Re: tingling and numbness

[Guest guest]

Barbara,

I've also had the numbness and tingling in my feet since I first started

taking pred and it's been there every day, some days worse than others,

ever since. The higher the pred dosage, the worse it's been. Right now

it's a little better. I wonder why it's not listed as a side effect of

Prednisone since it obviously is? Lately, at 5 mgs. of pred, my feet have

that feeling you get when you come in from walking in snow or ice. Kind of

a burning achy tingling, when I sit down. They feel like they should be

cold but they're not. Mine has been bad enough to make it impossible to

sleep at night. Curious.

Geri

[Guest guest]

I had to respond to this one because of your description " lot of

twitching muscles and pain in my back, creepy sensations under my

skin " I have had lyme for 7 years and have not been treated yet but I

experienced this in my leg the other day. Out of all of the CNS

symptoms this was the wierdest. It started with quite a few of the

muscles in my lower leg and foot twitching and progress to the point

that it felt SO WIERD that my whole body would shudder. I finally

figured out that I was actually having a revulsion response to

that " creepy sensation " So I don't know if it would really just be a

response to treatment. It just may be a different manifestation of

the disease.

> > Hi Grete, I have been on the Flagyl for about 8 months now and

possibly it

> is

> > giving me some neuro side affects. It is hard to tell though. I

also have

> > excess saliva, alot of twitching muscles and pain in my back,

creepy

> > sensations under my skin and numbness in my hands/arms when I

sleep. I

> have

> > looked these symptoms up and all I keep on finding is ALS or Lou

Gehrigs

> > disease. This, of course is terrifying me. i kow that Lyme can

cause so

> many

> > symptoms though. I am going to try an get an appt with my LLMD.

> > a

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > Dear a,

> >

> > I understand your anxiety and concerns. When I feel that way I

find it

> improtant that I get the answers I'm looking for, whatever it

takes. If it

> of any help to you, I have had the same symptoms in my face and

muscle jerks

> and numbness of hands as well as very cold feet when taking Flagyl.

The

> easiest way for me to find out if it was Flagyl that caused the

severity of

> symptoms, was to get of it and waite until symptoms subsided, and

they did.

> Then I became aware of that Flagyl often is used late in the

treatment, and

> is concideded contorversial by the LLMD community. Eventually the

choice is

> mine - as you may note in an earlier respone of mine, I chose to

stop for a

> while and continued the Biaxin. Love Grete

[Guest guest]

Maureen,

I can understand not wanting to go the medication route. The only

numbness I have had is in my feet, and that is controlled by being

active, and also changing shoes, plus feet exercises (also do them for

hands - all while in the pool)

Anyway, perhaps try Magnesium in your diet; I get quite a bit now from

my bottled water and also brown rice.

http://www.whfoods.com/genpage.php?tname=nutrient & dbid=75

~ Gretchen