Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Those are the people you need to give the special card to It's a little business card that says " We've noticed you watching our son's behavior. We've also noticed your behavior. Our son has autism. What's your excuse? " Mean, yes, but I have had rude people make comments, tell me how to parent, say 'he wouldn't do that with me' or any number of things that just shows how ignorant they are. I could tell stories of people we've met in the waiting room of our neuro's office alone...and I love my neuro who reminded me that people ignorant of autism didn't know any better and I needed to ignore them as they won't learn even if I try. disorderlybehavior wrote: > If I had a dime for every time someone told me I needed to > " give my son a good ass whipping " , I could retire! My response now > is; " When you have done extensive research on AS and AS behavioral > issues , taken parenting classes, spent hours at a time keeping my > son in a physical hold so he cannot harm himself or others, stayed > with him through hours of crying himself to sleep because he has no > friends and feels like something is wrong with him and he doesn't > deserve to live, THEN and ONLY then, will I take any parenting > advice from you, and then, probably not! " > The audacity of some people that have no clue what we are dealing > with, and the heartache we go through seeing our kids suffer > and " lose control " ! Many of our kids have low self esteem as it is, > so lets knock them down a few more inches by " giving them a good ass > whipping " , when what they really need, is our understanding of what > their real needs are. > The ignorance is MADDENING!........I'm done now......till the next > time anyway.....there will always be opinionated idiots.\ > > Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Dear Melinda, Congratulations on your soon-to-be-fourth child! I remember your saying long ago that you would like to have a fourth. I know this one was a surprise, but maybe he or she is the surprise answer to your prayers. I'm glad that is doing so well, and even has a girlfriend! I think it will be miracle if Owen ever has one -- but miracles can happen! Good luck with your pregnancy! Love, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 sandy what a nightmare I know here in Florida, If a teacher tried something like that and was caught they would be in big trouble... my mom worked for 13 years with SED - severely emotionally disturbed, and now is 2 years in with the autistic classes and they are very well trained and instructed on what to do and what not to do.... I mentioned this to her and she went nuts... even in her classes such a thing would be completely uncalled for, much less something as simple as you described.... They could never be allowed to touch a child in such a manner no matter what they did... she has been stabbed with pencils and punched and bruised by these children numerous times... they just call the office to call the parents if there is an issue... they are never to take matters into their own hands. In her case it is a little different given the children's disabilities so they are trained to properly detain them & put them into a safe room if they may cause harm to themselves but this never involves hurting the child or dragging them - even if they (the teacher)get hurt themselves. I would immediately call the school board and file a report & demand an investigation - in no way is that appropriate no matter what your son was doing in that class.....especially if other children were upset by these actions.. you have witnesses....I have never heard of such a thing.... Think of it this way as well - if it happened to your boy it will happen again unless someone reports it and puts a stop to it....You can not tell me that an elementary school teacher isn't used to a little "hyperness" here and there - especially with boys.. if not - she is in the wrong business!! How awful! I hope he is OK now.... shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 ly, I'd suggest that this teacher be put on drugs! . . . She's obviously has a problem that needs addressing. Rogene Sandy Verticelli <dusty.com@...> wrote: Talking about medications...My son takes adderal Only during school is he on this stuff and never on summer break I am done worrying about this issue I am saying no to the medical field and the teachers this year I am his mother not them.... They have always wanted this in my son's system I already had a teacher screaming to me on the phone to bring in his medicine My son was never suspended from school so it could not have been that bad I had mentioned that I will find something heathier for my son's system but the teachers were against it ,they prefer drugs in his little body instead My son was finished taking his test and sat on top of a table, that made the teacher very angry The teacher dragged my son across the floor and my son's was foot got caught in the leg of the chair The other children were yelling to stop dragging him and his pants ripped as she continued to drag him This is why my child only a sixth grader at the time.... should be drugged up ?? A nother teacher than took all the kids out to the hallway and rehearsed a few times what he wanted them to say Parents called my home saying their child came home so upset because my son did not deserve this treatment I pray someone who is skilled will get the rest of the crap out of my chest !! I need my health and strength this year I am sooo done with this guinne pig nonsense with drugs and implants. Just Venting My Thoughts, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Sandy, what a horrible thing to go through! I feel for you...it's tough to deal with conflict when you're feeling so ill. That teacher should be dismissed and charged with assault. How dare they treat a child like that! There's no way someone can force you to have your child on medication. There are alot of natural supplements to provide assistance to the brain. My grandson has been on MegaFocus-- essentially Omega 3 and fish oils. It helps me as well. I'll be praying for your situation. God bless you and heal you & your son, Sunny > > Talking about medications...My son takes adderal > Only during school is he on this stuff and never on summer break > > I am done worrying about this issue I am saying no to the medical field and the teachers this year > I am his mother not them.... They have always wanted this in my son's system > > I already had a teacher screaming to me on the phone to bring in his medicine > My son was never suspended from school so it could not have been that bad > > I had mentioned that I will find something heathier for my son's system > but the teachers were against it ,they prefer drugs in his little body instead > > My son was finished taking his test and sat on top of a table, that made the teacher very angry > The teacher dragged my son across the floor and my son's was foot got caught in the leg of the chair > The other children were yelling to stop dragging him and his pants ripped as she continued to drag him > > This is why my child only a sixth grader at the time.... should be drugged up ?? > > A nother teacher than took all the kids out to the hallway and rehearsed a few times what he wanted them to say > Parents called my home saying their child came home so upset because my son did not deserve this treatment > > I pray someone who is skilled will get the rest of the crap out of my chest !! I need my health and strength this year > I am sooo done with this guinne pig nonsense with drugs and implants. > > Just Venting My Thoughts, > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 MAYBE SHE IS ON DRUGS, ROGENE.......... SOUNDS THAT WAY TO ME... SHARI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 , These drugs are all drugs for RA and since you didn't list RA as a diagnosis, that is probably why your doctor hasn't mentioned them. I'm sorry you are having such a hard time finding a good doctor. a On Sep 4, 2006, at 3:43 AM, Santana wrote: > I have fibro, raynaud's disease, gastro problems, esophagus > problems, chronic fatigue, chronic pain, something with liver, now > my right arm,wrist,fingers. I saw a rhuematologist and not once did > he ever mention any of the medicines that you guys talk about, e.g. > methotrexate, folic acid, arava, plaguinel, what are these meds and > what are they for, and do they work? Sorry for my ignorance, I have > not had the best luck with doctors, in fact I was diagnosed by a > specialist at UCLA, not one doctor here in so Oregon new what to do > with me, I have been diagnosed and then undiagnosed, misdiagnosed > and then finally I said the hell with this I am taking matters into > my own hands, told my attending physician at the time that I did > not want to see anymore doctors that they were sending me to, I > found a fibro doctor at OHSU-Oregon health science university in > Portland Oregon. both these doctors figured out what is wrong with > me, but left everything up to primary doc, never ment any of theses > meds like I said. > > any help would be great, I am looking for a new doc. > > Sincerely, > > happybluerainbow@... > > > --------------------------------- > Stay in the know. Pulse on the new .com. Check it out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 , Now you need to find a rheumatologist in your area. While primary care dr.s can be wonderful (I love mine..he is a sweetheart!!)..he is the first to admit that he is not up on all the latest on RA meds and treatments and that is what you need. You need a specialist who knows all the ins ad outs of RA and what works and what doesn't and what to add to a therapy if the first med is working some...just needing a kick from an second med...and knows when to throw in the towel on a therapy and change to something else totally. So, a rheumtologist is what you need. The big city drs can't prescribe for you unless you want to keep going back there on a regualr basis which can be costly dependig on how far you are from them. My Rheummy is in Phoenix...so to go and see him is about 120 miles round trip. The same with my pain management DR., but I live in a small town that can't support the specialists..so once or twice a month I go the the big city!! It is worth it as you are then getting the very best of care. And if you feel that you are NOT getting the best of care then you need to take things into your own hands and change to a new Rheummy until you find oe that you can work with a that will work with you. Some are wonderful, and some are in and out of the exam room so fast that you are left with all your questions unanswered...this is not good. You are a customer...and you need to expect good service. If you can't talk to your dr because he hasn't got time for you, or won't answer your calls etc...then it is time tobgobonline and find someone else..or ask someone in your area who has a similar diagnosis which Dr she sees and is she happy with him? word of mouth is great ...if you can find someone else with a similar diagnosis, otherwise go online! WHen you start asking you will probably be surprised at the number of people who have auto-immune problems...they just don't hang a flag out and announce it to everyone...but there are millions of peopl in this country who are in the same boat you are. Like here...we are all in the same boat...just some of us are in big boats, some in little boats and some have more leaks in the boat and so we have to paddle harder to keep afloat!!! and remember that the group is here for you and your questions, and just about any of us would reply to a personal e-mail with a more private question if you put RA group/HelP in the supject line!!.......hope this has helped you some!...hang in there!! We are here for you 24/7 and keep paddling your boat!!.......jenna When you lose a loved one, you gain an angel whos' name you know ! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 I am on a lot of medication for my migraines. Where can I find the list of medications that are not good for CMT patients. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 , Not sure who you're refering to but I personally have NEVER taken one medicine for CMT. In fact, I take no medicines on a regular basis at all! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Not referring to anyone. Just sharing my experience about extreme fatigue and medication. That's all. Quote Link to comment Share on other sites More sharing options...
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