Menopause and CMT

[Guest guest]

Hi Gretchen and friends, Good Afternoon, I hope all is well out there

with you all! So Sorry, I have been away from the internet for such a

long time!

For a long time I have not been feeling very well and had to go to

Brazil because of my health... I just came back to UK on the 21st of

this month... While I was in Brazil I have done a lot of different tests and

blood examination etc,etc. Last year had a bad depression

and the CMT nerve and muscles got worsen.

The doctor told me after all my hormone levels was almost inexistent

due menopause, so I had a very low levels and so that was the reason

why my health was so bad. After done a MRI of my hips found out I had a

atrophy in the gluteus muscles, bursitis on both sides and also now I

have osteoporosis unfortunately. I would like to ask you if any of you

GIRLS are having problems with menopause x CMT.

Gretchen, I've tried to have a look at files on menopause too... still looking

all possibilities of treatment. Maybe some of you have some idea about the so

called Bio Identical Hormone? Apparently it suppose to be very good for us, but

here in UK I can not get much information so far. I also would like to thank

you ALL for everything...for any help.

Thank you so much!!!! Have a great week end everyone! Love you ALL,

Joana in London

[Guest guest]

Oh the memories. My Mom didn't use any hormones. She started menopause when I

was in the 4th grade. I was the only 4th grader that had stuff thrown at her on

the way to the school bus.

[Guest guest]

Hi Joanna,

So good to see you back! I wondered where you've been.

I wish I had info for you on Menopause and CMT, but it seems most of

the research on CMT is done by men, and is (so far) limited to

genetics, and some supplements like Vitamin C, just for general CMT

1A. What seems to be happening is those of us in the CMT community

are growing, and our needs on accessible information is growing, and

those needs (especially for those of us in the " boomer " generation)

is fast outpacing research attempts.

I have friends on HRT (Hormone Replacement Therapy) here, but I have

no need nor do I want to add anything in to my body if I don't have

to. Why add hormones to an already inbalance of hormones? I am most

always hot, lol, but I have been this way most of my life, so

nothing is really new, except in winter I sure don't need many

blankets at night, lol

I keep on the exercise wagon with aquatics and also now started

mountain biking again (except I'm actually riding on roads for

awhile) I also pay closer attention to my nutritional needs and need

for calcium, etc.

Not sure if these links have anything you don't already know

http://www.adoracalcium.com/wmns_health/menopause.htm

http://www.womentowomen.com/menopause/endingconfusion.asp?

id=1 & campaignno=menopause & adgroup=adgroup1 & keywords=menopause

http://www.combipatch.com/GlobalPages/Glossary.aspx

http://adam.about.com/encyclopedia/004015.htm

Are you taking Magnesium and/or Calcium supplements and paying

attention to Nutrition? Also, I remember you were regularly going to

the gym, so I wonder if you're doing that too.

I'm so happy to see you back and look forward to your posts.

~ Gretchen

[Guest guest]

Hi Gretchen.

I have been thinking here ...

How come menopause could be so hard on me? I wonder about other people with

CMT? Brought my life up side down , honestly hard to describe it this nightmare

Night sweats, depression, luck of energy, more weakness in my feet etc... I will

have look at Kava Kava..

Soon I will go to Brazil again...and I hope life will be better!

I forgot to say that I have been trying to leave London for good

and I hope I will soon. When I am in Brazil I am another person completly, I am

much better and happier person out there.

also there my sleep is better too

Here in UK I am wake at nights...and sleeping during the days always

I have been doing that now for more than 3 years! Very bad, anyway... I know but

that is the only way I found to live here.

Have a nice evening ...Take care & God Bless You!

Joana

[Guest guest]

Hi Joana,

Simply, the years of menopause 1) completely change our body and 2) this change

itself is stress - physical stress and emotional stress.

See you on FB!

Gretchen

[Guest guest]

Thank you Gretchen ...

Regarding the menopause :

I have asked you because you said you feel better than before, so I thought you

have done something special maybe taking suplemnents and lots of exercices etc

etc... Because in my case, I DO NOT FEEL BETTER THAN BEFORE ;( ha!

Talking bout exercices, yesterday I spoke with my friend ( doctor in Brasil) and

she warned me about be very careful with some exercises...

Thinking we do not supose to do certain exercises because could make CMT worse.

Some people take glutamine and L Carnitine to help.

Well, I always do the threadmil and some bicycle at home too...

I don't do much wheight but never know when is good enough.

After the exercices at the gym I feel my legs like a jelly. Takes time to get

better.

Interesting, I believe we are all diferent, for some swimming, walk on

threadmill and even do weights is ok...and for others is not!

Have a great day!

Joanna

Ps: what is see you on FB? heheh

sorry could not understand what you meant

Thank you again Gretchen