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Re: teen boys and CMT

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Guest guest

,

Wow - I know how frustrated you must be...but I was most relieved to hear that

is not alone in the way he approaches this....He is taking vitamin C

three times a day.... and one multi-vitamin each day... He takes Zanaflex and

Neurontin as well. The flip side is that I must remind him every day, to take

his meds. He will not do it without reminders.

He is good about going to the doctors, but following through on their

suggestions takes some connoitering from me.

How do your boys deal with sports and fitting in??

Thanks

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  • 2 weeks later...
Guest guest

Hi ,

Spencer doesn't like sports or anyone that plays a sport. Spencer usually fits

in with other sport hating boys.

Adam on the other hand had a best friend since first grade that has recently

become the school Jock. He has been so mean to Adam the past few months. Joe

Popular can't be bothered anymore. Adam lets it all roll off his back and has

since found a new friend that is very nice. Adam is so incredibly amazing. He

doesn't seem to take anything personally. He adapts much easier than Spencer and

I.

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Guest guest

Hi Winndy!

My son is 13. We live in Florida. Where are you? I would love to

know how your makes out at camp. This is our first experience.

Thanks

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Guest guest

Hi !

We live in Indiana. This is Andy's third year at MDA camp & he

totally loves it. He is finally around kids that are just like him & he feels

wonderful when he comes home. He keeps in touch with the kids he meets all year.

It has changed his life & dealing with CMT. Hope your loves it too.

You'll have to let me know how it turns out.

Winndy

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