How to talk about CMT... Thanks

[Guest guest]

I want to thank everybody who took time to respond to my post about

how to tell people abut CMT. It has been a major struggle for me

over the past few years.

I learned a lot from all of you. The hardest part for me was not the

lack of feeling, the falling or the fatigue. It was in how people

looked at me, especially my family.

Today, I had a conversation with my wife and she tried to tell me

that the fatigue probably did not affect other CMTers to the extent

that it affects me.

I read her some of your posts, and for the first time in our

marriage, I think she finaly understood just how hard it is to deal

with this " condition. "

I am the first in my family with the condition, and have nobody to

compare notes with, or who can listen and fully understand.

ly, it came as a shock to me that you all have such similar

experiences. It is the first time that I have not felt alone in this.

Thanks again. I so appreciate this group and all of you.

Mike