Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 This original message from Onnie, is our church secretary. I know how devastated I was to find out about Nate's Down Syndrome...just try and imagine what this family is going through. Please pray for God's will to be done and to give them strength and heal them mentally. I know I can count on you all, after all you are my friends. Oh, and don't forget to look at all the little ones around you and consider yourselves truly blessed. Sue Shaw FW: Prayer request > Onnie sent the following request for our prayers. Thanks for keeping this > family in your prayers. > > Doug > > > Please keep the family of new-born Christian in your prayers and > those of your church families. Christian was born Thursday and taken > immediately to Cardinal Glennon Children's Hospital. He is the son of Matt > and Jen (Rovang) . > > Apparently during the second week after conception, when the brain was > supposed to divide into two hemispheres, it did not and Christian was born > with no eyes and such a severe cleft palate that he has only a flap for a > nose. He is being tube fed at the moment since he has no soft palate. The > doctors are not very hopeful but say he could live this way for 6-8 weeks, > 6-8 months or 6-8 years. They just don't know. Matt and Jen need to be > surrounded with love at this time as well as their families. > > I will try to keep you posted. > > Thanks for your prayers! > > Onnie:-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Kristy Adin in our prayers and the rest of the family. Please keep us updated! a and Family > Hi Everyone, > I don't usually do this in our group, but I am in deep > need of prayer. Last night, at 11:35pm my grandson, > Adin was born. His esophagus is deformed and not > working properly. He can not breath on his own and > also, he has a heart murmur. He was transported to > Texas Children's Hospital in Houston last night and my > son is waiting on his wife to be released from the > hospital this morning so that they can go to be with > the baby. They are going to do surgery on him sometime > today. > My son and his wife already have 2 other sons. One is > 3 yrs. old and doing fine and one is 1 1/2 and he has > CMV. This is a disorder that causes physical and > mental handicaps. > Thank you all! > Kristy > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Kristy: Your grandson, Adin is in our thoughts and prayers. Keep us posted. Sharon (mom to Matt 7, MDS and 9) Last night, at 11:35pm my grandson, Adin was born. His esophagus is deformed and not working properly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Kristi, I didn't know you were expecting a grandchild. We want to hear more details once the issues with his esophagus are dealt with. We will certainly be praying for the baby today as well as the doctors, mom & dad, and g-ma too. Hope kristy colvin wrote: Hi Everyone, I don't usually do this in our group, but I am in deep need of prayer. Last night, at 11:35pm my grandson, Adin was born. His esophagus is deformed and not working properly. He can not breath on his own and also, he has a heart murmur. He was transported to Texas Children's Hospital in Houston last night and my son is waiting on his wife to be released from the hospital this morning so that they can go to be with the baby. They are going to do surgery on him sometime today. My son and his wife already have 2 other sons. One is 3 yrs. old and doing fine and one is 1 1/2 and he has CMV. This is a disorder that causes physical and mental handicaps. Thank you all! Kristy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Oh Kristy, our prayers are with your family and little Adin. We will put him and all of you on are church prayer line today. Please let us all know how he is doing. God bless, Sharon and family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Thank You for asking Kristy! We are lifting Adin up in prayer as well as you and your entire family. May you find peace which passes all understanding in the midst of this very difficult time. God, please be with Adin ... Barb prayer request Hi Everyone,I don't usually do this in our group, but I am in deepneed of prayer. Last night, at 11:35pm my grandson,Adin was born. His esophagus is deformed and notworking properly. He can not breath on his own andalso, he has a heart murmur. He was transported toTexas Children's Hospital in Houston last night and myson is waiting on his wife to be released from thehospital this morning so that they can go to be withthe baby. They are going to do surgery on him sometimetoday.My son and his wife already have 2 other sons. One is3 yrs. old and doing fine and one is 1 1/2 and he hasCMV. This is a disorder that causes physical andmental handicaps.Thank you all!Kristy__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Kristy, Our thoughts and prayers are with you and your family. Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 My prayers are with Adin and his family. Please keep us posted. God is with you, no matter what. Beth prayer request Hi Everyone,I don't usually do this in our group, but I am in deepneed of prayer. Last night, at 11:35pm my grandson,Adin was born. His esophagus is deformed and notworking properly. He can not breath on his own andalso, he has a heart murmur. He was transported toTexas Children's Hospital in Houston last night and myson is waiting on his wife to be released from thehospital this morning so that they can go to be withthe baby. They are going to do surgery on him sometimetoday. My son and his wife already have 2 other sons. One is3 yrs. old and doing fine and one is 1 1/2 and he hasCMV. This is a disorder that causes physical andmental handicaps.Thank you all!Kristy__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Kristy , So very sorry to hear about Adin .We'll be thinking and praying here in the UK for you and your family, Bill, Judy ,katie Re: prayer request Kristy: Your grandson, Adin is in our thoughts and prayers. Keep us posted.Sharon (mom to Matt 7, MDS and 9) Last night, at 11:35pm my grandson,Adin was born. His esophagus is deformed and notworking properly. Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 You and your family are in our thoughts and prayers. , Ariel, Jaedyn & is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Dear Kristy- Our prayers are with you and your family. You will be in our thoughts - please update us on Aidin's condition. Ellen Kugel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2002 Report Share Posted May 12, 2002 Hi Kristy, I have just read your post today about your grandson. I will be praying that everything is alright. Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 I am asking my friends on all of the lists I belong to to pray for . He has autism and severe crohn's disease. He knows that HBOT would alleviate many of his problems, and we are raising funds toward getting it, but it's just not happening fast enough. has an abscess and narrowing in his intestines. He has requested that the abscess be removed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 There is this place that does free HBOT for military. And there may be other places that offer free services for some. I have seen it. Its worth a try to call up all the HBOT places. Also, there is renting HBOT machines, sharing them, etc. I think if you searched the Yahoo Groups on HBOT, maybe you can find some more information on this. And also, call all the HBOT places and ask them. If they don't offer free services, they may know who does. If this is the route you feel will work for , then keep asking around, you will find something. Heidi N (I prayed as well) > > > I am asking my friends on all of the lists I belong to to pray for . He has autism and severe crohn's disease. He knows that HBOT would alleviate many of his problems, and we are raising funds toward getting it, but it's just not happening fast enough. has an abscess and narrowing in his intestines. He has requested that the abscess be removed > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 My thoughts and prayers are with you.Nora I am asking my friends on all of the lists I belong to to pray for . He has autism and severe crohn's disease. He knows that HBOT would alleviate many of his problems, and we are raising funds toward getting it, but it's just not happening fast enough. has an abscess and narrowing in his intestines. He has requested that the abscess be removed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Just throwing it out there, I have NO idea if this will work or not. If u dont have enough funds for HBOT and cant find a place that will offer you free services, maybe u can try the Valkion until u do find funds/services? Dr K says its better than HBOT. Shanthi Re: prayer request There is this place that does free HBOT for military. And there may be other places that offer free services for some. I have seen it. Its worth a try to call up all the HBOT places. Also, there is renting HBOT machines, sharing them, etc. I think if you searched the Yahoo Groups on HBOT, maybe you can find some more information on this. And also, call all the HBOT places and ask them. If they don't offer free services, they may know who does. If this is the route you feel will work for , then keep asking around, you will find something.Heidi N(I prayed as well)>> > I am asking my friends on all of the lists I belong to to pray for . He has autism and severe crohn's disease. He knows that HBOT would alleviate many of his problems, and we are raising funds toward getting it, but it's just not happening fast enough. has an abscess and narrowing in his intestines. He has requested that the abscess be removed> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Where do you live? My friend has a clinic and does soft chamber HBOT in her office in Southern California. She bills insurance for the service. Kristie Quote Link to comment Share on other sites More sharing options...
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