Need some letters PLEASE!

[Guest guest]

Hello, My name is Darren Kirk, and I have CMT type 1. I am going

through a custody battle ( see savecarolinamaria.com/) My ex doesn't believe my

daughter could have CMT. I am not sure, but of course have always erred on the

side of caution with my daughter.

My lawyer isn't convinced either that children with CMT require any

different treatment. I told him about falling down, feeling cold,

poor coordination, taking vitamin C, fatigue, and so on.

I was really hoping that a lot of you parents with children could write me a one

page letter about what you did different with your CMT children, about your

mindset about your children, and any other

relevant information.

If you could include you name, address, and phone number so the other lawyer

won't thing I wrote a bunch of letters up that would be great - at the worst you

would get a call verifying you are a real person.

The last time I saw my daughter she had a just gotten out of a cast for a broken

arm, and was in a cast for a broken leg. It was 45 degrees and she had on

shorts and a short blouse.

I am fighting to educate the courts, and my lawyers about the realities of CMT

in children - just because my daughter looks normal doesn't mean she can't have

CMT. So far my family has a 100% incidence of CMT, and I am getting ready to

have another of my

toes released - what a deal .

My daughter may be the first, but I am not holding my breath. Please write me

one page letters about what you did for your young children with CMT, from the

most simple things to the complex. Thanks very much - Call me if you have any

questions, my number is on my website - savecarolinamaria.com/.

One more quick question - if anyone knows a CMT expert that will testify in

court about the care of a CMT child - It would be greatly

appreciated - they would be paid if needed - Thanks again!!!

Darren