Re: Newby....help please long!!!

[Guest guest]

Hi Ronni,

Have you read/heard about Stan Kurtz? He is a

parent/researcher and developed an MB12 nasal

spray for his son, which (combined with valtrex

and diet) cured his son of autism.

Long story short, he says with many of the

chidren the problem is a fungal/bacterial/yeast

combination, and if you suppress one, the others

will grow.

It sounds like you're doing alot already, and you

said money was an issue, but do your children get

Medicaid of any kind?

We live in WV and have found a DAN doctor about 2

hours from us, who we see twice a week. Because

she prescibes anti-fungals, etc, Medicaid pays

for all of this, as well as my travel.

I noticed you said you were Lakota. You don't

happen to live in North Dakota do you? Just

curious as we used to live there.

Kim

--- ronnimike wrote:

> Hi!

>

> My name is Ronni, and I have been lurking here

> a while. I have 9

> kids, 6 at home....3 of which are adopted

> FAS/drug affected/heavy

> metals kids.

>

> I am terribly terribly allergic to mold....like

> anaphaxas type

> allergic. Any sulpha or penecillin type

> antibiotic has the same

> results. I am also celiac...and the issues

> effect me with both casine

> and gluten and glidian, and lactose. We are

> also finding that

> lectins are issue for me and the kids too. Oh

> and not sure it is

> another piece in the puzzle...from what I am

> reading it does...I am a

> Lakota Indian.

>

> My daughters are very much like me, my sons

> doesn't seem to have the

> same issues...some but not as bad. All 9 of

> them I would say are on

> the spectrum...the youngest 3 being autistic.

> We are treating

> biomedically and getting good results...but the

> virus issues are

> soooooooooooo incredibly strong and their

> reactions are soooooooo

> strong and with them...what we get is

> aggression and violent

> behaviors. Not fun...but still 100% better

> than what they were.

>

> My ped is a great guy...but hasn't a

> clue...about anything that would

> connect with autism or the infections that

> these kids can have. The

> ND we connected with....was scarier than I care

> to admit....almost

> criminally ignorant. We saw a highly

> reccommended NP but found she

> didn't know beans from buckshot about a lot of

> issues...and caused

> more problems than helped. Having said this I

> do understand that

> our kids and our situation makes it a very hard

> fit....but I still

> believe that there is hope for us.

>

> So what I am needing is where to go. Obviously

> these 3 drs are not

> my choice. We use them if we have to...but try

> to stay away as much

> as possible. So I am working pretty much

> without. I am confused by

> a lot of the info I am hearing on the web about

> Lyme...and do not

> know where to go or how to start to help us. I

> read so many places

> where they are using antibiotics to cure lyme

> and other co-

> infections, and I would rather not go that

> way...my kids are

> incredibly yeasty even with yeast killers and

> probiotics.

> Also, money is an issue...we don't have a lot.

> We have come a long

> way and I hate the idea of giving up....I know

> that we can make

> it...the kids are great responders...we have

> been doing biomedical

> for 8 years...intensive with chelation and

> heavy supplementing for

> almost 3. My one son was a Kanners and now

> reads and writes and

> talks and is doing great in some areas....the

> other 2 are doing

> better too....but we have reached an impass and

> I am sure this is

> where we are stuck.

>

> Are there any effective safe protocols I can do

> without a dr. The

> kids are on a virus protocol. We use lots and

> lots of coconut oil

> and milk. They are taking 1000 mg of olive

> leaf, astragulus, PRX,

> SPS30, lysine and lots of C...were at 20 grams

> a day, til bowel

> tolerance was reached....so we are at lower C

> for a while...will be

> ramping it up again and see where it will go.

>

> I am sorry this is so long...

> Thanks for any help and suggestions you can

> offer this ditzy Indian.

> Ronni

>

>

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[Guest guest]

Comments interspersed....

>

> Hi Ronni,

>

> Have you read/heard about Stan Kurtz? He is a

> parent/researcher and developed an MB12 nasal

> spray for his son, which (combined with valtrex

> and diet) cured his son of autism.

No I hadn't but just found his site and will read on what he has to

say...

>

> Long story short, he says with many of the

> chidren the problem is a fungal/bacterial/yeast

> combination, and if you suppress one, the others

> will grow.

Then how you take care of them all at once...we are trying to get rid

of them all...but not having much luck. We are treating the yeast

and the fungal...not sure what to do for the bacterial...besides

Olive leaf...

>

> It sounds like you're doing alot already, and you

> said money was an issue, but do your children get

> Medicaid of any kind?

The two kids get a little bit of money each month which almost

immediately is added to some more and spent on supps that they need

to have.

>

> We live in WV and have found a DAN doctor about 2

> hours from us, who we see twice a week. Because

> she prescibes anti-fungals, etc, Medicaid pays

> for all of this, as well as my travel.

So far the most we have gotten from medicade is the money and a hard

time. Most of the drs here will not take any form of government

aide, and often they won't even take insurance. Altho that wouldn't

help much as we don't have any insurance either....all expenses are

outta our pocket book. The last time we had the kids tested for

allergies, it cost over $3000.

>

> I noticed you said you were Lakota. You don't

> happen to live in North Dakota do you? Just

> curious as we used to live there.

No, I do not. I live in WA state. My family came out west back in

the 20's and 30's....but they lived in the southern range of the

Lakota...in parts of OK, Ark, and that area...My family came out

during the dust bowl times.

Thanks for your input and will look into Stan Kurtz.

Ronni