Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 I have CMT type 2A which is relatively mild as the DNA sequence abnormality exists on only one chromosome of the pair. I am trying to get disability insurance and my neurologist wrote me a letter to " get in front " of this pre-existing condition. He stated simply that I have a " chronic sensory peripheral neuropathy which I do not suspect will ever impair his ability to function, walk or engage in gainful employment. " Privately, he told me that the progressive numbing of my extremities is happening so slowly that, at worst, perhaps when I'm in my 60s I may need to use braces to walk but that I am unlikely to lose the use of my limbs. The underwriter for RiverSource Insurance (the new American Express Financial Advisors / Ameriprise insurance company) sent me a letter denying me coverage and my financial advisor at Ameriprise says " Its frustrating, but what I've been told is that this is an industry wide standard for anyone with peripheral neuropathy. So we can inquire with other companies, but I think shopping around and finding a carrier is going to be a bit of a challenge. I am also told that an exclusion rider is not able to be considered due to the unpredictable nature of the condition. " Do any of you know of a way that a CMTer can get disability insurance, perhaps with an exclusion for CMT? Or, perhaps, share your own experiences in this regard. I searched the group postings and found nothing on this posted in the past. Many thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 , Do you mean " Long Term Disability " insurance? Or what other kind? If it is LTD, your employer may offer this. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 This is the problem with having yourself diagnosed. Once you let the genie out of the bottle you must live with the consequences. If CMT runs in the family, it's easier to simply accept the obvious and the insurance industry will never know. It's not like the doctors can really do anything for you, when you're in your 40's and 50's deal with it then. But honestly no insurer is going to take on a pretty much sure future disability claim, they're in business to take your money not give money to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 Yes I am now working for a small employer, less than 10 employees and I too have been rejected for short and long-term disability because of CMT, Sleep Apnea (although had surgery to try and resolve) and GERD (same, surgery to fix). It would be unusual to get rejected if you have a large employer because then it is a larger group plan than small employers have. RPM Quote Link to comment Share on other sites More sharing options...
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