Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Hi there, I read your message about hot tubs. I want to tell you that I just started AP therapy and the doctor I am seeing leaves no stone unturned when it comes to checking out every aspect of his patient's health. So, he recommends that we do not bathe or drink chlorine, which is in all tap water. He recommends getting filters for all faucets, including the bathroom shower so as to avoid chlorine. Maybe this chemical is responsible for your reaction. If you need more information, let me know, but I hope this helps you. Since I developed RA i am very sensitive to the cold and seem to be more so as time goes on. I think it's part of the disease as well as an emotional reaction. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Oleksandr - I don't have any first hand experience with the reaction you are having (with me, the cold bothers me something awful), but I was doing a little reading about the way the Chinese treat arthritis. I'm hoping my foggy brain remembers correctly, (and I hope someone out there has more knowledge in this area than I do) - they treat the whole person, rather than the disease. Now what I do remember is that some people are made worse by the cold, others by hot. I did a search & came up with a website that explains it better than I can. I know from my experience that I can't have any cold on my body, or I'm in pain. I've never tried this, however, so I can't say whether it works or not. http://www.acupuncture.com/Acup/Arth.htm BTW, I seem to remember that you are in Russia - am I correct (memory is bad these days). My father's people came from Poland. I believe the town bordered Russia at the time they emmigrated to the U.S. Lyn ------------------------- >Dear list members: > >I hope that someone will be able to explain the following. Every time I >take >hot (warm) tub my symptoms get much (much!)worse. Lukewarm shower is all I >can have now. I don't think I took more than three tubs in the past ten >months. And every time I regretted it bitterly. To start with, the first >symptoms of the disease (PA) manifested after I returned from sauna, which >was the first (and I think the last) sauna in my life. I just cannot bear >wet heat, or soaking of any kind (like soaking my feet in herbal potion), >it's killing me. Because of it I'm afraid to even try balneology, which >many >people claim as very beneficial. I guess my cardiovascular system has been >involved as I've become much more sensitive to cold too. Could anyone >explain this phenomenon? Am I unique in this, or some other people have >experienced similar conditions? Any thoughts/comments will be appreciated. >Thank you. > >Oleksandr > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 In a message dated 6/17/2003 9:59:20 PM Eastern Daylight Time, thochanadel@... writes: > Hello everyone. > My Doc wrote me a prescription for a hot tub. > Yes...we had to pay the money up front, but were able to take it legally as > a > tax deduction for needed medical care. I can get in the hot tub...adjust > the > temps to what I feel I need at the time, rotate through the seats and get > different massages. It is a true miracle for any kind of arthritis...which > mine > of course is PA. I was also thinking of asking my rheumy to do this. I went in my neighbor's once and it helped a great deal. It was very soothing. I think my rheumy would write a prescription. Do you know what portion of the cost is actually deductible on your income tax? Perhap then I can convince my husband to get one. We already have a fairly big pool in our yard. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2003 Report Share Posted June 18, 2003 > Do any of you have access to or a rhuemy who would > write a prescription for you to use/purchase a hot tub? > Haven't heard much talk about this subject...I'm just curious. > I purchased a small Marquis Leisure Oasis Spa like this: http://www.alhottubs.com/spa/marq-le-oasis.htm with after tax money (no prescription) for $4,000 a few years ago, but for me the beneficial effects are only temporary so I don't use it much. -- Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 Janet, Our C.P.A. was able to write off a considerable amount because of my husband's situation as well. Everyone's situation is different. Check with an accountant to be sure first. Good Luck!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 hi, we joined the ymca last oct. and i find that when i am really sore a round in the hot tub, steam room and sauna do the trick. it costs a little more to get that part, but it is worth it. we have 2 in our county and the older one's are segregated, so i have privacy when i use them. the hot tub seems to always be cleaner too. i also use the warm water pool, and have taken their arthritis classes. i have never taken it again because i was treated at that time by the " old " ones like i was such a wuss for letting my arthr. get to me. i was too weak to even get out without using the lift seat. they were in such better shape than me. i am going to take the water aerobics class this summer. i took soriatane for a while for my psoriasis, didn't help it but did help arthritis A LOT. 3 weeks till new insurance starts and can get back on enbrel, can't wait! have a good weekend all. susan in ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 My husband can't stand the heat since he got lyme. I have tried to do several things to heat him up, but he gets so sick and starts having bad seizures. Hot water is the worst. Is that part of a herx reaction? As much as I (probably all of us) have read and learned over the years, there is always more to learn. I did try him on a regiment of vitamins before he was diagnosed, it worked great, but then when treatment started, I had to stop the vitamins because of the interaction with prescription meds. I don't know what other options there are, but we are willing to try anything. anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 I would caution against trying to raise your internal core temperature to 104 or to any level without proper medical supervision. Your body will try to self cool itself by opening up pores, sweating and eventually shutting down systems. You may quickly dehydrate yourself causing many other problems including possible heart failure if you have a week system. Have you ever felt light headed after coming out of a hot shower, I think this would be much worse. I'm not a doctor and I have no experience with this but to me it seems that too many worse things could happen by doing this. Please be sure to discuss this with your trusted health care provider before trying this. Be well, > > I dont think that you could reach 104 core temp...but you would > definatly have a mean herx...that is one thing that I know will happen > if you have lyme and soak in a 105 degree tub... i was thinking of > making a tub out of wood that would be gas fired..that would be > nice...and at 104 the spirochetes start dying....that is true... > eric > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 I get really sick from heat too. I can't take hot bathes, and the heat of the summer about kills me. Kathy > > My husband can't stand the heat since he got lyme. I have tried to do > several things to heat him up, but he gets so sick and starts having > bad seizures. Hot water is the worst. Is that part of a herx reaction? > As much as I (probably all of us) have read and learned over the > years, there is always more to learn. I did try him on a regiment of > vitamins before he was diagnosed, it worked great, but then when > treatment started, I had to stop the vitamins because of the > interaction with prescription meds. I don't know what other options > there are, but we are willing to try anything. > > > anita > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 I noticed the same thing - can't STAND the heat, and especially can't stand the sun. I love rainy weather. Once the sun comes out, and it's over 75 degrees, I just have to lie down. My husband LOVES to soak in a hot tub, but I can only stand them for a couple of minutes, and then I'm sick for days. I had assumed I was sensitive to the chemicals, or catching something from public hot tubs, but maybe it's a herx. husbandwcld <husbandwcld@...> wrote: My husband can't stand the heat since he got lyme. I have tried to do several things to heat him up, but he gets so sick and starts having bad seizures. Hot water is the worst. Is that part of a herx reaction? (snip) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 If I raise my heart rate or temp by very much I will suffer greatly the next few days. Which rather s*cks since I loved exercise, oh well. [ ] Re: hot tubs > I would caution against trying to raise your internal core temperature > to 104 or to any level without proper medical supervision. > > Your body will try to self cool itself by opening up pores, sweating > and eventually shutting down systems. You may quickly dehydrate > yourself causing many other problems including possible heart failure > if you have a week system. Have you ever felt light headed after > coming out of a hot shower, I think this would be much worse. I'm not > a doctor and I have no experience with this but to me it seems that too > many worse things could happen by doing this. > > Please be sure to discuss this with your trusted health care provider > before trying this. > > Be well, > > > > > > > > > > > I dont think that you could reach 104 core temp...but you would > > definatly have a mean herx...that is one thing that I know will > happen > > if you have lyme and soak in a 105 degree tub... i was thinking of > > making a tub out of wood that would be gas fired..that would be > > nice...and at 104 the spirochetes start dying....that is true... > > eric > > > > > > > > > > For up to date information about Lyme disease and the known co-infections > delivered to your email address see: > Robynns_Lyme_List/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 > > I get really sick from heat too. I can't take hot bathes, and the > heat of the summer about kills me. Me three I live in central TX and we are so known for our nice temperate summers LOL I feed my horses 3 meals a day, except in the heat of summer, it wears me out just to go do that. Rediculous isnt it. > Kathy > > > > > > > > > My husband can't stand the heat since he got lyme. I have tried to > do > > several things to heat him up, but he gets so sick and starts having > > bad seizures. Hot water is the worst. Is that part of a herx > reaction? > > As much as I (probably all of us) have read and learned over the > > years, there is always more to learn. I did try him on a regiment of > > vitamins before he was diagnosed, it worked great, but then when > > treatment started, I had to stop the vitamins because of the > > interaction with prescription meds. I don't know what other options > > there are, but we are willing to try anything. > > > > > > anita > > > > > > > > > > > For up to date information about Lyme disease and the known co-infections > delivered to your email address see: > Robynns_Lyme_List/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 I used to love it too. I'm trying to psych myself up to just do it anyway, suffer the consequences, and see if it gets better over time. Even riding, anything more strenuous than a nice hack, is no fun any more. I've thought about selling the horses, but so far can't bring myself to actually do it. If anyone makes me an offer the first hot day in May though, I might just say yes. /Rodney <rod@...> wrote: If I raise my heart rate or temp by very much I will suffer greatly the next few days. Which rather s*cks since I loved exercise, oh well. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 > if you have lyme and soak in a 105 degree tub... i was thinking of > making a tub out of wood that would be gas fired..that would be > nice...and at 104 the spirochetes start dying....that is true... > eric > , I couldn't help but picture that old cartoon where Bugs Bunny is told to climb into a large pot of water with a roaring fire underneath. Gas fired tub eh? Hope you have a thermometer near by. Just don't overcook yourself ok! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 > > My husband can't stand the heat since he got lyme. I have tried to do > several things to heat him up, but he gets so sick and starts having > bad seizures. Hot water is the worst. Is that part of a herx reaction? >> > anita > Anita, I think for some seizures can be part of a herx. Try to observe when they occur and what was done in the hours or days before it occurred, especially if he rarely has seizures otherwise. I'm intolerate to the cold and heat. The hot baths one has to build up a tolerance to as far as the temp and the amount of time spent in it. But it did feel good for me to sweat in the hot soaks because there was a time when my body would not sweat despite it being hot summer. In fact that is when I really got worried something was wrong when I felt hot, but couldn't sweat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Hi. Your husband should definitely look into taking the vitamins. I have had horrible fatigue for years. I have found some vitamins from Melaleuca that work great, and I am on antibiotics also. I have been taking them for a little over a month, and they work better than anything I have ever tried. I still have problems with the heat tolerance. If you find anything that helps with that, please let me know. > > My husband can't stand the heat since he got lyme. I have tried to do > several things to heat him up, but he gets so sick and starts having > bad seizures. Hot water is the worst. Is that part of a herx reaction? > As much as I (probably all of us) have read and learned over the > years, there is always more to learn. I did try him on a regiment of > vitamins before he was diagnosed, it worked great, but then when > treatment started, I had to stop the vitamins because of the > interaction with prescription meds. I don't know what other options > there are, but we are willing to try anything. > > > anita > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 I've begun using the hot tub at the condo complex where I live. It feels wonderful, so relaxing and warming. Does anyone now if hot tubbing can be harmful to people with CMT? Ruth Be kind. Everyone you meet is struggling with something. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2007 Report Share Posted June 24, 2007 Our spa is so slippery sometimes I wonder if I will ever make it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 Good thought, . ;-) So far I've managed to keep my head above water. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 , I learned the hard way...if your hot tub is slippery, you most likely have a problem. It is so important you find out what chemicals are off balance, or what is growing in the tub. This can be very harmful to your health! I hope it's nothing serious...but it's something you don't want to mess around with. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 Hi Kay: You may want to check out who you are allowing in your hot tub too....HA HA. Little brother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 , I just had to tell you again...your so bad!! Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Ozone is supposed to work well for this. Luv, Debby in San , CA 147 pounds lost! 100% of health issues reversed! Group: curingcandida/ Website: http://www.naturallythriving.com Currently studying for Nutrition license and PhD in Psychology ----- Original Message ---- From: bonnie_calgaro Hi, Is there a substance one can use in hot tubs besides chlorine, one that specifically will help eliminate bladder and/or yeast infections. Thank you - Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Or also you can take a bath with a small amount of 3 % hydrogen peroxide added into the water. I'm not sure how much you add to the bath water, but I've been meaning to try this. Re: Hot tubs Ozone is supposed to work well for this. ----- Original Message ---- From: bonnie_calgaro Hi, Is there a substance one can use in hot tubs besides chlorine, one that specifically will help eliminate bladder and/or yeast infections. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 I think to make the bath theraputic bath dose for h2o2 is 6oz of 35% food grade or for the 3% it would be two quarts. I did hear that your water needs to be low in iron for some reason. You might check on the oxygen therapy site for that info. > From: S <michelle_s18@...> > Or also you can take a bath with a small amount of 3 % > hydrogen peroxide added into the water. ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.