Re: welcome Rose and genetic testing

[Guest guest]

Please consider the insurance ramifications of getting genetic tests for

children. Have you seen " Sicko " yet? CMT is on the list of preexisting

conditions for which insurance companies will deny insurance. My husband has

late onset CMT and Medicare and Cal PERS care, so he has no problems with

insurance, but a four year old kid? No way is she on her last insurance or

about to make decisions about getting pregnant.

BTW my husband's genetic tests were all negative. The first time it was

inconclusive for duplication of PMP22, but on repeating, negative. Athena says

" Therefore, this individual is unlikely to be affected with, or predisposed to

developing, CMT. " LOL. " However, the clinical symptoms of your patient could

likely be due to sequence alterations in genes not included in this

panel. " Duh.

His onset was about age 60. His oldest son is 50 with " the feet " but no other

symptoms. His youngest son is considering children at this point, but with no

gene, he can't do anything about IVF. My husband always remembers high arches

but doesn't remember when he got the hammer toes.

Elinor