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Re: corrective shoes

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Danny has the flat feet that are typical of children with DS. We have

always purchased his shoes at the local Stride Rite store because they

carry sizes wide enough for him and also install " cookies " (arch

supports) in them for an additional $5 or so. Stride Rite is also a good

place to buy shoes for anyone because their staff has extensive training

in correctly fitting the shoes.

If you go to a Stride Rite store, be sure to explain the problem right

away and ask if they have arch supports. (We have found some Stride

Rite stores that don't.) They will recommend styles that have the best

support and will fit the shoes large enough that the child doesn't

outgrow them too soon.

Unfortunately, the prices aren't cheap. This year we have been paying

about $50 per pair with the " cookies " installed.

Bev

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> Do any of your children have

> to wear corrective shoes, do they even exist? Are we talking a lot of

money

> here???

Our daughter has been wearing orthodics in her shoes since she was about 20

months

old (she is now 3). It seems like the philosophy of the physical therapy

group dictates

what happens with feet/shoes. When we lived in land, the geneticist

told us almost

all children with DS would/should have orthotic inserts (and we've yet to

find an

insurance company who would cover them). At that time, our PT suggested the

Stride Rite " cookies " , which we tried, but she wasn't walking yet, so who

knows what

they actually did (she was cruising at that time though). When we moved to

CA, EI intake

was at the Regional Center for the Developmentally Disabled. The PT who did

the initial

eval also strongly believes in orthodics for kids with DS, and they actually

pay for them.

She walks OK without them, but you can definitely see her ankles are more

supported and upright

with the orthodics in her shoes. The good thing is, they can be moved into

different " regular "

shoes, and at this age, seem to be lasting about 9 months (which is longer

than a pair of

shoes!). There is another school of thought among PTs that these are

absolutely unnecessary

in children with DS.... depends on who you talk to. Hope this helps.

If you have questions, please feel free to email me.

Kerrigan. mom to:

(5.5 w end-of-school-itis.... one more week!)

(3 wDS)

(1.75 w " I'm almost 2 " ATTITUDE!)

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my son began wearing inserts when he was 8 years old. the inserts can be

glued into shoes worn on daily basis. inserts were very helpful for his

balance when running...etc

Beth A. Grigsby, CPG

Economic Development Coordinator

Near North Community Development Corporation

Mapleton Fall Creek Community Development Corporation

317-927-9881 ext 26

nndcecon@...

Re: Corrective shoes

> Do any of your children have

> to wear corrective shoes, do they even exist? Are we talking a lot of

money

> here???

Our daughter has been wearing orthodics in her shoes since she was about

20

months

old (she is now 3). It seems like the philosophy of the physical therapy

group dictates

what happens with feet/shoes. When we lived in land, the geneticist

told us almost

all children with DS would/should have orthotic inserts (and we've yet to

find an

insurance company who would cover them). At that time, our PT suggested

the

Stride Rite " cookies " , which we tried, but she wasn't walking yet, so who

knows what

they actually did (she was cruising at that time though). When we moved

to

CA, EI intake

was at the Regional Center for the Developmentally Disabled. The PT who

did

the initial

eval also strongly believes in orthodics for kids with DS, and they

actually

pay for them.

She walks OK without them, but you can definitely see her ankles are more

supported and upright

with the orthodics in her shoes. The good thing is, they can be moved

into

different " regular "

shoes, and at this age, seem to be lasting about 9 months (which is longer

than a pair of

shoes!). There is another school of thought among PTs that these are

absolutely unnecessary

in children with DS.... depends on who you talk to. Hope this helps.

If you have questions, please feel free to email me.

Kerrigan. mom to:

(5.5 w end-of-school-itis.... one more week!)

(3 wDS)

(1.75 w " I'm almost 2 " ATTITUDE!)

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  • 6 years later...
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Ed -

Thank you so much for your thoughts. Surgery is not necessary at this point for

. I really think hi tops would help tremendously...something a little

heavier that would counter his altered gait....I just hate to see him tire so

easily from walking when there is relief to be found....How old were you when

you were diagnosed if you don't mind me asking?

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