Update from Ginger

[Guest guest]

Hi all! It's been a long time since I've posted...in fact, I'm not

really for certain when the last time really was, but I have tried

to keep up with reading the board and being acquainted with all the

new members. So, even though I've been silent..I've tried to keep

everyone in my thoughts My CBCs kept getting worse during the

summer, with my RBCs and WBCs continuing to get lower...esp. my

Tcells and my Hgb. For whatever reason, my Hemotologist decided to

call my mother in Florida (I think he MEANT well, since the husband

had left...but my mom and i have always been DYSFUNCTIONAL)and she

proceeded to come NURSE me in my " FINAL DAYS " during Aug/Sept.This

only p* & * & d me and the three kids off even more than we already were

at our situation, because she was going thru her beginning stages of

my cirrhosis which we had dealt with almost a year ago. She just

could not comprehend that we were not wanting to repeat that part of

our lives again, just to accomadate her emotional well-being :$ So,

she drove me from doctor to doctor and kept asking why? why? why?

instead of letting us move forward with my treatments and I just

continued to get worse instead of better, because she would not SHUT

UP!!! Can you feel the Love? FINALLY, my mom went home to

Florida and I should have blown a head gasket when she was here,

because instead of staying there...she decided that her and her

hubby needed to uproot their lives and relocate to be here in

Indiana for me and my children, as I was surely going to meet my

maker soon! This, I was told not from her, but my little

sister...after my mom had sold their house, bought one here, packed

a uhaul and was somewhere in Tennessee! Of course my little sister

was all excited that mom was coming home to " baby " her, but I knew

better....UGH!!!! Well they got here and tried to bully me into

signing power of attorneys, guardianships, saving accts co/members,

etc., etc. and finally I had to say ENOUGH!!!!!!! She didn't

understand, and she still doesn't, but I am finally back in

control. The kids are stress free and happy and I have a wonderful

fiance/caregiver and a lot of new findings/treatments/changes. I

tried to explain to mom I need support to LIVE and be happy, not

die...she's still working on that one. I've finally given her some

projects like the kid's problems at school to undertake and that

works a little for now. We've found that my body is not producing

iron at all. So, I've had a port inserted and have begun IViron.

The spleen is destroying the WBC and RBC...jurys still out on what

to do. And we still are unsure as to where the cirrhosis comes

from, but I'm going to get more assertive with the hepo in a couple

of weeks. Sorry I've rambled on, hugs to all, Ginger