Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Hi Leena, Royal Children's Hospital pediatric neurologist Dr , Sydney podiatrist Dr Josh Burns and Prof Ouvrier, from Sydney's Westmead's Children's Hospital, hope high doses of vitamin C could relieve children's CMT symptoms. I don't have a contact number at the moment, but if you will email me, I'll see if I can get one. The entire story about this Vit. C study, from the Sydney Herald, is in our Files section (Ascorbic Acid folder) Interesting too, this study is only a year long, like the one we just heard about from Alberta. I am wondering if smaller doses on younger people is a key? ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Hi Gretchen and Leena, My son, Ben has Dr as his neurologist. The Neuroscience Centre phone no. at the Royal Childrens Hospital in Melbourne Vic. Australia is +61 3 9345 5661. Hope this is helpful. Ben has just recently been diagnosed, with the aid of 's wonderful knowledge and assistance. He has Silver Syndrome, with Spinal Muscular Atrophy Type V. A bit of a shock, with no-one else in Aust. diagnosed with this before. His genetic detail is BSCL2 (SPG17/SMAV) het. c. 263A>G [N88S]. Windpassinger 2004. Gretchen, I have included this detail as I have seen how much you love your research. (I tend to just visit and read mostly.) . Quote Link to comment Share on other sites More sharing options...
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