Re: Tingling arms and legs

[Guest guest]

Hi Maureen,

I know exactly what you are feeling. It's more of an annoyance and kept me up

many nights. Its like an annoying itch that scratching doesn't relieve. I used

to take a really hot shower which seemed to relieve the tingling feeling. I

think its a part of the CMT

and in my feeling its the nerves starting to deteriorate. I did some research

and what has worked extremely well for me is Neurontin. It also prevents the

muscle pains I get mostly in the morning when I am inactive. I also take

Ultracet which is a non

narcotic which helps with the overall pain associated with excessive activity.

Since I have been taking the medical regime I can honestly say the tingling has

been gone. Of course the muscle pain is there every now and then when I do a

lot of excersize. Also

taking vitamin B12 can help maintain your nervous system.

Understand you will hear a lot of what works for certain people so my regime may

not work for you and you may have to try different things but I would do

research first because most doctors have no idea how to treat it other then

narcotics which I wouldn't

recommend. Keep us updated.

Andy

[Guest guest]

Maureen, I started having the symptoms of neuropathic pain about two years

ago, before even a CMT diagnosis. I'm a cause/effect type of person and

found that yoga REALLY helped with the symptoms. As long as I kept things

stretched out, the numbness/tingling was kept to a tolerable level. I could

always tell when I'd been neglecting my stretches by the return of the

numbness.

After foot surgery last fall, unfortunately it's been really difficult to do

a lot of my stretches, and the 'buzz' in my feet has returned. My doctor

gave me Cymbalta and that's really done a good job of knocking it out. I

take it in the morning and have had few problems sleeping at night. It makes

me a tad spacy, but it's much better than the narcotics I was previously

taking.

O

[Guest guest]

I was told that a pinched nerve could do this. I had x-rays done of my neck just

last month. Ben-gay works miracles for my bad disks, sore muscles and pinched

nerves.

[Guest guest]

I sleep with a large body pillow for years before I was diagnosed,

my spouse calls it my other " Wife " . I also have the same symptoms you

describe and this is the best idea besides taking strong medications

at night.

[Guest guest]

Hi all. Just wanted to share my symptoms too. I also have the tingling, pins

and needles, stabbing pains, muscle twitches and vibrations. I am on 800 mg of

Neurotin 3 times a day. It has definitely lessened the symptoms but they are

still there. I also get the " stocking " feeling in my lower legs. Personally I

find that walking or anything too physical makes my symptoms worse. That's just

my two cents.

Teri

CMT 1B