Re: Toes & Fingers wiggling at random

[Guest guest]

I try wiggling my toes and nothing happens. The big one moves and that's about

it. Sounds like a good thing to be able to wiggle your toes, Ed. I say keep on

doing it.

When I had my foot surgery, the nurses kept coming by and wiggling my toes,

asking if I could feel them. Of course I said no, and then added that I couldn't

before surgery either. They would ask why and I'd tell them I have neuropathy.

Then they'd ask if I was diabetic, I'd tell them I have Charcot-Marie-Tooth and

they'd say " What's that? " .

I finally had them print out some info on CMT and post it in the nurses

station.

O

[Guest guest]

Eddie,

No. I wiggle my toes when I want.

If your random wiggling and finger movements are bothersome, it may be

from too much electrical activity getting to the peripheral nerves.

Talk to your doctor about this - perhaps a medication may be helpful.

~ Gretchen

[Guest guest]

My fingers do that after I fall asleep...so I'm told.

Geri

[Guest guest]

Hi Eddie,

Although I do not do the wiggle thing, I have had a habit of constantly

moving my right foot (mainly). Sometimes I notice I am doing it and I drive

myself nuts! It is a new acquired habit that I cannot seem to stop. It is

almost like I " have " to do it. It is hard to sleep sometimes because of the

movement. I can seem to control it when I am around others, but at home,

look out! It goes a mile a minute!! I have noticed that the more I do it

the less the foot falls asleep.

Teri, PA

[Guest guest]

Hey,

Just had a chuckle. I also can not wiggle my toes. I THINK I can

sort of move the big toes IF I really concentrate. I have bi-lateral

neuropathy and I can not tell you how many times I have been asked by

medical personel if I have diabetes. No one knows what CMT is!

Amazingly, I have run into two people, in the last year, who know of

someone with CMT so -- there are some people out there who have heard

of it, but it is up to us to educate those we meet!

[Guest guest]

I can wiggles some toes now that I have been taking vitamin C.