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:

We got die-off on the fourth day. Thus, you might want to wait till

then to see. I don't have personal experience with kefir and

Samento, but I do know that herbs like Samento are known to only kill

bad bacteria and not the good bacteria. This is one of the reasons

some people prefer herbs to antibiotics. Its much better to ask

questions than to stress out wondering. We don't mind answering them.

Love and prayers,

Heidi N

>

> This is probably a really  dumb question, but I am new to this

protocol and was wondering if I should give his Samento AWAY from his

YCK (young coconut kefir, or as ALex calls it, bug juice).   WIll the

Samento kill the beneficial flora that is in the YCK?

>  

> ALso, was is a good starting dose of the Samento.  has been on

it for 4 days now at 3 drops 2x a day and we are not seeing any

dieoff...will it creep up on us at this high dose or should I up the

dose or maybe add the reservatol in?

>  

> Much Thanks...and if anyone has conference notes, I would love to

see them...

>  

>

>

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Heidi,

What dose of the Samento do you want to evetually work up to?

Subject: Re: samento...dumb questionTo: BorreliaMultipleInfectionsAndAutism Date: Saturday, July 5, 2008, 4:30 PM

:We got die-off on the fourth day. Thus, you might want to wait till then to see. I don't have personal experience with kefir and Samento, but I do know that herbs like Samento are known to only kill bad bacteria and not the good bacteria. This is one of the reasons some people prefer herbs to antibiotics. Its much better to ask questions than to stress out wondering. We don't mind answering them.Love and prayers,Heidi N >> This is probably a really dumb question, but I am new to this protocol and was wondering if I should give his Samento AWAY from his YCK (young coconut kefir, or as ALex calls it, bug juice). WIll the Samento kill the

beneficial flora that is in the YCK?> > ALso, was is a good starting dose of the Samento. has been on it for 4 days now at 3 drops 2x a day and we are not seeing any dieoff...will it creep up on us at this high dose or should I up the dose or maybe add the reservatol in?> > Much Thanks...and if anyone has conference notes, I would love to see them...> > >

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,

No question is a dump question. Samento is a broad-spectrum

antimicrobial herb, and it should be given away from any probiotic

supplements including coconut kefir. I usually give all the

anti-microbial in empty stomach before and between meals, digestive

enzymes at the beginning of the meals, and probiotic after meals.

I am not using Samento, so I cannot tell your the first-hand

experience. What I can share with you is that we are rotating Banderol

and Cumanda in high dose, 30 drops X2/ per day, and my son has never

had die-off experience or herxed. We use Burbur and Homeopathic detox

organ drainage to help with detox as well as modified citrus pectin and

alginate to mop up metals and biotoxins released by the bacteria. We

do FIR sauna twice a week and low dose/ high frequency chelation on

weekends. I started to doubt that herxing reaction is necessary for

improvements.

Limin

Wrenn wrote:

This is probably a really dumb question, but I am new to

this protocol and was wondering if I should give his Samento AWAY from

his YCK (young coconut kefir, or as ALex calls it, bug juice). WIll

the Samento kill the beneficial flora that is in the YCK?

ALso, was is a good starting dose of the Samento. has

been on it for 4 days now at 3 drops 2x a day and we are not seeing any

dieoff...will it creep up on us at this high dose or should I up the

dose or maybe add the reservatol in?

Much Thanks...and if anyone has conference notes, I would

love to see them...

From:

ambitionn01 <Ambitionn01aol>

Subject: Re: LIA

conf-need to reach Heidi N

To: BorreliaMultipleInfectionsAndAutism

Date: Saturday, July 5, 2008, 12:45 AM

Ellen:

Sure, I will post my recovery summary. Since I am a stay-at-home

mother currently, I have time to do tons of research. You might look

at my protocol and think there is no way, there's nothing very strong

in there. But, know that lots of gentle things working together

somehow works. Feel free to ask questions. The forums are full of

doctors and other practitioners because obviously this isn't being

taught in medical school. I hope you recover and help many patients

with the knowledge you gain in doing so.

Love and prayers,

Heidi N

Summary of Recovery Knowledge

Due to the many requests for information I have been getting, I put

this together. Know that your requests actually make me happy. I am

happy to know that you care and are seeking to help these children

who are totally dependent upon us to help them. When I tell people I

recovered my children, and they don't make requests, I must admit, it

bothers me because I feel so passionate about recovery I guess, and

wish everyone else did as well. But we each have the right to make

our own choices, and I understand that there are other reasons. Love

and success to all of you!

My children are recovered, but currently still dependent upon

supplements. It took a year for them to be able to do regular school

with no modifications. I have 5 (one was adopted). They all had

different symptoms/diagnoses. Some were the same. I did it by

researching my butt off. This is my current view on autism causes and

treatment. Know that these are my beliefs, I am not stating them as

fact because I don't want to be sued, and I may change my mind in the

future because this is a learn-as-you- go thing.

I believe that Autism is caused by a starving brain from a damaged GI

tract from a damaged immune system from pathogens and toxins. Getting

nutrition into my children was foremost in relieving symptoms, and

ridding the pathgens and toxins is where I am concentrating as well.

There are so many different ways, products, practitioners, and

choices. I believe its best to get them nutrition right away

(digestive enzymes, cod liver oil, vitamins, colloidal minerals,

organic foods, remove MSG, remove preservatives, remove artificial

junk, remove dairy and wheat or casein and gluten, remove sugar

substitutes, remove GMO foods, give probiotics to absorb the

nutrients, etc.). I then worked on getting the GI tract in working

order with mild detoxers, anti-inflammatories (can be gentle herbs

like Turmeric), bile-stimulating supplements, probiotics, yeast and

bad bacteria inhibitors (can be from mild herbs or various

supplements, or alkalizing supplements) , and now I am in the process

of going after toxins and pathogens. I believe in treating for ALL

pathogens (yeast, worms, protozoa, viruses, bad bacteria), in that

order.

I believe that most people are lyme carriers. I don't know the exacts

on how its transmitted, but have read that it may be transmitted from

any biting insect or animal, including mosquitos. I also read that it

can be transmitted via sex and in pregnancy. I have surmised from

what I read that Lyme damages the immune system, allowing pathogens

and toxins to stock-pile. I further surmise from what I have read

that vaccines, electrosmog, toxins, and other things further this

damage, allowing the lyme to flourish. I have read that Lyme is very

difficult to test positive for because it lives inside of cells and

destroys your body's ability to make antibodies to it. I further read

that these same antibodies are also not killing the other pathogens

the person is coming into contact with. I believe from what I read

that mercury, vaccines, and other things add to this same damage in

the same area of the immune system. This could explain why parents

are reporting that they believe the vaccines bring out the autism. I

have also read that bad bacteria and viruses may be able to live

inside of the worms and protozoa, that's why I read its recommended

to treat the worms and protozoa first.

I used the DAN methods. www.autismresearchi nstitute. com and

www.lymeinducedauti sm.com are my favorite websites for knowledge and

references. Go to "you tube" as well, and type in subjects like lyme,

autism, etc. Please don't ask me what diagnoses, how severe my kids

were, how old they were, etc. because I believe that all things are

possible -- in that all kids can benefit no matter what. All my

children have different symptoms. They all responded to all

treatments I implemented. Sometimes the same symptoms would go away

with the same treatment, and sometimes different symptoms would go

away with the same treatments. One of my children was 14 when I

startred treatment. I did not use ABA. I did use a DAN for one child

for a brief moment in time. I feel he was helpful, but not necessary

to recover my children.

I know many talk about using a certain supplement to rid a certain

symptom, and many just want to do one thing at a time. I like looking

at the whole picture. I found that the gluten-free/ casein-free diet

did not work if they drank a soda or were exposed to gmo and/or

processed food. Thus, I feel too many do it incorrectly. Also note

that sometimes it takes months to see an improvement for a treatment.

I feel digestive enzymes are the most basic key to getting nutrients

in. Know that also, all these supplements and diet making my children

live as normals do not work if they are around environmental toxins.

My kids return to symptoms around carpetting, magic-marker smells

used at school (when the whole class uses them at the same time),

fluorescent lighting, etc. Thus, I also have no carpetting, and use

organic/natural hygiene/cleaners in my home. There are so many

variables. I think people fail when they don't understand that die-

off reactions come often when something is going to work, and that

something like eating chocolate can sabotage gf-cf diet improvements.

Thus, know its not just a matter of doing something, its a matter of

doing it correctly. I believe you can only do it correctly if you

research it, and understand how it works. I would even research foods

and how they correlate with children with autism. Such as eggs are

heralded as very beneficial, whereas dioxin used on NON-organic

apples, is heralded as very toxic to children with autism.

There is much to learn. I know everyone wants the easy, fast way, and

that it is very time-consuming and expensive. I never did any

expensive things other than some blood and stool tests. I do admit

that giving 5 children supplements everyday is expensive. I also take

every thing that my children take. Everything. And I do it for a few

days or weeks before I give it to my children, and then I keep taking

it as long as my children are. My health also went from very bad to

very good. I know some are looking for the one thing to do or

matching symptoms to products, but its not about that to me, its

about getting the body working well, and ridding pathogens and

toxins.

Here is what I am doing:

diet (as I previously mentioned)

digestive enzymes, Multi-enzyme by www.kirkmanlabs. com

cod liver oil by Nordic Naturals

Vitamin B1 Thiamine

methyl B12 powder by kirkman's

niacin (flush-type only)

buffered C by Thorne Research

Turmeric by Rexall

Ginger Root (only some of my children) by Rexall

milk thistle by Source Naturals

multivitamin, Everyday by Kirkman's

chewable folic acid by Kirkman's

lithium orotate by Ortho Molecular

magnesium malate

colloidal minerals

Mellatonin, sublingual (chewable) by Kirkman

Pectasol Chelation complex by EcoNugenics

probiotics by Mindlinx or Culturelle (sometimes)

Resveratrol by Paradise Herbs

Burbur by Nutramedix

Cat's Claw Raintree or Samento by Nurtramedix

I have used other supplements here and there.

Know that a couple of these aforementioned products are sold only to

practioners on some websites, yet on other websites, the same

products are sold to anyone. So don't give up if you get a website

that sells only to practioners.

I am now in the process of starting to use herbs to kill lyme. Know

that many of the treatments that are being given to children with

autism, also kill lyme.

We did have lyme testing. We tested positive for lyme coinfections

and have low CD-57 white blood cell count, which is reportedly

indicative of lyme disease. Know that I only believed in the lyme

theory after several docs started reporting that nearly all of their

children with autism were testing positive for it. For further

information, see www.lymeinducedauti sm.com and the Yahoo

Group "BorreliaMultipleIn fectionsAndAutis m".

I fully believe that when toxins and pathogens are rid and the GI

tract is restored that my children will then be able to live as

normals without special diets, and having to avoid toxins, or be

dependent upon supplements. I have read many stories on this, and

this is why I believe. So far, this faith has done very well for me.

Know that I also pray for guidance from Jesus.

Its important to study everything you give your child. Such as I read

often that buffered C should not be given at the same time as many

other supplements. Know also that brand can make a big difference.

Thus, study the brand, make sure they don't use gmo products. Know

also that things like Mellatonin can be made from very different

sources, some better than others. Also, know that getting the right

dose can make all the difference. Thus, take the time to study to

know all about everything you do, and of course, ask on forums as

well.

I recently added all this up, and it came to about $120.00 per

person, including the adults. Thus, that's not bad. But, for my

house of 8, that's not good, but were managing.

Know that also I have heard reports that many can just use Samento

and get good results.

Heidi N

>

> Heidi N, great notes. You mentioned you cured your children so

that

> they no longer need school modifications. We are in a battle with

> the school district for my son's life. He is brilliant but is not

> getting the proper education to overcome the learning disabilities

> left after treatment with antibiotics for the lyme. I am a doctor

> and have become disabled and was finally so sick that I got

> diagnosed, that led to my kids getting diagnosed. My daughter

> regained her muscle tone so that the kid who would sit on my lap

> during the baby ballet classes (I thought it was separation

anxiety,

> but it never went away) just tried out for the School of American

> Ballet! But my son, although vastly better socially and

> academically, especially in the concrete areas, cannot learn more

> abstract thinking and thus cannot read novels or write appropriate

> reports. He also cannot use books to learn and retrieve

information

> from. If he is not taught appropriate compensatory techniques, a

> child with a brilliant future will be left behind. The world will

> lose a potential great scientist and a child will lose his future.

> In addition, I am getting much worse and am frequently bedridden,

and

> cannot enjoy activities as a family, let alone even care for them.

I

> would love to know the protocol, amoungst many, that you used with

> your children. I understand it is ongoing, but that is little

> sacrifice for a normal life, for all of us! Did you have lyme? My

> kids obviously got it from me when I was still functioning and

> relatively healthy. It was actually while trying to get pregnant

> again (I'm an OB and I adore babies, being pregnant, nursing, etc.

> and have always dreamed of a big family) that I got worse,

possibly

> from the hormones used when natural methods were unsuccessful. I

did

> conceive my two and a third that I lost naturally, but I realized

> that I was on Prednisone for my symptoms that I never would have

> associated with lyme, each time I conceived. Now I've lost the

> chance in all the years spent trying to regain my health, made

much

> by misdiagnoses and subsequent permanent damage. I will definitely

> get the DVD's, but the material is so vast that no one method

would

> be possible to attempt without the support of the practioner.

That's

> why I would truly love to know how you sorted through all the info

> out there to put together a regimen that helped your beautiful

> family. Mine are now out watching the Macy's Fourth of July

> fireeworks, I was too dizzy to get out of bed! So much for a

> family! That's why I need your help. If your could take a little

> time out of your obviously busy days to shoot me a reply I'd be

> eternally grateful.

>

> Thank you,

> Ellen MD

>

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Hi - and as a last second add-on, when I spoke to Mark

Toothman the GM from NutraMedix he said that their products should

not be mixed with anything but water. My guys do YCK too... but I

kept the Sameto away from it. Also, I discussed w/ Mark that my son

would not drink straight water so he and I concluded we could mix the

drops in 1 ounce of water, syringe it in (which I can do), and then

15 " later give him a full glass of YCK/water/etc. as usual.

As for dose, he told me to get the remedies energetically tested.

The max Samento dose for Evan turned out to be only 2 drops per day

(compared to the adult dose on the label of 15 drops twice daily)...

so if you can I would have the remedy tested!

I'm certainly no expert but this is the advice I can confidently give

so far!

> > >

> > > Heidi N, great notes. You mentioned you cured your children

so

> > that

> > > they no longer need school modifications. We are in a

battle with

> > > the school district for my son's life. He is brilliant but

is not

> > > getting the proper education to overcome the learning

disabilities

> > > left after treatment with antibiotics for the lyme. I am a

doctor

> > > and have become disabled and was finally so sick that I got

> > > diagnosed, that led to my kids getting diagnosed. My

daughter

> > > regained her muscle tone so that the kid who would sit on

my lap

> > > during the baby ballet classes (I thought it was separation

> > anxiety,

> > > but it never went away) just tried out for the School of

American

> > > Ballet! But my son, although vastly better socially and

> > > academically, especially in the concrete areas, cannot

learn more

> > > abstract thinking and thus cannot read novels or write

appropriate

> > > reports. He also cannot use books to learn and retrieve

information

> > > from. If he is not taught appropriate compensatory

techniques, a

> > > child with a brilliant future will be left behind. The

world will

> > > lose a potential great scientist and a child will lose his

future.

> > > In addition, I am getting much worse and am frequently

bedridden,

> > and

> > > cannot enjoy activities as a family, let alone even care

for them.

> > I

> > > would love to know the protocol, amoungst many, that you

used with

> > > your children. I understand it is ongoing, but that is

little

> > > sacrifice for a normal life, for all of us! Did you have

lyme? My

> > > kids obviously got it from me when I was still functioning

and

> > > relatively healthy. It was actually while trying to get

pregnant

> > > again (I'm an OB and I adore babies, being pregnant,

nursing, etc.

> > > and have always dreamed of a big family) that I got worse,

possibly

> > > from the hormones used when natural methods were

unsuccessful. I

> > did

> > > conceive my two and a third that I lost naturally, but I

realized

> > > that I was on Prednisone for my symptoms that I never would

have

> > > associated with lyme, each time I conceived. Now I've lost

the

> > > chance in all the years spent trying to regain my health,

made much

> > > by misdiagnoses and subsequent permanent damage. I will

definitely

> > > get the DVD's, but the material is so vast that no one

method would

> > > be possible to attempt without the support of the

practioner.

> > That's

> > > why I would truly love to know how you sorted through all

the info

> > > out there to put together a regimen that helped your

beautiful

> > > family. Mine are now out watching the Macy's Fourth of July

> > > fireeworks, I was too dizzy to get out of bed! So much for a

> > > family! That's why I need your help. If your could take a

little

> > > time out of your obviously busy days to shoot me a reply

I'd be

> > > eternally grateful.

> > >

> > > Thank you,

> > > Ellen MD

> > >

> >

> >

> >

>

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Hello Limin;

Can you please share with me, what Homeopathic detox organ drainage are you using? I was looking into getting Viscumforce. Thank you for all your help.

S.

From: ambitionn01 <Ambitionn01@ aol.com>Subject: [borreliaMultipleIn fectionsAndAutis m] Re: LIA conf-need to reach Heidi NTo: BorreliaMultipleInf ectionsAndAutism @yahoogroups. comDate: Saturday, July 5, 2008, 12:45 AM

Ellen:Sure, I will post my recovery summary. Since I am a stay-at-home mother currently, I have time to do tons of research. You might look at my protocol and think there is no way, there's nothing very strong in there. But, know that lots of gentle things working together somehow works. Feel free to ask questions. The forums are full of doctors and other practitioners because obviously this isn't being taught in medical school. I hope you recover and help many patients with the knowledge you gain in doing so. Love and prayers,Heidi NSummary of Recovery KnowledgeDue to the many requests for information I have been getting, I put this together. Know that your requests actually make me happy. I am happy to know that you care and are seeking to help these children who are totally dependent upon us to help them. When I tell people I recovered my children, and they don't make

requests, I must admit, it bothers me because I feel so passionate about recovery I guess, and wish everyone else did as well. But we each have the right to make our own choices, and I understand that there are other reasons. Love and success to all of you! My children are recovered, but currently still dependent upon supplements. It took a year for them to be able to do regular school with no modifications. I have 5 (one was adopted). They all had different symptoms/diagnoses. Some were the same. I did it by researching my butt off. This is my current view on autism causes and treatment. Know that these are my beliefs, I am not stating them as fact because I don't want to be sued, and I may change my mind in the future because this is a learn-as-you- go thing. I believe that Autism is caused by a starving brain from a damaged GI tract from a damaged immune system from pathogens and toxins.

Getting nutrition into my children was foremost in relieving symptoms, and ridding the pathgens and toxins is where I am concentrating as well. There are so many different ways, products, practitioners, and choices. I believe its best to get them nutrition right away (digestive enzymes, cod liver oil, vitamins, colloidal minerals, organic foods, remove MSG, remove preservatives, remove artificial junk, remove dairy and wheat or casein and gluten, remove sugar substitutes, remove GMO foods, give probiotics to absorb the nutrients, etc.). I then worked on getting the GI tract in working order with mild detoxers, anti-inflammatories (can be gentle herbs like Turmeric), bile-stimulating supplements, probiotics, yeast and bad bacteria inhibitors (can be from mild herbs or various supplements, or alkalizing supplements) , and now I am in the process of going after toxins and pathogens. I believe in

treating for ALL pathogens (yeast, worms, protozoa, viruses, bad bacteria), in that order. I believe that most people are lyme carriers. I don't know the exacts on how its transmitted, but have read that it may be transmitted from any biting insect or animal, including mosquitos. I also read that it can be transmitted via sex and in pregnancy. I have surmised from what I read that Lyme damages the immune system, allowing pathogens and toxins to stock-pile. I further surmise from what I have read that vaccines, electrosmog, toxins, and other things further this damage, allowing the lyme to flourish. I have read that Lyme is very difficult to test positive for because it lives inside of cells and destroys your body's ability to make antibodies to it. I further read that these same antibodies are also not killing the other pathogens the person is coming into contact with. I believe from what I

read that mercury, vaccines, and other things add to this same damage in the same area of the immune system. This could explain why parents are reporting that they believe the vaccines bring out the autism. I have also read that bad bacteria and viruses may be able to live inside of the worms and protozoa, that's why I read its recommended to treat the worms and protozoa first. I used the DAN methods. www.autismresearchi nstitute. com and www.lymeinducedauti sm.com are my favorite websites for knowledge and references. Go to "you tube" as well, and type in subjects like lyme, autism, etc. Please don't ask me what diagnoses, how severe my kids were, how old they were, etc. because I believe that all things are

possible -- in that all kids can benefit no matter what. All my children have different symptoms. They all responded to all treatments I implemented. Sometimes the same symptoms would go away with the same treatment, and sometimes different symptoms would go away with the same treatments. One of my children was 14 when I startred treatment. I did not use ABA. I did use a DAN for one child for a brief moment in time. I feel he was helpful, but not necessary to recover my children. I know many talk about using a certain supplement to rid a certain symptom, and many just want to do one thing at a time. I like looking at the whole picture. I found that the gluten-free/ casein-free diet did not work if they drank a soda or were exposed to gmo and/or processed food. Thus, I feel too many do it incorrectly. Also note that sometimes it takes months to see an improvement for a treatment. I feel

digestive enzymes are the most basic key to getting nutrients in. Know that also, all these supplements and diet making my children live as normals do not work if they are around environmental toxins. My kids return to symptoms around carpetting, magic-marker smells used at school (when the whole class uses them at the same time), fluorescent lighting, etc. Thus, I also have no carpetting, and use organic/natural hygiene/cleaners in my home. There are so many variables. I think people fail when they don't understand that die-off reactions come often when something is going to work, and that something like eating chocolate can sabotage gf-cf diet improvements. Thus, know its not just a matter of doing something, its a matter of doing it correctly. I believe you can only do it correctly if you research it, and understand how it works. I would even research foods and how they correlate with children with

autism. Such as eggs are heralded as very beneficial, whereas dioxin used on NON-organic apples, is heralded as very toxic to children with autism. There is much to learn. I know everyone wants the easy, fast way, and that it is very time-consuming and expensive. I never did any expensive things other than some blood and stool tests. I do admit that giving 5 children supplements everyday is expensive. I also take every thing that my children take. Everything. And I do it for a few days or weeks before I give it to my children, and then I keep taking it as long as my children are. My health also went from very bad to very good. I know some are looking for the one thing to do or matching symptoms to products, but its not about that to me, its about getting the body working well, and ridding pathogens and toxins. Here is what I am doing: diet (as I previously mentioned)digestive

enzymes, Multi-enzyme by www.kirkmanlabs. comcod liver oil by Nordic NaturalsVitamin B1 Thiaminemethyl B12 powder by kirkman'sniacin (flush-type only)buffered C by Thorne ResearchTurmeric by RexallGinger Root (only some of my children) by Rexallmilk thistle by Source Naturalsmultivitamin, Everyday by Kirkman'schewable folic acid by Kirkman'slithium orotate by Ortho Molecularmagnesium malatecolloidal mineralsMellatonin, sublingual (chewable) by KirkmanPectasol Chelation complex by EcoNugenicsprobiotics by Mindlinx or Culturelle (sometimes)Resveratrol by Paradise HerbsBurbur by NutramedixCat's Claw Raintree or Samento by NurtramedixI have used other supplements here and there. Know that a couple of these aforementioned products are sold only to practioners on some

websites, yet on other websites, the same products are sold to anyone. So don't give up if you get a website that sells only to practioners. I am now in the process of starting to use herbs to kill lyme. Know that many of the treatments that are being given to children with autism, also kill lyme. We did have lyme testing. We tested positive for lyme coinfections and have low CD-57 white blood cell count, which is reportedly indicative of lyme disease. Know that I only believed in the lyme theory after several docs started reporting that nearly all of their children with autism were testing positive for it. For further information, see www.lymeinducedauti sm.com and the Yahoo Group "BorreliaMultipleIn fectionsAndAutis m". I fully believe that when toxins and pathogens are rid and the GI tract is

restored that my children will then be able to live as normals without special diets, and having to avoid toxins, or be dependent upon supplements. I have read many stories on this, and this is why I believe. So far, this faith has done very well for me. Know that I also pray for guidance from Jesus. Its important to study everything you give your child. Such as I read often that buffered C should not be given at the same time as many other supplements. Know also that brand can make a big difference. Thus, study the brand, make sure they don't use gmo products. Know also that things like Mellatonin can be made from very different sources, some better than others. Also, know that getting the right dose can make all the difference. Thus, take the time to study to know all about everything you do, and of course, ask on forums as well. I recently added all this up, and it came to about $120.00

per person, including the adults. Thus, that's not bad. But, for my house of 8, that's not good, but were managing.Know that also I have heard reports that many can just use Samento and get good results. Heidi N >> Heidi N, great notes. You mentioned you cured your children so that > they no longer need school modifications. We are in a battle with > the school district for my son's life. He is brilliant but is not > getting the proper education to overcome the learning disabilities > left after treatment with antibiotics for the lyme. I am a doctor > and have become disabled and was finally so sick that I got > diagnosed, that led to my kids

getting diagnosed. My daughter > regained her muscle tone so that the kid who would sit on my lap > during the baby ballet classes (I thought it was separation anxiety, > but it never went away) just tried out for the School of American > Ballet! But my son, although vastly better socially and > academically, especially in the concrete areas, cannot learn more > abstract thinking and thus cannot read novels or write appropriate > reports. He also cannot use books to learn and retrieve information > from. If he is not taught appropriate compensatory techniques, a > child with a brilliant future will be left behind. The world will > lose a potential great scientist and a child will lose his future. > In addition, I am getting much worse and am frequently bedridden, and > cannot enjoy activities as a family, let alone even care for them. I > would love to

know the protocol, amoungst many, that you used with > your children. I understand it is ongoing, but that is little > sacrifice for a normal life, for all of us! Did you have lyme? My > kids obviously got it from me when I was still functioning and > relatively healthy. It was actually while trying to get pregnant > again (I'm an OB and I adore babies, being pregnant, nursing, etc. > and have always dreamed of a big family) that I got worse, possibly > from the hormones used when natural methods were unsuccessful. I did > conceive my two and a third that I lost naturally, but I realized > that I was on Prednisone for my symptoms that I never would have > associated with lyme, each time I conceived. Now I've lost the > chance in all the years spent trying to regain my health, made much > by misdiagnoses and subsequent permanent damage. I will definitely > get

the DVD's, but the material is so vast that no one method would > be possible to attempt without the support of the practioner. That's > why I would truly love to know how you sorted through all the info > out there to put together a regimen that helped your beautiful > family. Mine are now out watching the Macy's Fourth of July > fireeworks, I was too dizzy to get out of bed! So much for a > family! That's why I need your help. If your could take a little > time out of your obviously busy days to shoot me a reply I'd be > eternally grateful.> > Thank you,> Ellen MD>

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,

I am using PEKANA Homeopathic, spagyric remedies:

apo-Hepat for liver function

Itires for lympathatic function

Renelix for kidney function

Dr. Klinghardt recommends these drainage remedies.

Limin

Schembri wrote:

Hello Limin;

Can you please share with me, what

Homeopathic detox organ drainage are you using? I was looking into

getting Viscumforce. Thank you for all your help.

S.

From: ambitionn01

<Ambitionn01@ aol.com>

Subject: [borreliaMultipleIn fectionsAndAutis m] Re: LIA conf-need to

reach Heidi N

To: BorreliaMultipleInf ectionsAndAutism @yahoogroups. com

Date: Saturday, July 5, 2008, 12:45 AM

Ellen:

Sure, I will post my recovery summary. Since I am a stay-at-home

mother currently, I have time to do tons of research. You might look

at my protocol and think there is no way, there's nothing very strong

in there. But, know that lots of gentle things working together

somehow works. Feel free to ask questions. The forums are full of

doctors and other practitioners because obviously this isn't being

taught in medical school. I hope you recover and help many patients

with the knowledge you gain in doing so.

Love and prayers,

Heidi N

Summary of Recovery Knowledge

Due to the many requests for information I have been getting, I put

this together. Know that your requests actually make me happy. I am

happy to know that you care and are seeking to help these children

who are totally dependent upon us to help them. When I tell people I

recovered my children, and they don't make requests, I must admit, it

bothers me because I feel so passionate about recovery I guess, and

wish everyone else did as well. But we each have the right to make

our own choices, and I understand that there are other reasons. Love

and success to all of you!

My children are recovered, but currently still dependent upon

supplements. It took a year for them to be able to do regular school

with no modifications. I have 5 (one was adopted). They all had

different symptoms/diagnoses. Some were the same. I did it by

researching my butt off. This is my current view on autism causes and

treatment. Know that these are my beliefs, I am not stating them as

fact because I don't want to be sued, and I may change my mind in the

future because this is a learn-as-you- go thing.

I believe that Autism is caused by a starving brain from a damaged GI

tract from a damaged immune system from pathogens and toxins. Getting

nutrition into my children was foremost in relieving symptoms, and

ridding the pathgens and toxins is where I am concentrating as well.

There are so many different ways, products, practitioners, and

choices. I believe its best to get them nutrition right away

(digestive enzymes, cod liver oil, vitamins, colloidal minerals,

organic foods, remove MSG, remove preservatives, remove artificial

junk, remove dairy and wheat or casein and gluten, remove sugar

substitutes, remove GMO foods, give probiotics to absorb the

nutrients, etc.). I then worked on getting the GI tract in working

order with mild detoxers, anti-inflammatories (can be gentle herbs

like Turmeric), bile-stimulating supplements, probiotics, yeast and

bad bacteria inhibitors (can be from mild herbs or various

supplements, or alkalizing supplements) , and now I am in the process

of going after toxins and pathogens. I believe in treating for ALL

pathogens (yeast, worms, protozoa, viruses, bad bacteria), in that

order.

I believe that most people are lyme carriers. I don't know the exacts

on how its transmitted, but have read that it may be transmitted from

any biting insect or animal, including mosquitos. I also read that it

can be transmitted via sex and in pregnancy. I have surmised from

what I read that Lyme damages the immune system, allowing pathogens

and toxins to stock-pile. I further surmise from what I have read

that vaccines, electrosmog, toxins, and other things further this

damage, allowing the lyme to flourish. I have read that Lyme is very

difficult to test positive for because it lives inside of cells and

destroys your body's ability to make antibodies to it. I further read

that these same antibodies are also not killing the other pathogens

the person is coming into contact with. I believe from what I read

that mercury, vaccines, and other things add to this same damage in

the same area of the immune system. This could explain why parents

are reporting that they believe the vaccines bring out the autism. I

have also read that bad bacteria and viruses may be able to live

inside of the worms and protozoa, that's why I read its recommended

to treat the worms and protozoa first.

I used the DAN methods. www.autismresearchi nstitute. com

and

www.lymeinducedauti sm.com are my

favorite websites for knowledge and

references. Go to "you tube" as well, and type in subjects like lyme,

autism, etc. Please don't ask me what diagnoses, how severe my kids

were, how old they were, etc. because I believe that all things are

possible -- in that all kids can benefit no matter what. All my

children have different symptoms. They all responded to all

treatments I implemented. Sometimes the same symptoms would go away

with the same treatment, and sometimes different symptoms would go

away with the same treatments. One of my children was 14 when I

startred treatment. I did not use ABA. I did use a DAN for one child

for a brief moment in time. I feel he was helpful, but not necessary

to recover my children.

I know many talk about using a certain supplement to rid a certain

symptom, and many just want to do one thing at a time. I like looking

at the whole picture. I found that the gluten-free/ casein-free diet

did not work if they drank a soda or were exposed to gmo and/or

processed food. Thus, I feel too many do it incorrectly. Also note

that sometimes it takes months to see an improvement for a treatment.

I feel digestive enzymes are the most basic key to getting nutrients

in. Know that also, all these supplements and diet making my children

live as normals do not work if they are around environmental toxins.

My kids return to symptoms around carpetting, magic-marker smells

used at school (when the whole class uses them at the same time),

fluorescent lighting, etc. Thus, I also have no carpetting, and use

organic/natural hygiene/cleaners in my home. There are so many

variables. I think people fail when they don't understand that die-

off reactions come often when something is going to work, and that

something like eating chocolate can sabotage gf-cf diet improvements.

Thus, know its not just a matter of doing something, its a matter of

doing it correctly. I believe you can only do it correctly if you

research it, and understand how it works. I would even research foods

and how they correlate with children with autism. Such as eggs are

heralded as very beneficial, whereas dioxin used on NON-organic

apples, is heralded as very toxic to children with autism.

There is much to learn. I know everyone wants the easy, fast way, and

that it is very time-consuming and expensive. I never did any

expensive things other than some blood and stool tests. I do admit

that giving 5 children supplements everyday is expensive. I also take

every thing that my children take. Everything. And I do it for a few

days or weeks before I give it to my children, and then I keep taking

it as long as my children are. My health also went from very bad to

very good. I know some are looking for the one thing to do or

matching symptoms to products, but its not about that to me, its

about getting the body working well, and ridding pathogens and

toxins.

Here is what I am doing:

diet (as I previously mentioned)

digestive enzymes, Multi-enzyme by www.kirkmanlabs. com

cod liver oil by Nordic Naturals

Vitamin B1 Thiamine

methyl B12 powder by kirkman's

niacin (flush-type only)

buffered C by Thorne Research

Turmeric by Rexall

Ginger Root (only some of my children) by Rexall

milk thistle by Source Naturals

multivitamin, Everyday by Kirkman's

chewable folic acid by Kirkman's

lithium orotate by Ortho Molecular

magnesium malate

colloidal minerals

Mellatonin, sublingual (chewable) by Kirkman

Pectasol Chelation complex by EcoNugenics

probiotics by Mindlinx or Culturelle (sometimes)

Resveratrol by Paradise Herbs

Burbur by Nutramedix

Cat's Claw Raintree or Samento by Nurtramedix

I have used other supplements here and there.

Know that a couple of these aforementioned products are sold only to

practioners on some websites, yet on other websites, the same

products are sold to anyone. So don't give up if you get a website

that sells only to practioners.

I am now in the process of starting to use herbs to kill lyme. Know

that many of the treatments that are being given to children with

autism, also kill lyme.

We did have lyme testing. We tested positive for lyme coinfections

and have low CD-57 white blood cell count, which is reportedly

indicative of lyme disease. Know that I only believed in the lyme

theory after several docs started reporting that nearly all of their

children with autism were testing positive for it. For further

information, see www.lymeinducedauti sm.com and the

Yahoo

Group "BorreliaMultipleIn fectionsAndAutis m".

I fully believe that when toxins and pathogens are rid and the GI

tract is restored that my children will then be able to live as

normals without special diets, and having to avoid toxins, or be

dependent upon supplements. I have read many stories on this, and

this is why I believe. So far, this faith has done very well for me.

Know that I also pray for guidance from Jesus.

Its important to study everything you give your child. Such as I read

often that buffered C should not be given at the same time as many

other supplements. Know also that brand can make a big difference.

Thus, study the brand, make sure they don't use gmo products. Know

also that things like Mellatonin can be made from very different

sources, some better than others. Also, know that getting the right

dose can make all the difference. Thus, take the time to study to

know all about everything you do, and of course, ask on forums as

well.

I recently added all this up, and it came to about $120.00 per

person, including the adults. Thus, that's not bad. But, for my

house of 8, that's not good, but were managing.

Know that also I have heard reports that many can just use Samento

and get good results.

Heidi N

>

> Heidi N, great notes. You mentioned you cured your children so

that

> they no longer need school modifications. We are in a battle with

> the school district for my son's life. He is brilliant but is not

> getting the proper education to overcome the learning disabilities

> left after treatment with antibiotics for the lyme. I am a doctor

> and have become disabled and was finally so sick that I got

> diagnosed, that led to my kids getting diagnosed. My daughter

> regained her muscle tone so that the kid who would sit on my lap

> during the baby ballet classes (I thought it was separation

anxiety,

> but it never went away) just tried out for the School of American

> Ballet! But my son, although vastly better socially and

> academically, especially in the concrete areas, cannot learn more

> abstract thinking and thus cannot read novels or write appropriate

> reports. He also cannot use books to learn and retrieve

information

> from. If he is not taught appropriate compensatory techniques, a

> child with a brilliant future will be left behind. The world will

> lose a potential great scientist and a child will lose his future.

> In addition, I am getting much worse and am frequently bedridden,

and

> cannot enjoy activities as a family, let alone even care for them.

I

> would love to know the protocol, amoungst many, that you used with

> your children. I understand it is ongoing, but that is little

> sacrifice for a normal life, for all of us! Did you have lyme? My

> kids obviously got it from me when I was still functioning and

> relatively healthy. It was actually while trying to get pregnant

> again (I'm an OB and I adore babies, being pregnant, nursing, etc.

> and have always dreamed of a big family) that I got worse,

possibly

> from the hormones used when natural methods were unsuccessful. I

did

> conceive my two and a third that I lost naturally, but I realized

> that I was on Prednisone for my symptoms that I never would have

> associated with lyme, each time I conceived. Now I've lost the

> chance in all the years spent trying to regain my health, made

much

> by misdiagnoses and subsequent permanent damage. I will definitely

> get the DVD's, but the material is so vast that no one method

would

> be possible to attempt without the support of the practioner.

That's

> why I would truly love to know how you sorted through all the info

> out there to put together a regimen that helped your beautiful

> family. Mine are now out watching the Macy's Fourth of July

> fireeworks, I was too dizzy to get out of bed! So much for a

> family! That's why I need your help. If your could take a little

> time out of your obviously busy days to shoot me a reply I'd be

> eternally grateful.

>

> Thank you,

> Ellen MD

>

Now with a new friend-happy design! Try the new Yahoo!

Canada Messenger

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