Re: Welcome Janice

[Guest guest]

Welcome Janice,

I've been off list for a bit finding my sanity. I realized when I came back

that I had originally joined just 1 month after it started (or there abouts). I

have 2 children, is 10 years old, Down syndrome, was diagnosed autistic,

but just had the diagnosis lowered down to PDD-NOS and they dropped the former

diagnosis of ADHD and ODD, and added (or are about to) celiac disease. I also

have a 19 month old, , typical, but very strong-willed. He was at the

evaluation (or re-evaluation) of and the doctor thought he was 2. He's

further along than other kids I know his age. I homeschool both (though just

work on colors and counting with ). As you probably noticed from my

previous posts, we're getting ready to retire from the Navy, and beautiful

Hawaii, and go back to Illinois where the seasons actually change.

This is a good list, lots of support and good advice. I remember how happy I

was to hear other people describe my child in theirs. is mostly verbal

now, just doesn't have proper sentence structure. He's actually learning from

his brother, well from trying to communicate his wants and needs to his brother.

They play well together.

Wife to Dewight

Mom to , 10 yrs, DS, PDD-NOS and celiac

and , 19 months and strong-willed

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[Guest guest]

Welcome Janice. I have CMT 2. I live in Minnesota and my name is Geri.

[Guest guest]

Hi Janice and welcome!

I too have had dislocations, my knees a lot when I was younger, but

thankfully with age and exercise these are getting stronger. Most recently I

have knocked my elbow out of joint. It was strange because I think it went the

" wrong way out " meaning not the usual dislocation. I have very loose and

unstable joints. The elbow was a shock, but due to my knees I reduced it (with

some help from a person holding my wrist while I pulled), and have so far

avoided the doctor but will ask to see one to get some stabilising and

strengthening exercises and also a scan to make sure it is ok.

This is a great group for information. I have quite asymptomatic CMT and

sometimes do not relate 100% to everything said here, but I appreciate the

honesty and openness on the list. Also the wealth of information and studies.

And the sharing of experiences, what works and doesn't. It is a place to come

to learn and personally I prefer the positive discussions and motivations.

Best wishes,

Donna from London

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