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Hello, My name is and I'm a new mum with an MDS baby boy,

. He is 24 days old and such a good baby. If he hadn't been

born with a cleft lip and palate he would not have had the genetics

blood test that showed he has about 8%MDS.

I've been trying to read everything i can on MDS but still am

confused about how this gene can present itself.I would really like

to hear from others on what they first experienced with their MDS

children and at what ages.

Thanks

<mum of 24 days old MDS>

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