Guest guest Posted July 11, 2007 Report Share Posted July 11, 2007 A warm welcome, Rose, thanks for introducing yourself. I'm in my 50's and also had a childhood diagnosis. No kids or AFOs tho. I know you'll find to be both helpful and hopeful. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2007 Report Share Posted July 11, 2007 Welcome Rose! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2007 Report Share Posted July 13, 2007 Welcome Rose, I was diagnosed officially at ten. I have one daughter and two left feet LOL. I just recieved my genetic test this Wednesday and it was kind of a shock. I always knew I had it, but to see it confirmed with the genetic test made it seem even more real. I have always tried to take care of myself and now I will try even harder. I have really enjoyed everyone's responses about their children and schools and such. My daughter is four years old and currently with my ex-wife who won't let her get tested, and doesn't even acknowledge she could have it. I think I was glad my parents knew and steered me into the right direction. I think getting her tested will be positive, I hope she doesn't have it, and if she does then I will ensure she gets the assistance she deserves. All of you sound like great parents, and we all have differences in our physical abilities in relation to our CMT, and we all have our reasons for wanting/or not wanting our children tested. I certainly saw no reason for my daughter to get the EMG that was extremely painful. I guess I am glad I have the common type (CMT 1A) and it come out on the first genetic test. Kirk Quote Link to comment Share on other sites More sharing options...
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