Re: CMT kids disability SSI anyone get this?

[Guest guest]

Our specialist told me yesterday that 99% of doctors have never seen CMT. So if

you get doctor that had no idea what CMT is chances are your child will be

denied SSI.

I suggest to anyone applying for SSI for their child see a Peds neurologist and

get their report for your SSI case.

[Guest guest]

SSI rules about income and resources

When we decide if your child can get SSI, we consider your child's

income and resources. We also consider the income and resources of

family members living in the child's household. These rules apply if

your child lives at home. They also apply if he or she is away at

school but returns home from time to time and is subject to your

control.

If your child's income and resources, or the income and resources of

family members living in the child's household, are more than the

amount allowed, we will deny the child's application for SSI

payments.

More at http://www.ssa.gov/pubs/10026.html#ssi-benefit

For SSI children's, they look at severity of disability and

financial need, which includes * Total Family Income *. If you

believe your child is eligible still after understanding the program

rules, then file a Reconsideration Request and provide more

information about the child's disability and family finances.

~ Gretchen

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> My daughter was denied for disability, it's a SSI thing based on

income but anyone have info and anyone who's child(ren) was approved

or denied get back to me.

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[Guest guest]

well see they never even took any income info they just denied it within 3 of

applying

[Guest guest]

that websites says

We may make immediate SSI payments to your child It can take three to five

months for the state agency to decide if your child is disabled. However, we

consider certain medical conditions so limiting that we expect any one of them

to disable a child. In these cases, we make SSI payments right away and for up

to six months while the state agency decides if your child is disabled.

Following are some of those conditions:

HIV infection

Total blindness

Total deafness

Cerebral palsy

Down syndrome

Muscular dystrophy

Severe mental retardation (child age 7 or older)

Birth weight below two pounds, 10 ounces

If your child has one of the limiting conditions that is expected to disable a

child, he or she will get SSI payments right away. However, the state agency may

finally decide that your child’s disability is not severe enough for SSI. If

that happens, you will not have to pay back the SSI payments that your child

got.

and CMT falls under the MD so they shouldnt of denied it right?

..

[Guest guest]

J Hart,

OK, immediately file a Request for Reconsideration focusing on 1)

the severity of your child and 2) the financial need of the family.

And keep a copy for your files. Send new medical/doctor info for

your child too that focuses on " severity " . SSA compares info with

the IRS when it comes to finances. Look on the denial letter you

got, it may also give you more information that was 'missing' from

your original application. It may be a good idea to take your child

in to the SSA office when you file your Request, and it may be

something to think about now, getting an attorney, if your family

resources DO support your SSI claim.

Here is the RFR form http://www.ssa.gov/online/ssa-561.pdf

http://nosscr.org is an association of attorneys who work strictly

with this area of law, and if you contact them, they can give you

names of lawyers near you.

Here is the SSA Bluebook listings for children's disorders

http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListing

s.htm

Look under 111.00 (Neurological) and also 101.00 Muscle-sketal; your

child may have other needs, so best to look everything over before

you file your Request.

~ Gretchen

~ Gretchen

[Guest guest]

No, CMT does not " fall under " MD at all with the SSA. CMT is not MD.

IF your child had a diagnosis of MD, then that child would be eligible

to receive immediate payments while the process goes on.

I just posted the Blue Book listings for children, read over that and

tailor your Request based on the severity of symptoms that your child

has. Back it up with all the tests, doctor's reports, etc. You may

also want to send in info about CMT.

~ Gretchen

[Guest guest]

I began receiving SSI in 1983 before my daughter was born. I was approved with

no problems at all and my doctor didn't know squat about CMT. I learned about 3

years ago that I had to file for SS on my father's claim or I lose my SSI

completely. I get Social Security Child's Benefits and SSI-D, which is

disability. Just something to think about.

Hattie