Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 Hi ! Your Autumn sounds like my Kody. So far the docs here have only diagnosed IgG subclass 2 & 3 deficiency, steroid dependent asthma, and allergies. He also has had osteomyelitis in his knee this last March. He has had more ear infections than I can count, although after his second tubes (titanium ones, he is allergic to plastic ones...also found out the hard way) he hasn't had too much trouble in the ears, mostly his sinuses now, and he has had pneumonia twice, bronchitis several times, croup, canker sore vires that he had thousands of them at once, hand foot and mouth disease, conjunctivitis (too many times to count)...and much, much more. He has had trouble since birth, really, but, we have gone from going to the doctor for an illness maybe once every other month to once a month to now every week. And still we look for answers. I pray that you find yours soon!! Diane, Mom to Kody age 4, also to my healthy girls, Arika age 12, Kaila age 9, and age 6. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 Jan, Thanks for asking. Cassie is doing okay. She has been off IVIG for almost 8 weeks. We have had low grade fevers and a slight cough, but nothing we can't contend with. We have to be off the IVIG for at least another 4 weeks before they start any of the pre vaccination bloodwork. We are on Ampicillin, Flovent, Serevent, Flonase, and Extendryl. She has been so happy that we don't have to go sit for hours on end at the hospital. But, so is everyone else. I hope everyone is doing fine. Summer is almost here. We are 13 more days until the end of school. Take Care, Belinda Rose, Mom to Cassie, my little goose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 Belinda, How's Cassie? Jan mew wrote: > Belinda, > Thanks for asking. Most people including docs don't > know this illness. They do a sweat test to distinguish between it > and cystic fibrosis. It includes pancreatic insufficiency, which > causes malabsorbtion, neutropenia and sometimes other marrow > problems, and sometimes skeletal changes. Most present as > failure to thrive. There are freqent infections and its hard to get > well from them. Some also have Hypogammaglobulinemia like > Ben. Shwachman's usually results in short stature. > Hamilton the skater is said to have it. We recently received a sample > of the Scandishake, but haven't tried it yet. I called for a free > sample. They have a lactose-free shake according to the literature > that came with the shake sample. Our sample shake says 600 > calories for 8 oz. Thats amazing. 1- if you want > to check on it. I wish I had asked for chocolate, because they sent > vanilla, which Ben isn't excited about as he hates other vanilla drinks. > Maybe he'll try it anyway. Is Cassie excited about Easter? > Jan > rrdgtchr@... wrote: > > > Jan, > > > > I meant to ask you the last post, What is Shwachman's? Never heard of it. > > It is a metabolic disorder? > > > > Belinda Rose, > > Mom to Cassie, 5 year old " little goose " > > > > ------------------------------------------------------------------------ > > Get your money connected @ OnMoney.com - the first Web site that lets > > you see and manage all of your finances all in one place. > > http://click./1/3012/7/_/480115/_/956282120/ > > ------------------------------------------------------------------------ > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > ------------------------------------------------------------------------ > Your high school sweetheart-where is he now? With 4.4 million alumni > already registered at Classmates.com, there's a good chance you'll > find her here. Visit your online high school class reunion at: > http://click./1/3139/7/_/480115/_/956344383/ > ------------------------------------------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 , I'm fairly new to the list. My son sees an immunologist (pediatric) in Dallas named Dr. Wasserman, his partner is Dr. Sugarman. We live in the TX Panhandle and it takes about 8 hours drive to see them. He doesn't give me lots of numbers from the tests, but is very specific on his treatment recommendations and gives written plans of action. He works well with my ped. and other specialists. Sometimes I wish for a closer doctor. My son has some asthma, usually not a problem but has Common Variable Immune Deficiency and takes IVIG which has changed his life to being much less sick. He also has Shwachman's, and allerigies. My daughter has much worse allergies and asthma and used to see Dr. Wasserman, but now sees an allergist in Lubbock so we can get her there more often and quicker. Glad Autumn is improving from the sinus problem and hang on that Ped., sounds like a great one. Jan Ray wrote: > Hi, > I'm a new member to the group and have just now found enough time to > introduce myself. My daughter Autumn has been tested three times for an > IgG deficiency, and with each test these levels get lower and lower. > She has a history of severe asthma, chronic sinusitis, and ear > infections. > She has seen an allergist in town, but the ped. has discussed her case > with an immunologist in the Chicago area (sorry, I don't know the > name). He will retest her again in June and if need by, send us to a > ped. immunologist in the Dallas area. > > She recently was hospitalized for five days for iv antibiotics to clear > a sinus infection which had lasted four months. During the > hospitalization, an ENT removed her adenoids, irrigated her maxillary > sinuses, and placed tubes in her ears. Since the surgery she has been > symptom-free. She goes in for a check-up next week. > > Her sister has had very few problems, only mild asthma. I am hoping > this forum can give me some ways to assist her ped. He is very competent > and genuinely concerned about Autumn. He is definitely willing to " go > to the mat " for us. > > , Mother to Tabitha age 4 and Autumn age 2 (IgG def, asthma, > chronic sinusitis, allergies--unknown). > > ------------------------------------------------------------------------ > Would you like to save big on your phone bill -- and keep on saving > more each month? Join beMANY! Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > http://click./1/2567/7/_/480115/_/957477636/ > ------------------------------------------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Hello Tammy and welcome to the group...I'm sorry your daughter is having these problems and things are so distressing right now. Everything, absolutely everything you wrote about your daughter's symptoms is classic OCD. She is not playing you or playing up her distress. Yes kids with this can seem to turn on and off *displaying* symptoms depending upon where they are and who they are around, and Mom is frequently the one who hears all and sees all. But in the beginning, before meds have kicked in and/or therapy, they no control over when and to what degree they *experience* symptoms. The preoccupation with purity and other religious issues is called scrupulosity. The week at VBS may well have tipped your daughter over into frank obsessions of this nature. To this day (almost 6 years later) my daughter (10 1/2..she takes Zoloft too) has some difficulty with religious or church-based events--though now she can and does attend them (a far cry from the days when I was driving bizarre routes around town to avoid passing a church.) The sexual-themed obsessions are very common among kids, you can imagine my upset and distress when my 4-year-old abruptly began having these along with horrible dismemberment/knife obsessions. She had **absolutely not** been exposed to anything of a sexual or " slasher-movie " type nature at that age!! Your psych is wrong, possibly thinking of a different, more psychodynamic type of therapy. The one type of therapy for OCD that works (gets rid of obsessions and compulsions) is called Cognitive Behavior Therapy with Exposure and Response Prevention, and there is no need for a child to have been traumatized to benefit from it. This therapy gives the kids the tools to " kick OCD's butt " . OCD is not caused by trauma or upset though frequently a child who is predisposed to develop the disorder seems triggered into the full-blown disorder by a life event such as moving, the death of a loved one, etc. Well that is enough for now...I don't want to overwhelm you except to say th at my own and many of our kids have been where yours is now, and came out the other side following effective treatment with their old lives back and OCD pushed into a tiny, manageable corner. Write again, Kathy R. in Indiana ----- Original Message ----- > Hello, my name is Tammy. I am the parent of an 11 year old girl named > nah, who has just been dx'd with OCD. She has just been prescribed > Zoloft, and is in the weaning on stage of the drug. > > nah began having " bad thoughts " (her term) about 3-4 weeks ago. They > were/are sexual in nature and very worrisome to her. This began the week > she went to VBS with a neighbor. I am wondering if the stress she felt in a > new situation (new kids, etc) triggered this. She needed constant > reassurance that she was not bad, but it was as if she couldn't remember > asking me....she asked over and over. This escalated into her asking me > every five minutes if she was gay because she had a " bad thought " about her > sister. I have explained a zillion times that such thoughts are normal, > esp. when approaching puberty...but its as if she cannot hear me. The > thoughts have gone on to be that she wishes I was dead, or that I am fat, or > that I am a " hore " as she wrote out (she was too ashamed to say it....) or > that my dh is cheating on me, or that she wants to choke her sister. All of > these send her rushing to me confessing, in total distress, and wanting > reassurance. (and I'm not sure where she is getting words like whore! as > she is pretty sheltered...) This can happen hundreds of times a day! The > last straw was when she was sobbing in the bathroom telling me she wanted to > die.....then she'd be with Jesus and all the bad thoughts would go away. > She told me the only reason she wouldn't kill herself is she didn't want to > go to hell. This is one time I chose NOT to correct her. She's very open > with people about what is going on, and seems to want to talk to anyone who > will listen about her thoughts.....but I am the main checkpoint. > > I called to get her into therapy, and was referred to a psychiatrist because > in order to get therapy, our insurance requires a psych consult. The > psychiatrist talked to all of us, got a history, etc, and then had ME fill > out a questionaire about nah's actions and distress level...some kind > of inventory, I guess. She said it had a score of 26 which indicated some > pretty severe OCD and she prescribed the Zoloft. When I asked her about > Cognitive Behavioral counseling (I had a pretty good idea that Sus was OCD > after talking to my pastor's wife.....her son has OCD as well.....and she > had told me OCD was treated with meds and therapy) she told me that because > nah had not had any trauma to speak of, therapy was not needed, this > was totally chemical......and once the drugs kicked in, she would be better. > > I'm not sure how I feel about this. I am also not sure how to tell when > nah is " playing me " or even IF she is playing me, and when she is > really having a hard time. Right now I try and distract her, (which does > sometimes work) or I tell her " I love you....you need to kick this OCD's > butt......don't let it kick yours! " Or..... " a thought is just a > thought.....nothing more, nothing less " . When she tells me she hates her > life, I tell her that life is a gift from God and she needs to choose to > embrace it not hate it.....I have tried to give her some strategies.....try > to visualize changing the tape, write bad a bunch of times in the drawing of > a brain and whenever a bad thought happens, cross out the word bad, think a > good thought, and write the word good, etc. I think the meds will have to > kick in before she can handle this, though. > > Its weird, though.....today she did really well......very few episodes, and > easily distracted from the ones she had......other days shes a basket case. > My dad is after me to allow her to spend a few days to see how she does when > I'm not around....she can be in a total panic, and then seem to just " turn > it off " . He thinks she has issues, but feels she is milking this to the nth > degree. I'm not sure I agree with him, but sometimes it DOES seem that way! > Is this normal?? > > The other thing that I have noticed is she is very agitated in church now. > She wants to leave immediately, and tells me she isn't " pure " anymore nor > good enough to attend church. > > Someone please enlighten me......how do I begin to handle all of this? I > feel like someone has stolen my happy little girl and I have absolutely NO > clue in how to help her. > > Thanks! > > Blessings, > Tammy > The mother's heart is the child's schoolroom. > Henry Ward Beecher > > > Thank goodness I was never sent to school; it would have rubbed off some of > the originality. > Beatrix Potter > > Imagination was given to man to compensate him for what he is not; a > sense of humor to console him for what he is. > -- Sir Francis Bacon > > www.pictureparables.com > > > > > > Our list archives, bookmarks, files, and chat feature may be accessed at: http://health.groups.yahoo.com/group// . > Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... .. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Welcome to the group, Tammy and Nan! I don't have a huge amount of advice, we are new on this OCD journey, too. For me the best thing is knowing that our family is not " weird " that there are others like us who are struggling with this illness which does indeed seem to take over our children. We are entering week 2 of looking for a new therapist, as the one we had was just doing talk therapy and not any CBT. Very nice, compassionate man, but wasn't reaching the OCD issues. It is interesting how the kids can act " normal " in certain situations. My , almost 15, is volunteering this week at the same camp he swore 3 years ago he would NEVER go back to, after being very frightened by a too-realistic skit about what it would be like to be a Christian in China. (He has also been afraid to be in the church sanctuary) He attended two weeks ago as a camper which about made us pass out that he even asked to go. BUT...the food there is not contaminated. So he went back today as a " support staff " member (aka gofer) for the coming week. All reports from the week he was a camper sounded like no one could tell he had a problem. I was helping him clean his room last week (he actually let me throw away his tattered sleeping bag and pillow and SOME of his plastic grocery bags but not all) Found two huge kitchen knives set up like a booby trap on his floor behind some of his stuff. He said, " Oh, those are from my burglar stage. " So he knows he goes through different obsessions, but I think he still doesn't quite understand that his strange thoughts don't line up with what everyone else thinks is reality. His most bizarre obsession is being afraid of his sister . He is still hissing and growling and spitting if he sees her, hears her voice or anyone mentions her. He denies having sexual or other bad thoughts about her, but we have thought all along that that may be part of it. He has not harmed her in any way, either, just avoids her at all cost. They were very close at one time. Well, it's late, just wanted to be another voice telling both of you that there are many of us out here who understand and empathize with what you're going through. Kim in IA Re: introduction Hello Tammy and welcome to the group...I'm sorry your daughter is having these problems and things are so distressing right now. Everything, absolutely everything you wrote about your daughter's symptoms is classic OCD. She is not playing you or playing up her distress. Yes kids with this can seem to turn on and off *displaying* symptoms depending upon where they are and who they are around, and Mom is frequently the one who hears all and sees all. But in the beginning, before meds have kicked in and/or therapy, they no control over when and to what degree they *experience* symptoms. The preoccupation with purity and other religious issues is called scrupulosity. The week at VBS may well have tipped your daughter over into frank obsessions of this nature. To this day (almost 6 years later) my daughter (10 1/2..she takes Zoloft too) has some difficulty with religious or church-based events--though now she can and does attend them (a far cry from the days when I was driving bizarre routes around town to avoid passing a church.) The sexual-themed obsessions are very common among kids, you can imagine my upset and distress when my 4-year-old abruptly began having these along with horrible dismemberment/knife obsessions. She had **absolutely not** been exposed to anything of a sexual or " slasher-movie " type nature at that age!! Your psych is wrong, possibly thinking of a different, more psychodynamic type of therapy. The one type of therapy for OCD that works (gets rid of obsessions and compulsions) is called Cognitive Behavior Therapy with Exposure and Response Prevention, and there is no need for a child to have been traumatized to benefit from it. This therapy gives the kids the tools to " kick OCD's butt " . OCD is not caused by trauma or upset though frequently a child who is predisposed to develop the disorder seems triggered into the full-blown disorder by a life event such as moving, the death of a loved one, etc. Well that is enough for now...I don't want to overwhelm you except to say th at my own and many of our kids have been where yours is now, and came out the other side following effective treatment with their old lives back and OCD pushed into a tiny, manageable corner. Write again, Kathy R. in Indiana ----- Original Message ----- > Hello, my name is Tammy. I am the parent of an 11 year old girl named > nah, who has just been dx'd with OCD. She has just been prescribed > Zoloft, and is in the weaning on stage of the drug. > > nah began having " bad thoughts " (her term) about 3-4 weeks ago. They > were/are sexual in nature and very worrisome to her. This began the week > she went to VBS with a neighbor. I am wondering if the stress she felt in a > new situation (new kids, etc) triggered this. She needed constant > reassurance that she was not bad, but it was as if she couldn't remember > asking me....she asked over and over. This escalated into her asking me > every five minutes if she was gay because she had a " bad thought " about her > sister. I have explained a zillion times that such thoughts are normal, > esp. when approaching puberty...but its as if she cannot hear me. The > thoughts have gone on to be that she wishes I was dead, or that I am fat, or > that I am a " hore " as she wrote out (she was too ashamed to say it....) or > that my dh is cheating on me, or that she wants to choke her sister. All of > these send her rushing to me confessing, in total distress, and wanting > reassurance. (and I'm not sure where she is getting words like whore! as > she is pretty sheltered...) This can happen hundreds of times a day! The > last straw was when she was sobbing in the bathroom telling me she wanted to > die.....then she'd be with Jesus and all the bad thoughts would go away. > She told me the only reason she wouldn't kill herself is she didn't want to > go to hell. This is one time I chose NOT to correct her. She's very open > with people about what is going on, and seems to want to talk to anyone who > will listen about her thoughts.....but I am the main checkpoint. > > I called to get her into therapy, and was referred to a psychiatrist because > in order to get therapy, our insurance requires a psych consult. The > psychiatrist talked to all of us, got a history, etc, and then had ME fill > out a questionaire about nah's actions and distress level...some kind > of inventory, I guess. She said it had a score of 26 which indicated some > pretty severe OCD and she prescribed the Zoloft. When I asked her about > Cognitive Behavioral counseling (I had a pretty good idea that Sus was OCD > after talking to my pastor's wife.....her son has OCD as well.....and she > had told me OCD was treated with meds and therapy) she told me that because > nah had not had any trauma to speak of, therapy was not needed, this > was totally chemical......and once the drugs kicked in, she would be better. > > I'm not sure how I feel about this. I am also not sure how to tell when > nah is " playing me " or even IF she is playing me, and when she is > really having a hard time. Right now I try and distract her, (which does > sometimes work) or I tell her " I love you....you need to kick this OCD's > butt......don't let it kick yours! " Or..... " a thought is just a > thought.....nothing more, nothing less " . When she tells me she hates her > life, I tell her that life is a gift from God and she needs to choose to > embrace it not hate it.....I have tried to give her some strategies.....try > to visualize changing the tape, write bad a bunch of times in the drawing of > a brain and whenever a bad thought happens, cross out the word bad, think a > good thought, and write the word good, etc. I think the meds will have to > kick in before she can handle this, though. > > Its weird, though.....today she did really well......very few episodes, and > easily distracted from the ones she had......other days shes a basket case. > My dad is after me to allow her to spend a few days to see how she does when > I'm not around....she can be in a total panic, and then seem to just " turn > it off " . He thinks she has issues, but feels she is milking this to the nth > degree. I'm not sure I agree with him, but sometimes it DOES seem that way! > Is this normal?? > > The other thing that I have noticed is she is very agitated in church now. > She wants to leave immediately, and tells me she isn't " pure " anymore nor > good enough to attend church. > > Someone please enlighten me......how do I begin to handle all of this? I > feel like someone has stolen my happy little girl and I have absolutely NO > clue in how to help her. > > Thanks! > > Blessings, > Tammy > The mother's heart is the child's schoolroom. > Henry Ward Beecher > > > Thank goodness I was never sent to school; it would have rubbed off some of > the originality. > Beatrix Potter > > Imagination was given to man to compensate him for what he is not; a > sense of humor to console him for what he is. > -- Sir Francis Bacon > > www.pictureparables.com > > > > > > Our list archives, bookmarks, files, and chat feature may be accessed at: http://health.groups.yahoo.com/group// . > Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi, Tammy- ((HUGS)) and welcome to the group. I know you've received a couple of other posts with great advice from parents who have been/are in your shoes. I just wanted to say 'welcome!' also and chime in about the importance of combining medication with the cognitive-behavioral therapy of exposure:response prevention. Together, these have made an enormous difference in my now 13-year-old daughter who was diagnosed at the age of 11 also. Like your daughter, Anne, too had scrupulosity with the need to confess (to me) and seek reassurance. She struggled with the feelings of God being " mad " at her for every little thing, and that she could never be " good enough " . She suffered from 'bad thoughts' also. Anne had several other OCD's also...contamination fears, a need to pray, some just-right issues, but I'm happy to report that OCD is now a more 'minor irritation' than an overwhelming monster. There is definitely hope, and this site is such a wealth of information and support...I would have been (and still would be) lost without it! I also wanted to let you know there is a kids ocd support group on yahoo also (OCDKidsSupportGroup) which has recently become more active. There are specifically about 4 or 5 girls from 10-14 years of age who are great support buddies...many of these girls share nah's symptoms. One of the greatest aids to my daughter was and is meeting other kids 'just like her'. I think there's a special bond these kids have, just like we parents have...to be able to talk to someone who truly knows and understands what you're going through. You can join the kids group and read some of the posts to see if you think your daughter would benefit....if not now, maybe later into therapy. Again, welcome. You seem to have a great handle on this OCD stuff already. nah is truly fortunate to have such an ally on her side against OCD. Blessings to you...keep posting and let us know how things are going- (Ohio) Anne (13...OCD since Oct 2002..on Lexapro & in therapy; ADHD dx'd since March 2004...on Concerta; and diabetes since February 2004...on insulin) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Tammy, My own memories of my 12 yrold daughter's OCD 'thought' suffering is still so fresh (diagnosed early May) that when reading your post, I physically ached for you and your daughter. The pain is real and enormous. My joyous engaging daughter became a shriveled up fearful mouse in a matter of days! But there is hope! Your daughter will improve. It took my daughter several weeks before we saw significant improvement and every day seemed to pass so slowly...much like waiting for a pot of water to boil. Your daughter is not 'playing you'. You described my own daughter. Your daughter's anxiety is so great that she is consumed with finding a way to reduce it. My daughter would dialogue with me 10 hrs out of 12 waking hrs and wake in the night in need. She would follow me around constantly seeking reassurance. When she and I would be talking, she would ignore any other of her sibling's need for me...even her infant brother crying. I couldn't believe how 'selfish' she had become. The OCD bug is so colossal that at a point of crisis, the child can see nothing else. It reminds me of childbirth. I would become so introspective (and brutally honest) that my demeanor would appear hateful and totally self-absorbed. OCD has the child's complete attention at times and distraction is nearly impossible. I think a CBT therapist would be helpful, but more effective when the meds have given her some relief. Early on my duaghter thought it was NOT OCD, but spiritual. She thought she liked the thoughts, that she was changing and would never be her old self and that she didn't want to be her old self. What a quagmire! My point--therapy was of no consequence because she couldn't come close to identifying an ocd thought from her own. She is now ready for therapy, but finding one is another dilemma. Sorry for the disjointedness--no time for editing. This list has been a pillar for me. You found a wonderful group of OCD experts by experience! God bless, cristey (TX) On Sun, 11 Jul 2004 23:40:34 -0400 " Tammy T. Cline " writes: > Hello, my name is Tammy. I am the parent of an 11 year old girl > named > nah, who has just been dx'd with OCD. She has just been > prescribed > Zoloft, and is in the weaning on stage of the drug. ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Tammy, My son has the same kind of OCD your daughter has-bad thoughts-sexual, gross, fear of being gay or evil, etc., etc. I can relate to everything you said. The one thing that stuck out is your father's advice to allow her to stay with him a little while to see how it does. My son goes to his aunt's house, because it somehow distracts him from his " busy brain " . I will tell you that I believe I, my son's mother, am a trigger to my son's thoughts, since I am the one he confesses to all the time, and his thoughts center around disappointing me a lot. I do let him go to his aunt's when possible, because I feel it's just a nice break for both of us. Still, his symptoms might be somewhat less bothersome while he's down there, so one week, he stayed all night every night, and I had to set a limit with that. Another thing-my son's psychiatrist told us the same thing you were told about OCD not being about issues, but that medication is really the answer. We don't see a therapist now. (We did in the past.) Talking about the OCD tends to really make his OCD worse, so the doc told us to " go with our gut " on it. It sure wasn't helping anything, so we quit. He felt it made it worse. I still (previous psych nurse) believe therapy can help in some ways. I'm sure you'll hear many tell you to be sure you get someone with training in ERP. You are not alone. The type of OCD your daughter has, I KNOW, is so distressing. It's tough to hear them tell those thoughts. You mentioned your daughter " playing " you. I think sometimes they do learn to play us. I saw somewhere about a book about parenting kids with disorders such as OCD, ADD, etc., because discipline/parenting is wholly different than with the, for lack of better word, " normal " children. I think I did an internet search about books for parents of kids with OCD or something. Sorry I can't remember the name. Medication has helped my son-Zoloft quit helping, though, so we're on the road to tapering Zoloft and starting Luvox, the OCD med. Well, good luck. in Southern Illinois introduction Hello, my name is Tammy. I am the parent of an 11 year old girl named nah, who has just been dx'd with OCD. She has just been prescribed Zoloft, and is in the weaning on stage of the drug. nah began having " bad thoughts " (her term) about 3-4 weeks ago. They were/are sexual in nature and very worrisome to her. This began the week she went to VBS with a neighbor. I am wondering if the stress she felt in a new situation (new kids, etc) triggered this. She needed constant reassurance that she was not bad, but it was as if she couldn't remember asking me....she asked over and over. This escalated into her asking me every five minutes if she was gay because she had a " bad thought " about her sister. I have explained a zillion times that such thoughts are normal, esp. when approaching puberty...but its as if she cannot hear me. The thoughts have gone on to be that she wishes I was dead, or that I am fat, or that I am a " hore " as she wrote out (she was too ashamed to say it....) or that my dh is cheating on me, or that she wants to choke her sister. All of these send her rushing to me confessing, in total distress, and wanting reassurance. (and I'm not sure where she is getting words like whore! as she is pretty sheltered...) This can happen hundreds of times a day! The last straw was when she was sobbing in the bathroom telling me she wanted to die.....then she'd be with Jesus and all the bad thoughts would go away. She told me the only reason she wouldn't kill herself is she didn't want to go to hell. This is one time I chose NOT to correct her. She's very open with people about what is going on, and seems to want to talk to anyone who will listen about her thoughts.....but I am the main checkpoint. I called to get her into therapy, and was referred to a psychiatrist because in order to get therapy, our insurance requires a psych consult. The psychiatrist talked to all of us, got a history, etc, and then had ME fill out a questionaire about nah's actions and distress level...some kind of inventory, I guess. She said it had a score of 26 which indicated some pretty severe OCD and she prescribed the Zoloft. When I asked her about Cognitive Behavioral counseling (I had a pretty good idea that Sus was OCD after talking to my pastor's wife.....her son has OCD as well.....and she had told me OCD was treated with meds and therapy) she told me that because nah had not had any trauma to speak of, therapy was not needed, this was totally chemical......and once the drugs kicked in, she would be better. I'm not sure how I feel about this. I am also not sure how to tell when nah is " playing me " or even IF she is playing me, and when she is really having a hard time. Right now I try and distract her, (which does sometimes work) or I tell her " I love you....you need to kick this OCD's butt......don't let it kick yours! " Or..... " a thought is just a thought.....nothing more, nothing less " . When she tells me she hates her life, I tell her that life is a gift from God and she needs to choose to embrace it not hate it.....I have tried to give her some strategies.....try to visualize changing the tape, write bad a bunch of times in the drawing of a brain and whenever a bad thought happens, cross out the word bad, think a good thought, and write the word good, etc. I think the meds will have to kick in before she can handle this, though. Its weird, though.....today she did really well......very few episodes, and easily distracted from the ones she had......other days shes a basket case. My dad is after me to allow her to spend a few days to see how she does when I'm not around....she can be in a total panic, and then seem to just " turn it off " . He thinks she has issues, but feels she is milking this to the nth degree. I'm not sure I agree with him, but sometimes it DOES seem that way! Is this normal?? The other thing that I have noticed is she is very agitated in church now. She wants to leave immediately, and tells me she isn't " pure " anymore nor good enough to attend church. Someone please enlighten me......how do I begin to handle all of this? I feel like someone has stolen my happy little girl and I have absolutely NO clue in how to help her. Thanks! Blessings, Tammy The mother's heart is the child's schoolroom. Henry Ward Beecher Thank goodness I was never sent to school; it would have rubbed off some of the originality. Beatrix Potter Imagination was given to man to compensate him for what he is not; a sense of humor to console him for what he is. -- Sir Francis Bacon www.pictureparables.com Our list archives, bookmarks, files, and chat feature may be accessed at: http://health.groups.yahoo.com/group// . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 WELCOME!!! Dawn, as you can tell with our spanking "conversation" going -- we all do child rearing differently---as well as do Autism differently. You will find much support on this site --- it is one of my favorites. Very comfortable place to vent, to speak, and to respectfully disagree Graces for a terrific day, e To: AutismBehaviorProblems Sent: Monday, October 27, 2008 10:26:29 AMSubject: introduction Hi there,My name is Dawn. I have been a part of the grup but never posted. I eralized I had never introduced myself.I have 4 children. I was a single mom for 9 years , I have been married to my awesome husband since 12/06. My oldest son is 13(Pickle), major attitude comes with that teen number,lol. He is ADHD was diagnosed in 3rd grade, He was taking strattera until about 4 months ago when the dr switched him to Concerta(which I don't think is working) Next son is 11 (Bubba) also adhd , diagnosed in 1st grade was also on strattera until about 4 mo ago and then also switched to concerta, he is having a hard time this year. The school does not want to do a 504 or and iep plan for him. Next child is my step daughter who is 7 (Sky) who is autistic(diagnosed at 2)/bipolar (diagnosed at 6), adhd and I'm sure a few undiagnosed , she takes depakote, abilify, tenex, not taking anything for the hyperactivity yet, we have had a time just getting the bipolar under control. She wakes about every 2 hours all night long. When little she would stay up until 3am and then have to be up at 6 to get ready for day care. Last year she was kicked out of school a month early due to the principle saying she was a danger to others. She would kick, push , throw objects.This year she has a one on one teacher and is in a classroom by herself, she is starting small group stuff. But had a set back last week when in group. I think they are rushing to put her back with everyone else to quickly. Sky actually goes to a school out of town, which the bus takes her(she wears a 4 ring harness), and until today I would pick her up everyday(last week the bus driver told me they could pick her up and bring her home also, which was told to us they could not do before. We didn't pick the school she was to go to that was the school district. Then last but not least is my last son 13 mo. (Butter) so far he is as normal as my other boys were at this age. Started crawling at 8 mo, walking at 11 mo. "Oh wow" are his favorite words right now, my 13 year old taught them to him,lol. He adores his brothers. He does not spend much time with Sky because she has in the past pushed him as he walks, and poked him when she sits near him. I think there might be a jealousy issue with Daddy, She doesn't want to share him with baby. Daddy isn't home much(because of gas, food yadayada) he works 2 jobs during the week and 2 on the weekend as well. But she sees him at least 3 hours everyday after school. Weekends are tough for her. She gets daddy in the morning on Saturday, then doesn't really see him again until after school on Monday.So that's me and it's nice to meet all of you.Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Hi all,Thank you all for letting me be part of the group. i am working towards getting my Educational Assistant Graduate Certificate to work with children with special needs in the school board. I have learned tremendous educated information through this group. I am not sure,what is Strattera ? is it same like Ritalin or better. i will appreciate if anyone inform me about this.Asfia ImranTo: AutismBehaviorProblems Sent: Monday, October 27, 2008 12:09:25 PMSubject: Re: introduction WELCOME!!! Dawn, as you can tell with our spanking "conversation" going -- we all do child rearing differently- --as well as do Autism differently. You will find much support on this site --- it is one of my favorites. Very comfortable place to vent, to speak, and to respectfully disagree Graces for a terrific day, e From: tobewilkinson <tobewilkinson@ yahoo.com>To: AutismBehaviorProbl emsyahoogroups (DOT) comSent: Monday, October 27, 2008 10:26:29 AMSubject: introduction Hi there,My name is Dawn. I have been a part of the grup but never posted. I eralized I had never introduced myself.I have 4 children. I was a single mom for 9 years , I have been married to my awesome husband since 12/06. My oldest son is 13(Pickle), major attitude comes with that teen number,lol. He is ADHD was diagnosed in 3rd grade, He was taking strattera until about 4 months ago when the dr switched him to Concerta(which I don't think is working) Next son is 11 (Bubba) also adhd , diagnosed in 1st grade was also on strattera until about 4 mo ago and then also switched to concerta, he is having a hard time this year. The school does not want to do a 504 or and iep plan for him. Next child is my step daughter who is 7 (Sky) who is autistic(diagnosed at 2)/bipolar (diagnosed at 6), adhd and I'm sure a few undiagnosed , she takes depakote, abilify, tenex, not taking anything for the hyperactivity yet, we have had a time just getting the bipolar under control. She wakes about every 2 hours all night long. When little she would stay up until 3am and then have to be up at 6 to get ready for day care. Last year she was kicked out of school a month early due to the principle saying she was a danger to others. She would kick, push , throw objects.This year she has a one on one teacher and is in a classroom by herself, she is starting small group stuff. But had a set back last week when in group. I think they are rushing to put her back with everyone else to quickly. Sky actually goes to a school out of town, which the bus takes her(she wears a 4 ring harness), and until today I would pick her up everyday(last week the bus driver told me they could pick her up and bring her home also, which was told to us they could not do before. We didn't pick the school she was to go to that was the school district. Then last but not least is my last son 13 mo. (Butter) so far he is as normal as my other boys were at this age. Started crawling at 8 mo, walking at 11 mo. "Oh wow" are his favorite words right now, my 13 year old taught them to him,lol. He adores his brothers. He does not spend much time with Sky because she has in the past pushed him as he walks, and poked him when she sits near him. I think there might be a jealousy issue with Daddy, She doesn't want to share him with baby. Daddy isn't home much(because of gas, food yadayada) he works 2 jobs during the week and 2 on the weekend as well. But she sees him at least 3 hours everyday after school. Weekends are tough for her. She gets daddy in the morning on Saturday, then doesn't really see him again until after school on Monday.So that's me and it's nice to meet all of you.Dawn Yahoo! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Hi Asfia,welcome! The med Strattera is Atomoxetine Hydrochloride. It is prescribed/ approved for treating ADHD in pediatric and adult patients. It carries warnings for use in children and adolescents because of risk of suicidal ideation. Best wishes, Tishanne -- In AutismBehaviorProblems , Asfia Imran wrote: > > Hi all, > Thank you all for letting me be part of the group. i am working towards getting my Educational Assistant Graduate Certificate to work with children with special needs in the school board. I have learned tremendous educated information through this group. I am not sure,what is Strattera ? is it same like Ritalin or better. i will appreciate if anyone inform me about this. > > Asfia Imran > > > > > > ________________________________ > > To: AutismBehaviorProblems > Sent: Monday, October 27, 2008 12:09:25 PM > Subject: Re: introduction > > > WELCOME!!! > > Dawn, as you can tell with our spanking " conversation " going -- we all do child rearing differently- --as well as do Autism differently. You will find much support on this site --- it is one of my favorites. Very comfortable place to vent, to speak, and to respectfully disagree > > Graces for a terrific day, > e > > > > > > ________________________________ > From: tobewilkinson <tobewilkinson@ yahoo.com> > To: AutismBehaviorProbl emsyahoogroups (DOT) com > Sent: Monday, October 27, 2008 10:26:29 AM > Subject: introduction > > > Hi there, > > My name is Dawn. I have been a part of the grup but never posted. I > eralized I had never introduced myself. > I have 4 children. I was a single mom for 9 years , I have been > married to my awesome husband since 12/06. My oldest son is 13 > (Pickle), major attitude comes with that teen number,lol. He is ADHD > was diagnosed in 3rd grade, He was taking strattera until about 4 > months ago when the dr switched him to Concerta(which I don't think > is working) Next son is 11 (Bubba) also adhd , diagnosed in 1st grade > was also on strattera until about 4 mo ago and then also switched to > concerta, he is having a hard time this year. The school does not > want to do a 504 or and iep plan for him. Next child is my step > daughter who is 7 (Sky) who is autistic(diagnosed at 2)/bipolar > (diagnosed at 6), adhd and I'm sure a few undiagnosed , she takes > depakote, abilify, tenex, not taking anything for the hyperactivity > yet, we have had a time just getting the bipolar under control. She > wakes about every 2 hours all night long. When little she would stay > up until 3am and then have to be up at 6 to get ready for day care. > Last year she was kicked out of school a month early due to the > principle saying she was a danger to others. She would kick, push , > throw objects.This year she has a one on one teacher and is in a > classroom by herself, she is starting small group stuff. But had a > set back last week when in group. I think they are rushing to put her > back with everyone else to quickly. Sky actually goes to a school > out of town, which the bus takes her(she wears a 4 ring harness), and > until today I would pick her up everyday(last week the bus driver > told me they could pick her up and bring her home also, which was > told to us they could not do before. We didn't pick the school she > was to go to that was the school district. Then last but not least > is my last son 13 mo. (Butter) so far he is as normal as my other > boys were at this age. Started crawling at 8 mo, walking at 11 > mo. " Oh wow " are his favorite words right now, my 13 year old taught > them to him,lol. He adores his brothers. He does not spend much time > with Sky because she has in the past pushed him as he walks, and > poked him when she sits near him. I think there might be a jealousy > issue with Daddy, She doesn't want to share him with baby. Daddy > isn't home much(because of gas, food yadayada) he works 2 jobs during > the week and 2 on the weekend as well. But she sees him at least 3 > hours everyday after school. Weekends are tough for her. She gets > daddy in the morning on Saturday, then doesn't really see him again > until after school on Monday. > > So that's me and it's nice to meet all of you. > > Dawn > > > > > > __________________________________________________________________ > Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now at > http://ca.toolbar.yahoo.com. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 I have a really good book you may find at amazon or other used book sales, Title: Medications for School-aged Children;Effects on Learning and Behavior. T. Brown and G. Sawyer It great for principles of pharmacological approaches to learning and behavior problems in children and adolescents. A real must have if you work with children,or have some.lol Best wishes, Tishanne > > > > Hi all, > > Thank you all for letting me be part of the group. i am working > towards getting my Educational Assistant Graduate Certificate to work > with children with special needs in the school board. I have learned > tremendous educated information through this group. I am not > sure,what is Strattera ? is it same like Ritalin or better. i will > appreciate if anyone inform me about this. > > > > Asfia Imran > > > > > > > > > > > > ________________________________ > > From: Two Blessings <ljdjd1234@> > > To: AutismBehaviorProblems > > Sent: Monday, October 27, 2008 12:09:25 PM > > Subject: Re: introduction > > > > > > WELCOME!!! > > > > Dawn, as you can tell with our spanking " conversation " going -- we > all do child rearing differently- --as well as do Autism > differently. You will find much support on this site --- it is one > of my favorites. Very comfortable place to vent, to speak, and to > respectfully disagree > > > > Graces for a terrific day, > > e > > > > > > > > > > > > ________________________________ > > From: tobewilkinson <tobewilkinson@ yahoo.com> > > To: AutismBehaviorProbl emsyahoogroups (DOT) com > > Sent: Monday, October 27, 2008 10:26:29 AM > > Subject: introduction > > > > > > Hi there, > > > > My name is Dawn. I have been a part of the grup but never posted. I > > eralized I had never introduced myself. > > I have 4 children. I was a single mom for 9 years , I have been > > married to my awesome husband since 12/06. My oldest son is 13 > > (Pickle), major attitude comes with that teen number,lol. He is > ADHD > > was diagnosed in 3rd grade, He was taking strattera until about 4 > > months ago when the dr switched him to Concerta(which I don't think > > is working) Next son is 11 (Bubba) also adhd , diagnosed in 1st > grade > > was also on strattera until about 4 mo ago and then also switched > to > > concerta, he is having a hard time this year. The school does not > > want to do a 504 or and iep plan for him. Next child is my step > > daughter who is 7 (Sky) who is autistic(diagnosed at 2)/bipolar > > (diagnosed at 6), adhd and I'm sure a few undiagnosed , she takes > > depakote, abilify, tenex, not taking anything for the hyperactivity > > yet, we have had a time just getting the bipolar under control. She > > wakes about every 2 hours all night long. When little she would > stay > > up until 3am and then have to be up at 6 to get ready for day care. > > Last year she was kicked out of school a month early due to the > > principle saying she was a danger to others. She would kick, push , > > throw objects.This year she has a one on one teacher and is in a > > classroom by herself, she is starting small group stuff. But had a > > set back last week when in group. I think they are rushing to put > her > > back with everyone else to quickly. Sky actually goes to a school > > out of town, which the bus takes her(she wears a 4 ring harness), > and > > until today I would pick her up everyday(last week the bus driver > > told me they could pick her up and bring her home also, which was > > told to us they could not do before. We didn't pick the school she > > was to go to that was the school district. Then last but not least > > is my last son 13 mo. (Butter) so far he is as normal as my other > > boys were at this age. Started crawling at 8 mo, walking at 11 > > mo. " Oh wow " are his favorite words right now, my 13 year old > taught > > them to him,lol. He adores his brothers. He does not spend much > time > > with Sky because she has in the past pushed him as he walks, and > > poked him when she sits near him. I think there might be a jealousy > > issue with Daddy, She doesn't want to share him with baby. Daddy > > isn't home much(because of gas, food yadayada) he works 2 jobs > during > > the week and 2 on the weekend as well. But she sees him at least 3 > > hours everyday after school. Weekends are tough for her. She gets > > daddy in the morning on Saturday, then doesn't really see him again > > until after school on Monday. > > > > So that's me and it's nice to meet all of you. > > > > Dawn > > > > > > > > > > > > > __________________________________________________________________ > > Yahoo! Canada Toolbar: Search from anywhere on the web, and > bookmark your favourite sites. Download it now at > > http://ca.toolbar.yahoo.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Yes I certainly do take great joy in s acomplishments! I just love it!StacieSent via BlackBerry by AT&TDate: Fri, 31 Oct 2008 11:20:57 +0000 (GMT Standard Time)To: <AutismBehaviorProblems >Subject: Re: Introduction Thanks, Stacie! It's so nice to meet you. Sounds like you really have your hands full. In a way, I feel lucky because when my son achieves something, it is never taken for granted. It's just so exciting to see his progress even if it isn't always in leaps and bounds. I would imagine that outside of the stress, you probably also take great joy in those achievements. Hugs, Steph -------Original Message------- From: hawkie6aolDate: 31/10/2008 02:27:31To: AutismBehaviorProblems Subject: Re: Introduction Hi and welcome to our group. you will really like it here. Everyone is so helpful. My name is Stacie and I live in IL. I am married to Jim and have 3 kids. Lexie will be 13 on the 15th of Nov., is 10 and has a tic disorder and she was just diagnosed with high functioning Autism and sensory integration in May. My son is 5 and he has a seizure disorder, Autism, sensory integration, visual processing, which he now has glasses for, and we are getting his hearing tested on the 11th, because we believe he has auditory processing as well. He is untestable to do a regular hearing test on him. Anyhow, I know what you mean about stress. It has been very hard for me lately. Especially in the last 4 weeks with things going on and even now, things are going on, like the teacher not getting back to me when I call, email, write letters in our notebook etc. I am talking about s teacher. He is in an Autism K class. I know what you mean and we are all here to support you and one another. Welcome to the group. I am glad you joined. Stacie In a message dated 10/30/2008 11:52:36 A.M. Pacific Daylight Time, missbizzylizzygmail writes: Hello to everyone! I just sent a message into the group and realized that no one has any clue who I am. LOL I have only just joined the group. My name is and I live here in the UK with my husband (11 year anniversary just the other day). We have two children, Lizzy (4) and (6). is autistic and things have been really stressful lately. I'm sure that people in this group know what it's like so I don't assume that I am any worse off than anyone else. It just happened that it was a very bad week last week and I felt like it would be helpful to talk to others who are in the same boat. Thanks for having me in your group. Cheers, Steph P.S. Forgot to say that I am 41. Aaaaargh!!!! Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Hi Steph, welcome here! I am Astrid, aged 22 and I live in the Netherlands. I have autism myself, no children. I hope you find a supportive community here. Astrid astrid@... http://www.astridvanwoerkom.com/ I'm protected by SpamBrave http://www.spambrave.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Welcome to the group, . My name is Pat K and I am the grandmother of a 16 year old autistic grandson. I diagnosed him when he was almost 3 and I have worked with him daily since. You are fortunate to have a husband who is a stay at home dad who can work with him. If Karac had not had to go to the public school I believe he would be much higher functioning. His progress stopped when he started to school. I hope you can continue to work with your son at home. blessings, Pat K Not sure of the protocol here, but I thought I would just quicklyintroduce myself.My name is and I have a nearly 6 year old son with autism. Weknew there was something wrong at 12 months and got the final wordwhen he was almost 2 1/2. He has been in speech, OT, various behavior therapies and is currentlyhomeschooled by my husband (he is a stay at home dad) for Kindergarten.Zach is mostly a sensory seeker with anxiety issues and hyperactivity.One of my big areas for supporting him is through sensory supportsand the like. One reason that we are currently homeschooling is forhim to be able to have a rich sensory diet-he gets a lot of active(swimming, running, swinging) throughout the day where in school thatwouldn't be as available to him.One of our biggest and most continuing challenges with him is hisbiting. Currently, he mainly bites his own hands. Previously,hewould go after just about anyone, for a variety of reasons. It was sofrustrating to deal with that, not to mention anxious (as a parent)when we went out. I bet this is way too long.Anyway, I'm looking forward to finding new ideas and approaches. One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hello everyone, My daughter was diagnosed with "classic autism" a couple of weeks ago they told us she wasn't on the spectrum because it's a severe case but looking at Google it says she's on the most severe end of it so I guess I'll have to ask her paediatrician when I next see her.I've stayed quiet for a while in the hopes I could gather more information see me and my husband always knew she had it but all along everyone told us it was just mild and I guess I started believing that. When we went for her diagnosis and they ran some tests with her the news was just absolutely shocking I think I even lost hearing for a bit and was finding it really hard to fight back the tears I'm not devastated that she has it but to know it's severe..WOW! Anyway regarding school I think we got her in the best and we're so lucky with that here's the link if anyone is interested: http://www.springwell.southampton.sch.uk/school/index.htm It has sensory rooms,hydrotherapy pools the works and it's only for special children we were told there were only 8 places left so I'm very happy. My question is or should I say problem is that she's 4yrs old and I'd really like to potty train her but she has this thing that if she is indoors her pj's need to be on I took her bottoms off the other day and placed the potty in the centre of the room but the moment her pajama bottoms were off hell broke loose..she cried started lashing out at me and kept telling me her legs were broken(her word for anything not right) can anyone suggest what I can do as I'm afraid time is running out she's already on the last size for nappies now. Thank you for letting me in your wonderful group there's been lots of things come up that have helped me in such a big way! Free 3D Marine Aquarium Screensaver - Watch dolphins, sharks & orcas on your desktop! Check it out at http://www.crawler.com/marineaquarium Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Thank you so much mel! I haven't heard one word from her health visitor not even sure who she is so I'll have to trace up and find out the nappies are really expensive so that will come in handy big time she has so many appointments coming up too between her and trying to lose weight I feel like I'm fighting a losing battle but I'll take on board what you've said I don't want to do the wrong thing by pushing her. -- Re: [!! SPAM] INTRODUCTION Hi Fawn Important things first - you are in Hampshire and therefore should get free nappies or pullups. Your health visitor will arrange it with you. They are delivered once every 8 weeks and you get 4 per day. Personally I wouldn't rush into toilet training. Give yourself some time to get over the news. The school looks lovely. My son is 7 and goes to a school here in the UK in Farnborough for children with special needs. It is the best thing we have done for him as he loves it. You are right in what you say - your daughter is on the spectrum if the ped. says she has autism and yes it is on the severe end of the spectrum if she has a dx of severe autism. Alot of children do change there dx. of autism as they grow up and maybe learn skills like communication and social skills. Take care [!! SPAM] INTRODUCTION Hello everyone, My daughter was diagnosed with "classic autism" a couple of weeks ago they told us she wasn't on the spectrum because it's a severe case but looking at Google it says she's on the most severe end of it so I guess I'll have to ask her paediatrician when I next see her.I've stayed quiet for a while in the hopes I could gather more information see me and my husband always knew she had it but all along everyone told us it was just mild and I guess I started believing that. When we went for her diagnosis and they ran some tests with her the news was just absolutely shocking I think I even lost hearing for a bit and was finding it really hard to fight back the tears I'm not devastated that she has it but to know it's severe..WOW! Anyway regarding school I think we got her in the best and we're so lucky with that here's the link if anyone is interested: http://www.springwell.southampton.sch.uk/school/index.htm It has sensory rooms,hydrotherapy pools the works and it's only for special children we were told there were only 8 places left so I'm very happy. My question is or should I say problem is that she's 4yrs old and I'd really like to potty train her but she has this thing that if she is indoors her pj's need to be on I took her bottoms off the other day and placed the potty in the centre of the room but the moment her pajama bottoms were off hell broke loose..she cried started lashing out at me and kept telling me her legs were broken(her word for anything not right) can anyone suggest what I can do as I'm afraid time is running out she's already on the last size for nappies now. Thank you for letting me in your wonderful group there's been lots of things come up that have helped me in such a big way! Free 3D Marine Aquarium Screensaver - Watch dolphins, sharks & orcas on your desktop!Check it out at http://www.crawler.com/marineaquarium One-click Webmail Access - Easily monitor access your email accounts! Visit http://www.crawler.com/notifier and check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 welcome Fawn...you'll find the help you need here. e To: AutismBehaviorProblems Sent: Monday, November 24, 2008 2:31:30 AMSubject: INTRODUCTION Hello everyone, My daughter was diagnosed with "classic autism" a couple of weeks ago they told us she wasn't on the spectrum because it's a severe case but looking at Google it says she's on the most severe end of it so I guess I'll have to ask her paediatrician when I next see her.I've stayed quiet for a while in the hopes I could gather more information see me and my husband always knew she had it but all along everyone told us it was just mild and I guess I started believing that. When we went for her diagnosis and they ran some tests with her the news was just absolutely shocking I think I even lost hearing for a bit and was finding it really hard to fight back the tears I'm not devastated that she has it but to know it's severe..WOW! Anyway regarding school I think we got her in the best and we're so lucky with that here's the link if anyone is interested: http://www.springwe ll.southampton. sch.uk/school/ index.htm It has sensory rooms,hydrotherapy pools the works and it's only for special children we were told there were only 8 places left so I'm very happy. My question is or should I say problem is that she's 4yrs old and I'd really like to potty train her but she has this thing that if she is indoors her pj's need to be on I took her bottoms off the other day and placed the potty in the centre of the room but the moment her pajama bottoms were off hell broke loose..she cried started lashing out at me and kept telling me her legs were broken(her word for anything not right) can anyone suggest what I can do as I'm afraid time is running out she's already on the last size for nappies now. Thank you for letting me in your wonderful group there's been lots of things come up that have helped me in such a big way! Free 3D Marine Aquarium Screensaver - Watch dolphins, sharks & orcas on your desktop!Check it out at http://www.crawler. com/marineaquari um Quote Link to comment Share on other sites More sharing options...
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