Re: Dartmouth Hitchcock NH

[Guest guest]

Hi Heidi,

I just had surgery on 6/28 at DHMC. My CMT is so advanced that I was looking at

life in a wheelchair. Dr. Hecht is working on keeping me out of it for awhile

longer. I will have my second ankle fusion in January. Good luck with the kids,

hope they are able to help you.

Hope

[Guest guest]

> *Remember always you are a person first and a CMT patient second*

Heidi,

THANK YOU so much for that lovely line - sometimes it is hard to

remember!

[Guest guest]

Hi Hope!

When I was first diagnosed with CMT they told me I had a 50/50

chance of ending up in a wheelchair. Well, I am now 38 and I do not

expect to end up there until I am 80 :-) Our minds and the way we

think sometimes helps us.

Other times we need to do what is required. I use a wheel chair for walking a

lot to conserve energy. I swim, and walk a lot and bicycling. Yet, we all know

that CMT even the same type affects us all differently. We must strive for the

positive outlook. I have my days too, yet it is about walking that balance. I

wish you all the luck with your life and CMT and anytime you want someone to

listen I am here.

Heidi