Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Hi! My name is Ronni, and I have been lurking here a while. I have 9 kids, 6 at home....3 of which are adopted FAS/drug affected/heavy metals kids. I am terribly terribly allergic to mold....like anaphaxas type allergic. Any sulpha or penecillin type antibiotic has the same results. I am also celiac...and the issues effect me with both casine and gluten and glidian, and lactose. We are also finding that lectins are issue for me and the kids too. Oh and not sure it is another piece in the puzzle...from what I am reading it does...I am a Lakota Indian. My daughters are very much like me, my sons doesn't seem to have the same issues...some but not as bad. All 9 of them I would say are on the spectrum...the youngest 3 being autistic. We are treating biomedically and getting good results...but the virus issues are soooooooooooo incredibly strong and their reactions are soooooooo strong and with them...what we get is aggression and violent behaviors. Not fun...but still 100% better than what they were. My ped is a great guy...but hasn't a clue...about anything that would connect with autism or the infections that these kids can have. The ND we connected with....was scarier than I care to admit....almost criminally ignorant. We saw a highly reccommended NP but found she didn't know beans from buckshot about a lot of issues...and caused more problems than helped. Having said this I do understand that our kids and our situation makes it a very hard fit....but I still believe that there is hope for us. So what I am needing is where to go. Obviously these 3 drs are not my choice. We use them if we have to...but try to stay away as much as possible. So I am working pretty much without. I am confused by a lot of the info I am hearing on the web about Lyme...and do not know where to go or how to start to help us. I read so many places where they are using antibiotics to cure lyme and other co- infections, and I would rather not go that way...my kids are incredibly yeasty even with yeast killers and probiotics. Also, money is an issue...we don't have a lot. We have come a long way and I hate the idea of giving up....I know that we can make it...the kids are great responders...we have been doing biomedical for 8 years...intensive with chelation and heavy supplementing for almost 3. My one son was a Kanners and now reads and writes and talks and is doing great in some areas....the other 2 are doing better too....but we have reached an impass and I am sure this is where we are stuck. Are there any effective safe protocols I can do without a dr. The kids are on a virus protocol. We use lots and lots of coconut oil and milk. They are taking 1000 mg of olive leaf, astragulus, PRX, SPS30, lysine and lots of C...were at 20 grams a day, til bowel tolerance was reached....so we are at lower C for a while...will be ramping it up again and see where it will go. I am sorry this is so long... Thanks for any help and suggestions you can offer this ditzy Indian. Ronni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Wow, you really deserve some credit for all the hard work you are doing. Maybe you need to add some more lyme and co. killers. Check out these books: "Top 10 Lyme Treatments" by Rosner and also "Healing Lyme" by Buhner. Here's some info. on Buhner's protocol: http://planetthrive.com/cgi-bin/members/pub9990215559469.cgi?categoryid=9990237224443 Klinghardt has a lyme protocol as well: http://www.geocities.com/gallisto1/Klinghardt.html Not everyone can take chlorella, so if you see that as one of Klinghardt's protocols, keep that in mind because he doesn't mention that. What about colloidal minerals? I really think those are necessary, but difficult to find a good brand, free of heavy metals. One thing that I found works for herxing, sensitivities, and aggression is lithium orotate. I have one that I adopted who just wouldn't stop fitting. I put her on lithium orotate and took it myself. And for the first time in many years, I did not have mold sensitivities nor herxing. She also is fitting much less, and she has only been on it about a week and a half. Thus, so far I really like this stuff and plan on keeping us all on it the duration of treatment. Heidi N From Ronni: "Thanks for any help and suggestions you can offer this ditzy Indian." Who's never won? Biggest Grammy Award surprises of all time on AOL Music. Quote Link to comment Share on other sites More sharing options...
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