Re: CMT and Guillain-Barre Syndrome

[Guest guest]

Rena:

Yes, Guillian-Barre Syndrome is rare. I don't know how it will effect CMT.

But I have CMT 1 and my husband, , who doesn't have CMT has had

Guillian-Barre Syndrome. He had two episodes of it when he was younger (around

the same age as your son). The therapy is vital! My husband was

temporally-paralized from the waist down the first time and recovered, then

temp-paralized from the neck down the second time and recovered. He does have

some side effects from it. If your son needs someone to talk to who has

personal experience of it please feel free to either e-mail him directly:

kcrock@... or call him Toll-Free here at the office during business

hours 1-877-294-1717.

Best Wishes on recovery,

Crock