Re: CMT, HNPP, and my new news...I'm confused

[Guest guest]

Hi ,

Thanks for sharing. This is VERY interesting. Assuming your part of a study

program?

My son was diagnosed with CMT in Dec 2006 and several times he has had a body

part go numb for days. Two examples: He was sitting on the floor watching TV

and had his foot tucked under him and his leg/foot was numb for 3 days.

Another time he was in school and had his arm over the back of his seat and was

leaning on it and his arm and hand were numb for 5 days. I can't imagine having

your hand numb for 6 months!

He doesn't have any reflexes either and I'm so curious to have him try what they

had you try to see if it works for him.

Please continue to post about your experiences with this.

Carmella