc., but we continue to see illness because the toxins persist. > Cholestyramine has been around since the 60s, and was created as a cholesterol-lowering > drug. Apparently, it is also effective in acting like a sponge for toxins and carrying them > out through the bowel. I can't adequately condense the information, but I will include a > link that explains it clearly: > > http://www.ei-resource.org/articles/chronic-fatigue-syndrome- articles/neurotoxins- > %11-treatment-information-sheet/ > > Our doctor presented this to me after months of research. He has been seeing my son > (autism, likely Lyme) for 2 years and me (Lyme, CFS) for a year, and he thinks this is our > best strategy for treatment. Thus far, every consultation I've had with him has been for > either me or for my son. I was impressed that he tied us together this time, and I'm > intrigued by the idea. > I had one concern, which was the fact that both my son and I have low cholesterol, and > this is a cholesterol-lowering drug. He explained that it would be short term use, in cycles > if necessary, and that some side effects would be tolerable if we were able to solve our > overall problem by removing toxins. > Any thoughts? > Thanks, > Ingrid > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 From my memory, there have been some who say they love cholestyramine, but some who say it made them ill. Google " cholestyramine liver " to see what you find. I have also seen many postings say to use cholesepure instead, which is non- prescription. I have used neither. I nevr researched them much. I of course mentioned what I use. I would research them to see if you feel they are safe, and then one would have to learn by trial and error to see if it worked for them. I will never forget my trial and error with lithium orotate. I have great difficulty detoxing. I only took the lithium orotate because I take everything my kids take. Thus, I try it first so I know the effects on them. My adopted girl has mood swings, and so I was really looking for some help with that. Thus, I tried out the lithium orotate. I then could not believe how much it helped. I have to take very low doses of pathogen-killers because I get so sick from die-off (dizzy, off-balance, nauseaus, headaches, fatigue, foggy brain, etc.) The lithium orotate enabled me to take much higher doses of pathogen-killers than I normally could take. I never read that it was for dizziness, etc. Thus, that trial and error was a nice surprise. I then researched it some more and found that it protects the nerves from toxins, and is safe in low amounts. Thus, I was sold, since I only need a very low amount. My brother started taking it; he has Bipolar (really just probably lyme). He said he had never felt better in his entire life. Now, I guess I am just saying here that my pattern is to research safety, drug/herb interactions, normal doseage, and then trial and error. Love and prayers, Heidi N > > Ok, I just searched past messages again after spelling cholestyramine incorrectly the first > time. Looks like I'm opening a can of worms here that has been recently discussed. Anyway, > sorry if this is redundant for some, but I'm still interested in replies! > Heidi in particular: I read your posts with great respect and saw your previous comments > about this. Like you, I tend towards naturals whenever possible and so does our beloved MD. > I want to make an additional note here that after 2 years and numerous supplement regimes, > this is the first prescription drug he has suggested. > Ingrid > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 You should go for it. Effects may not be immediate, but over time it shows. I am doing so myself and it is working. care must be taken with timing - otherwise it interfers with many or most medications and supplements. Yoav > > I read here daily but rarely post because I have more questions than answers. Now I have a > treatment question for all the knowledgeable members of this group: > Has anyone had experience with a treatment for biotoxin illnesses (including Lyme, > autism, MS, CFS, fibromyalgia, etc.) using cholestyramine? Apparently this is from Dr. > Ritchie Shoemaker's book Mold Warriors (we are awaiting it from Amazon), and my > brilliant doctor has arrived at this strategy to treat Lyme and autism in my family. > His explanation was that " biotoxin illness " is an underlying theory for most of these > diagnoses, and that people's bodies cannot inactivate the toxins even if they go after the > infections. So, we can treat symptoms, treat systemic problems like > yeast/bacteria/viruses/etc., but we continue to see illness because the toxins persist. > Cholestyramine has been around since the 60s, and was created as a cholesterol-lowering > drug. Apparently, it is also effective in acting like a sponge for toxins and carrying them > out through the bowel. I can't adequately condense the information, but I will include a > link that explains it clearly: > > http://www.ei-resource.org/articles/chronic-fatigue-syndrome-articles/neurotoxin\ s- > %11-treatment-information-sheet/ > > Our doctor presented this to me after months of research. He has been seeing my son > (autism, likely Lyme) for 2 years and me (Lyme, CFS) for a year, and he thinks this is our > best strategy for treatment. Thus far, every consultation I've had with him has been for > either me or for my son. I was impressed that he tied us together this time, and I'm > intrigued by the idea. > I had one concern, which was the fact that both my son and I have low cholesterol, and > this is a cholesterol-lowering drug. He explained that it would be short term use, in cycles > if necessary, and that some side effects would be tolerable if we were able to solve our > overall problem by removing toxins. > Any thoughts? > Thanks, > Ingrid > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 I am not familiar with Questran, but think, if using it at all, it must be of a short-term use, and the level of cholesterol must be closely monitored. Dr. Shaw from the Great Plains Lab talks about the impact of low cholesterol on immune system. Per Dr. Shaw, without sufficient level of cholesterol (he recommends the range for total cholesterol to be around 160 to 180), Sonic Hedgehog proteins cannot be properly activated to help the body producing an appropriate immune response to fight infections. Another function of Sonic Hedgehog proteins is to promote proliferation of adult stem cells. For mopping up biotoxins in the system, we use modified citrus pectin in PectaSol Chelation Complex (http://www.econugenics.com/products/product_detail.php?c=38 & s=6342). This product is very safe. Perhaps you can discuss MCP with your doctor to understand if he thinks MCP can be as effective as Questran for the purpose. Just my two cents, Limin Re: Dr. Shoemaker's Questran (cholestyramine) treatment > You should go for it. > Effects may not be immediate, but over time it shows. > I am doing so myself and it is working. > care must be taken with timing - otherwise it interfers with many or > most medications and supplements. > Yoav > > > > > > >> >> I read here daily but rarely post because I have more questions than > answers. Now I have a >> treatment question for all the knowledgeable members of this group: >> Has anyone had experience with a treatment for biotoxin illnesses > (including Lyme, >> autism, MS, CFS, fibromyalgia, etc.) using cholestyramine? > Apparently this is from Dr. >> Ritchie Shoemaker's book Mold Warriors (we are awaiting it from > Amazon), and my >> brilliant doctor has arrived at this strategy to treat Lyme and > autism in my family. >> His explanation was that " biotoxin illness " is an underlying theory > for most of these >> diagnoses, and that people's bodies cannot inactivate the toxins > even if they go after the >> infections. So, we can treat symptoms, treat systemic problems like >> yeast/bacteria/viruses/etc., but we continue to see illness because > the toxins persist. >> Cholestyramine has been around since the 60s, and was created as a > cholesterol-lowering >> drug. Apparently, it is also effective in acting like a sponge for > toxins and carrying them >> out through the bowel. I can't adequately condense the information, > but I will include a >> link that explains it clearly: >> >> > http://www.ei-resource.org/articles/chronic-fatigue-syndrome-articles/neurotoxin\ s- >> %11-treatment-information-sheet/ >> >> Our doctor presented this to me after months of research. He has > been seeing my son >> (autism, likely Lyme) for 2 years and me (Lyme, CFS) for a year, and > he thinks this is our >> best strategy for treatment. Thus far, every consultation I've had > with him has been for >> either me or for my son. I was impressed that he tied us together > this time, and I'm >> intrigued by the idea. >> I had one concern, which was the fact that both my son and I have > low cholesterol, and >> this is a cholesterol-lowering drug. He explained that it would be > short term use, in cycles >> if necessary, and that some side effects would be tolerable if we > were able to solve our >> overall problem by removing toxins. >> Any thoughts? >> Thanks, >> Ingrid >> > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 Yes, the cholesterol level was my first question for the doctor. My son has low cholesterol and also is intolerant of eggs. He takes the New Beginnings brand Sonic Cholesterol daily. By the way, in answer to Heidi's suggestion, he also takes lithium and so do i! The treatment plan our doc set was for short term use, and he believes the gains to be had from the toxin clean-up would be well worth and temporary side effects from the cholesterol levels being down. He also wants us taking a lot of extra CLO and some other " good fats " while we do this to offset the losses. I will ask him about the PectaSol, thank you. Ingrid > >> > >> I read here daily but rarely post because I have more questions than > > answers. Now I have a > >> treatment question for all the knowledgeable members of this group: > >> Has anyone had experience with a treatment for biotoxin illnesses > > (including Lyme, > >> autism, MS, CFS, fibromyalgia, etc.) using cholestyramine? > > Apparently this is from Dr. > >> Ritchie Shoemaker's book Mold Warriors (we are awaiting it from > > Amazon), and my > >> brilliant doctor has arrived at this strategy to treat Lyme and > > autism in my family. > >> His explanation was that " biotoxin illness " is an underlying theory > > for most of these > >> diagnoses, and that people's bodies cannot inactivate the toxins > > even if they go after the > >> infections. So, we can treat symptoms, treat systemic problems like > >> yeast/bacteria/viruses/etc., but we continue to see illness because > > the toxins persist. > >> Cholestyramine has been around since the 60s, and was created as a > > cholesterol-lowering > >> drug. Apparently, it is also effective in acting like a sponge for > > toxins and carrying them > >> out through the bowel. I can't adequately condense the information, > > but I will include a > >> link that explains it clearly: > >> > >> > > http://www.ei-resource.org/articles/chronic-fatigue-syndrome- articles/neurotoxins- > >> %11-treatment-information-sheet/ > >> > >> Our doctor presented this to me after months of research. He has > > been seeing my son > >> (autism, likely Lyme) for 2 years and me (Lyme, CFS) for a year, and > > he thinks this is our > >> best strategy for treatment. Thus far, every consultation I've had > > with him has been for > >> either me or for my son. I was impressed that he tied us together > > this time, and I'm > >> intrigued by the idea. > >> I had one concern, which was the fact that both my son and I have > > low cholesterol, and > >> this is a cholesterol-lowering drug. He explained that it would be > > short term use, in cycles > >> if necessary, and that some side effects would be tolerable if we > > were able to solve our > >> overall problem by removing toxins. > >> Any thoughts? > >> Thanks, > >> Ingrid > >> > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 I have read two of Dr. Shoemaker's books and both were informative as well as entertaining. They held my attention cover to cover. It's like reading a mystery novel based on reality. He was also on Mystery Diagnosis during the pfiesteria (also a biotoxin disease) outbreak in land and surrounding states. He cured hundreds of people with CSM and I'm told he also has biotoxin disease. Everything he said made sense to me and he has dedicated his life to biotoxin research. My doctor, Dr. Kolb, MD worked with him on a protocol for women who had mold on their breast implants. I didn't have implants but I had a biopsy marker in my breast and mold grew. Dr. Kolb said it was unsanitary conditions at the time of biopsy but I was highly allergic to nickel and I believe the nickel played a role. Some people get very sick on CSM and Dr. Kolb didn't even try me on it but she gave me all kinds of other supplements for me to detox. I am doing much better however I think I have done perminent damage to my HPA axis as my Adrenal Insufficiency is not improving. I also have digestive problems. I also took the MMS and found it to be helpful but discontinued after awhile because fungus can build up a resistance to it. Dr. Shoemaker is very traditional and I believe he is that way because they would go after him in a heart beat if he so much as stepped out of line with conventional medicine (we must stop this from happening to our best doctors. Has anyone heard about what is happening to Dr. Rea in Texas?). Ingrid your doctor sounds wonderful. Sharon > > I read here daily but rarely post because I have more questions than answers. Now I have a > treatment question for all the knowledgeable members of this group: > Has anyone had experience with a treatment for biotoxin illnesses (including Lyme, > autism, MS, CFS, fibromyalgia, etc.) using cholestyramine? Apparently this is from Dr. > Ritchie Shoemaker's book Mold Warriors (we are awaiting it from Amazon), and my > brilliant doctor has arrived at this strategy to treat Lyme and autism in my family. > His explanation was that " biotoxin illness " is an underlying theory for most of these > diagnoses, and that people's bodies cannot inactivate the toxins even if they go after the > infections. So, we can treat symptoms, treat systemic problems like > yeast/bacteria/viruses/etc., but we continue to see illness because the toxins persist. > Cholestyramine has been around since the 60s, and was created as a cholesterol-lowering > drug. Apparently, it is also effective in acting like a sponge for toxins and carrying them > out through the bowel. I can't adequately condense the information, but I will include a > link that explains it clearly: > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.