Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 I posted on our experiences with Ambrotose a month or two ago. If you search the archives for " Ambrotose " you should be able to find it. In a nutshell, we've been using it almost constantly since January. When we first started, even 1/4 tsp. made my son hyper. We had to start with a really small dose and increase it gradually. He now takes 1/2 tsp. 2x/day (I've tried increasing it, but this seems to be his limit). My son was in the 70th-80th percentile (height and weight) until he was about 3, then his started dropping. By the end of last year, he was slightly off the bottom of the chart. He hadn't gained any weight in over a year and I was trying everything I could think of to put weight on him. His height barely increased all year. Since we started the Ambrotose in January, he has now gained 4 lbs. (and kept it on) and 1 inch in height (another 1/2 inch since the last time I posted about the Ambrotose). I have no proof that it's the Ambrotose that is helping, but it's the only thing we've really changed this year. I'm planning to keep him on it until the end of the year and see what happens. His food allergies and sensitivities seem better (not as many reactions), and his yeast problems are also better. - Becky B. www.infeat.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 In a message dated 1/7/04 8:13:54 PM, Krumenacker@... writes: << Also, does anyone use Glyconutritionals Ambrotose? I believe that this is made up of sugars and carbohydrates. Could this contribute to my son's yeast/bacteria issues? >> If it's sugar and carbs I think it would *have to make yeast/bacteria worse. Is anyone using this product successfully? Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Yes we used it for 6 months, liked it but wanted to try other things and this was too epensive to keep up with MAndi in UK > Hi. My sister in law mentioned this product to me...have any of you > had any experience with it. Her sons have a rare genic condition > that prevents them from fighting infections and she has used it for > years. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 It made my son hyper, but I have a friend with two ASD children who thought it helped her kids a whole lot. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 It was easy to take and at that time Sam was always ill with a runny nose or something and he didn;t get ill at all while we were taking it. We used Phytaloe at the same time. Some rather stinky gas when we started, that was more difficult to get in at the time - whe was only 3. Same thing on Kirkman Colostrum Gold, no illness. Both are expensive. I couldn;t afford to do the mega high dosing on either or we might have 'seen more' from it. The man you want to talk to about them is Willis Langford, he reckons they saved his life. Very helpful old chap - bout 83 now I think, will be happy to converse with you at willissL@... HE has a partcular interest in Autism HTH Mandi in UK > What did you like about it? We are just starting to research > glyconutritionals... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Dear Mandi, What did you like about it? We are just starting to research glyconutritionals... Thanks! , Mom to and Re: Ambrotose > Yes we used it for 6 months, liked it but wanted to try other things and this > was too epensive to keep up with > MAndi in UK > > > Hi. My sister in law mentioned this product to me...have any of you > > had any experience with it. Her sons have a rare genic condition > > that prevents them from fighting infections and she has used it for > > years. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Thanks, Mandi! I met Willis Langford at a DAN! conference and even took his picture. He's definitely one of the " good guys " who continues to question even the DAN! folks when what they say doesn't mesh with his vast storehouse of knowledge. Have a great day! , Mom to and Re: Ambrotose It was easy to take and at that time Sam was always ill with a runny nose or something and he didn;t get ill at all while we were taking it. We used Phytaloe at the same time. Some rather stinky gas when we started, that was more difficult to get in at the time - whe was only 3. Same thing on Kirkman Colostrum Gold, no illness. Both are expensive. I couldn;t afford to do the mega high dosing on either or we might have 'seen more' from it. The man you want to talk to about them is Willis Langford, he reckons they saved his life. Very helpful old chap - bout 83 now I think, will be happy to converse with you at willissL@... HE has a partcular interest in Autism HTH Mandi in UK > What did you like about it? We are just starting to research > glyconutritionals... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 My daughter has been taking the bulk powdered Ambrotose for a year and a half now. It has really helped her immune system. She still gets sick once in awhile, but her colds only last one or two days instead of a week, like they used to. When she first started taking it, she went through a detox process and was rather irritable. But, as time went by, we noticed big improvements in her communication and understanding of things. Of course, it did not cure her, but we definitely saw some improvements. The product is a bit expensive, but it has been worth it for us. Please feel free to e-mail me for more information. --Vicky > Hi. My sister in law mentioned this product to me...have any of you > had any experience with it. Her sons have a rare genic condition > that prevents them from fighting infections and she has used it for > years. > > The link is > > http://www.mannapages.com/sharethegift/PRDAmbrotose.asp? > sMainMenu=ShopNow & sMain2Menu=ProductList & sSubMenu=Products & sSubMenuIt > em=PRDAmbrotose.asp & sSubMenu2Item=na & sSubMenu3Item=na & UN=shopnow > > Would love anyone's imput on it.... > > --Kristal in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 I think that must have been soething similar sounding. Neither of these ar ein Ambrotose. We liked it, Sam who had previously suffered several cough, colds, ear infactions etc didn;t get ill while taking it We stopped after 6 months to pursue other things. Kirkman Colostrum Gold worked well for the infections too. Since switching to HNI enzymes and off diet, I don;t think Sam has been ill at all, oh yes, once, high temp 104 x 13 days, no focus of infection found, silly me stopped the enzymes becuase he wasn;t eating. Facing a similar situation now I would up the enzymes (Pep) and keep going MAndi in UK > Look at the resent post on the A-M board there was a mother there > that said she was using it but it had some sort of copper or metal > thing in it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Look at the resent post on the A-M board there was a mother there that said she was using it but it had some sort of copper or metal thing in it. Dena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 I looked it up because I was " curious " to see... apparently what she wrote was that ambrotose is coated with titanium dioxide. I looked a little on the net to see what if any concern that presented and couldn't really come up with anything. It is used in cosmetics and plastics, etc. It gives a really white color --maybe that's why they use it. I would imagine it is probably in more products than we realize and probably one of those things that if your child is reacting well to it, it is worth staying " on " it. I couldn't find anything bad about titanium dioxide. Maybe someone else will... ;-) W > I think that must have been soething similar sounding. Neither of these ar > ein Ambrotose. We liked it, Sam who had previously suffered several cough, > colds, ear infactions etc didn;t get ill while taking it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 , titanium is a toxic metal. Eating titanium dioxide should not be good... Margaret > > I think that must have been soething similar sounding. Neither of > these ar > > ein Ambrotose. We liked it, Sam who had previously suffered several > cough, > > colds, ear infactions etc didn;t get ill while taking it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Hi--yes, I know titanium is a metal and it can build up to be toxic, but I don't know how titanium dioxide is different from it/if it is-- I'm afraid I'm didn't do well in chemistry! :-) I'm just saying that I couldn't find anything specific related to toxicity of it on the net (as opposed to titanium toxicity). If someone has their child on it, perhaps they can contact the company and find out why they are using it. W > > I looked it up because I was " curious " to see... apparently what > she wrote was that ambrotose is coated with titanium dioxide. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Note: forwarded message attached. ===== Barb Katsaros barbkatsaros@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 I use to sell Ambrotose products thru Mannatech...while I didn't see any changes like you described, I did notice that my kids did not get all the minor colds thru winter like they do without the products... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 So this has been around for awhile? Anyone else use it? --- nechapasi@... wrote: > > I use to sell Ambrotose products thru > Mannatech...while I didn't see any > changes like you described, I did notice that my > kids did not get all the minor > colds thru winter like they do without the > products... > > > > > [Non-text portions of this message have been > removed] > > > > > ===== Barb Katsaros barbkatsaros@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Yes Ive heard of it. Its definately helped my son. He's 14 now and I sure wish I would have known about it when he was younger. You can also go to www.glycotoday.com for more information. Evidently the technology has won 4 nobel prizes (for the sugar technology that is) that the manufacturer has a patent pending on the process. leigh ambrotose Has anyone out there heard anything about ambrotose, which is a nutritonal supplement comprised on dietary sugars, which is supposed to be an immune modulator? A friend of mine researched it, and ordered it thru the mail, gave it to her autistic 2 1/2 year old for 2 weeks. He is now recognizing himself in the mirror and talking a great deal more. His therapists see a great difference. Anyway, I didn't want to falsely raise anyone's hopes, but from what my friend said, this co. was able to bipass fda approval, because it is considered a nutritional supplement. If interested, you can read more thru the website www.glycoscience.org. I am in the process of reading it. It is very technical, tho. My friend is going to Rosemont, Il. tomorrow night to hear the company present research,etc. I would imagine that the website would tell more about that presentation, if you are nearby and interested. She feels that there is a lot of good, welldone research to back up the product. I have not been able to do too much research on my own, yet, but I wanted to share what I did know, in case anyone wanted to look into it. I haven't asked Dr. Goldberg about it yet, but I intend to. I won't try it on my kids, without his approval. My friend has been on a waiting list for quite awhile, and just heard that she will be able to take her son to see Dr. Goldberg within 3-6 mos. Apparently, he now has a nurse practitioner working with him? That is wonderful news! Barb ===== Barb Katsaros barbkatsaros@... Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 How long has your son been on it? Are you also a pt. of Dr. Goldberg's? What kinds of changes/improvements have you seen? Barb --- leigh <leigh@...> wrote: > > > > Yes Ive heard of it. Its definately helped my son. > He's 14 now and I sure > wish I would have known about it when he was > younger. You can also go to > www.glycotoday.com > for more information. Evidently the technology has > won 4 nobel prizes (for > the sugar technology that is) that the manufacturer > has a patent pending on > the process. > > leigh > ambrotose > > > > > Has anyone out there heard anything about ambrotose, > which is a nutritonal supplement comprised on > dietary > sugars, which is supposed to be an immune modulator? > A friend of mine researched it, and ordered it thru > the mail, gave it to her autistic 2 1/2 year old for > 2 > weeks. He is now recognizing himself in the mirror > and talking a great deal more. His therapists see a > great difference. Anyway, I didn't want to falsely > raise anyone's hopes, but from what my friend said, > this co. was able to bipass fda approval, because it > is considered a nutritional supplement. If > interested, you can read more thru the website > www.glycoscience.org. I am in the process of > reading > it. It is very technical, tho. > > My friend is going to Rosemont, Il. tomorrow night > to > hear the company present research,etc. I would > imagine that the website would tell more about that > presentation, if you are nearby and interested. She > feels that there is a lot of good, welldone research > to back up the product. I have not been able to do > too much research on my own, yet, but I wanted to > share what I did know, in case anyone wanted to look > into it. I haven't asked Dr. Goldberg about it yet, > but I intend to. I won't try it on my kids, without > his approval. My friend has been on a waiting list > for > quite awhile, and just heard that she will be able > to > take her son to see Dr. Goldberg within 3-6 mos. > Apparently, he now has a nurse practitioner working > with him? That is wonderful news! Barb > > ===== > Barb Katsaros > barbkatsaros@... > > > > > > > Responsibility for the content of this message lies > strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 You might also want to visit the web site for the Alabama Autism Society. The glyconutrient products, such as ambrotose, have been the " hot " treatment in our state lately, so there have been quite a few postings there about it. Most parents have seen little improvement or have seen regression. A few feel it has been really helpful. However, it is very expensive (everyone here is paying for it). You also need to keep in mind that Mannatech has a mult-level marketing sales stratgey. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Barb, Did you find out anything more about the ambotrose supplement? thanks theresa ambrotose Has anyone out there heard anything about ambrotose, which is a nutritonal supplement comprised on dietary sugars, which is supposed to be an immune modulator? A friend of mine researched it, and ordered it thru the mail, gave it to her autistic 2 1/2 year old for 2 weeks. He is now recognizing himself in the mirror and talking a great deal more. His therapists see a great difference. Anyway, I didn't want to falsely raise anyone's hopes, but from what my friend said, this co. was able to bipass fda approval, because it is considered a nutritional supplement. If interested, you can read more thru the website www.glycoscience.org. I am in the process of reading it. It is very technical, tho. My friend is going to Rosemont, Il. tomorrow night to hear the company present research,etc. I would imagine that the website would tell more about that presentation, if you are nearby and interested. She feels that there is a lot of good, welldone research to back up the product. I have not been able to do too much research on my own, yet, but I wanted to share what I did know, in case anyone wanted to look into it. I haven't asked Dr. Goldberg about it yet, but I intend to. I won't try it on my kids, without his approval. My friend has been on a waiting list for quite awhile, and just heard that she will be able to take her son to see Dr. Goldberg within 3-6 mos. Apparently, he now has a nurse practitioner working with him? That is wonderful news! Barb ===== Barb Katsaros barbkatsaros@... Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 My friend went to the seminar in Chicago and said she really didn't get anything more out of it than she did off of the website: www.glycoscience.org. She is noticing improvements in her 2 y.o. who has been on it for a month. He is recognizing himself in the mirror and saying more words. Others have said that they have seen no improvements when their children went on it. I intend to ask Dr. Goldberg during our next phone conference. I would not try it without asking him first. Barb --- puresleep <puresleep@...> wrote: > > Barb, > Did you find out anything more about the ambotrose > supplement? > thanks > theresa > ambrotose > > > > Has anyone out there heard anything about > ambrotose, > which is a nutritonal supplement comprised on > dietary > sugars, which is supposed to be an immune > modulator? > A friend of mine researched it, and ordered it > thru > the mail, gave it to her autistic 2 1/2 year old > for 2 > weeks. He is now recognizing himself in the > mirror > and talking a great deal more. His therapists see > a > great difference. Anyway, I didn't want to > falsely > raise anyone's hopes, but from what my friend > said, > this co. was able to bipass fda approval, because > it > is considered a nutritional supplement. If > interested, you can read more thru the website > www.glycoscience.org. I am in the process of > reading > it. It is very technical, tho. > > My friend is going to Rosemont, Il. tomorrow night > to > hear the company present research,etc. I would > imagine that the website would tell more about > that > presentation, if you are nearby and interested. > She > feels that there is a lot of good, welldone > research > to back up the product. I have not been able to > do > too much research on my own, yet, but I wanted to > share what I did know, in case anyone wanted to > look > into it. I haven't asked Dr. Goldberg about it > yet, > but I intend to. I won't try it on my kids, > without > his approval. My friend has been on a waiting list > for > quite awhile, and just heard that she will be able > to > take her son to see Dr. Goldberg within 3-6 mos. > Apparently, he now has a nurse practitioner > working > with him? That is wonderful news! Barb > > ===== > Barb Katsaros > barbkatsaros@... > > > > > > Responsibility for the content of this message > lies strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Thanks Barb, Could you post what he says? TIA Theresa ambrotose > > > > Has anyone out there heard anything about > ambrotose, > which is a nutritonal supplement comprised on > dietary > sugars, which is supposed to be an immune > modulator? > A friend of mine researched it, and ordered it > thru > the mail, gave it to her autistic 2 1/2 year old > for 2 > weeks. He is now recognizing himself in the > mirror > and talking a great deal more. His therapists see > a > great difference. Anyway, I didn't want to > falsely > raise anyone's hopes, but from what my friend > said, > this co. was able to bipass fda approval, because > it > is considered a nutritional supplement. If > interested, you can read more thru the website > www.glycoscience.org. I am in the process of > reading > it. It is very technical, tho. > > My friend is going to Rosemont, Il. tomorrow night > to > hear the company present research,etc. I would > imagine that the website would tell more about > that > presentation, if you are nearby and interested. > She > feels that there is a lot of good, welldone > research > to back up the product. I have not been able to > do > too much research on my own, yet, but I wanted to > share what I did know, in case anyone wanted to > look > into it. I haven't asked Dr. Goldberg about it > yet, > but I intend to. I won't try it on my kids, > without > his approval. My friend has been on a waiting list > for > quite awhile, and just heard that she will be able > to > take her son to see Dr. Goldberg within 3-6 mos. > Apparently, he now has a nurse practitioner > working > with him? That is wonderful news! Barb > > ===== > Barb Katsaros > barbkatsaros@... > > > > > > Responsibility for the content of this message > lies strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Hi Barb, The link below gives some background from when the CFS world went through the ambrotose fiasco. Reading this could save you from using time on your phone consult. http://www.masmith.inspired.net.au/docs/mannatec.htm ----Original Message Follows---- From: Barb Katsaros <barbkatsaros@...> Reply- Subject: Re: ambrotose Date: Thu, 2 Dec 2004 19:46:08 -0800 (PST) My friend went to the seminar in Chicago and said she really didn't get anything more out of it than she did off of the website: www.glycoscience.org. She is noticing improvements in her 2 y.o. who has been on it for a month. He is recognizing himself in the mirror and saying more words. Others have said that they have seen no improvements when their children went on it. I intend to ask Dr. Goldberg during our next phone conference. I would not try it without asking him first. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Actually, after reading Cheryl's info that she posted, I don't think I will ask him. It doesn't sound very reputable. Barb --- puresleep <puresleep@...> wrote: > > Thanks Barb, > Could you post what he says? > TIA > Theresa > ----- Original Message ----- > Responsibility for the content of this message > lies strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 , If you want to try glyconutrients and not be separated from large amounts of money as you will with Mannatech see http://www.burnoutsolutions.com.au/glyconutrients.htm for glyconutrients you make yourself at a fraction of the cost . I can't comment on it specifically as I have never tried it but in the past people on here have and commented positively. Petsos wrote: > Bruce, > > After a continued search, I found the web site, but can’t seem to > locate a product that is comparable to Mannatek’s ambrotose. Any > ideas? Thanks > Quote Link to comment Share on other sites More sharing options...
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