Re: migraine-like ocular symptoms, experience with Lyme neuro-opth in S.F. help?

[Guest guest]

Hi Deb ,,very worrying developments with your son

...I have a

few things you should consider ..firstly when taking bacterial

antibiotics its

know that with the decrease in bacteria, fungi amongst others

proliferate, all

autistic children have a gut yeast infection, you may need to treat

with

antifungals ..they do address the lyme

pathogen too..

Secondly , the pathogens promote inflammation to

avoid the

immune system .I found that by treating my infection based inflammation

with angiotensin

receptor blockers Olmesartan [a safe drug used in hypertension] at

least 50% of

my symptoms disappeared including debilitating headaches and visual

disturbances.

The gut and brain are linked neurologically

see my site for details on all of the above ..if you need more shout ..

My site .http://www.yeast-candida-infections-uk.co.uk/

pinkfeet2000 wrote:

Hi folks,

I could sure use some comments and feedback. My son's symptoms have

become even more mysterious and scary, and our lives are completely

disrupted.

My son (11 years) is being treated for Lyme (and possibly Bartonella -

Fry Labs smear), has been increasing symptomatic during treatment

this calendar year, especially since he was removed from his bedroom

which turned out to be seriously compromised with all sorts of molds,

including the neurotoxic black molds, etc … room remediated,

consulted with Dr. Schaller, etc …

At any rate, he has had several (3) sustained bouts of double vision

(2 weeks at a time with a 2 week break in between), which, thought

inconvenient, did not prevent him from living his life.

But since he has started the ceftin/sulfa combination of medicine, he

has developed what seems to be "migraine-like" symptoms.

The symptoms are: bouts of blurred vision, bouts of loss of color

vision, bouts of tunnel vision (without headache pain) - bouts

lasting a few seconds to up to 6 hours.

Then, as treatment with ceftin continued, he began to get intense

(non-throbbing) one-sided stabbing headaches in the forehead with

these ocular symptoms. The headaches would be very intense for

random periods with escalations, then go from awful to severe, and

finally fade away, leaving him with a continual low-level headache on

the one side that doesn't seem to impair his normal activities.

These attacks can last from a few seconds, to a few minutes, to 6

hours.

To complicate matters further, these attacks are almost always

brought on by eating or drinking in the morning (even drinking just

water). They happen instantly. He can be fine and then within

minutes or even seconds of eating, bang – he gets the intense pain

and visual symptoms. I don't believe that he is having a food

allergy attack because he has no other IgE symptoms. Lately, he is

also complaining that he is seizing up and can't breathe, although he

is still speaking – I'm not sure if he is panicking because of the

pain or if he is having additional symptoms. He is also having

intense episodes of "bone" pain (leg, arm) sometimes near

the "migraine" episodes. These he has always had, but not so intense.

These eye attacks have rarely happened at other times of the day –

he eats and drinks with no problem the rest of the day.

He seems to lack the typical migraine symptoms of photosensitivity,

nausea, migraine phases, etc … but other than that, they are very

migraine like. I can tell when he is going to have a bad morning

because he wakes up intensely fatigued and with a headache, but some

days, he his fine until eating in the morning.

His symptoms subsided when he went off the ceftin, and have returned

when he has restarted. I have been supplementing him with additional

Mg and B2 (migraine cure) and these may have been helping. I am

concerned that he became very mineral deficient over the last months

(and that abx have further depleted him).

It is practically impossible to decouple these issues from each other

as I am reluctant to change one variable at a time because this is my

son, and he is hurting. I would do different experiments on myself.

--------------------

He has seen numerous ophthalmologists, including the "Lyme-literate"

neuro-opthalmologist in S.F.

Although we had seen Dr. R. before, I was quite surprised at his

approach this time. He, like many of the other ophthalmologists,

completely latch onto his strabismus diagnosis (only caught in the

last 2 years, by the way) and claims that "90%" of his problems would

go away with the strabismus surgery, claiming that at he tries to

resolve his misalignment, he goes into some sort of neurological

spasm. I can find no online evidence for this as a reaction to

a "decompensation of a strabismus."

Note that he has had 2 MRIs and 1 catscan – all clear.

Not only that, he looked at my son's multiple Western Blots and said

that he doesn't have enough positive IgMs to be considered an active

Lyme problem! He also said my son's abnormal SPECT (markedly

abnormal) was not significant – "We see these all the time …." and

claimed that there was more chance of toxicity reactions from long-

term antibiotic treatment than likelihood of treating an infection.

He also mentioned a woman who had been recently discharged from the

hospital who came in with a Lyme diagnosis but left with an

autoimmune diagnosis.

So, in summary, he discounted the Lyme diagnosis, was relatively

uninterested in my sons' new symptoms, and latched onto the

strabismus surgery as a cure-all for everything. This dismissive

attitude was a shock to me as he did not question me as to

particulars and dismissed the predictable "induced by eating" process

as coincidence.

Note that migraines do not run in my family and that my son, except

for when ill, doesn't get headaches.

It is hard to view these episodes as herxes as they are so

intermittent but he did not have such continual problems until he

went on the ceftin. I am concerned that whatever is happening, he

is going into a migraine-like condition in which he becomes "trigger-

happy" and his body will learn this response somehow. Perhaps he

is sensitive to the cephalosporin family, but he does not appear to

have any other "allergic" like response.

And because this is my child, I am reluctant to do too many

experiments on him to see what truly induces these episodes, because

they are so painful and scary. He is begging me to take the pain

away.

He is on a ½ dose of his meds as an experiment. His Lyme doctor is

puzzled by the manifestations of these symptoms as well.

In crisis,

Deb

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[Guest guest]

Deb,

I could not agree with and Tami more. I have just posted up a

link to some Klinghardt articles. One of them on headaches I

specifically put up for you. This link also has a list of ART

trained practioners.

Just my 2 cents on this....I hate to beat the drum but a good muscle

tester or ART pratitioner would be of benefit to determine what's

going on. It could be die-off without enough drainage. It could be

this medicine blocks something in his body. Maybe another option to

kill the stuff would be just as effective and easier on him (ie a

homeopathic or herb). Either way a good muscle tester could tell

you what's going on and what would be best.

Like Tami said, making sure the detox pathways and lymph gland

drainage is very important with die-off (we just had a good thread

on this). With die-off and detox many times they put us on good

binders and liver supports, maybe he needs more of this.

The second thing I'd do is find a good cold laser practioner,

especially if they do cranial work with the cold laser. This would

help reduce inflamation and open up clogged pathways.

Rita

> >

> > Hi folks,

> >

> > I could sure use some comments and feedback. My son's symptoms

have

> > become even more mysterious and scary, and our lives are

completely

> > disrupted.

> >

> > My son (11 years) is being treated for Lyme (and possibly

Bartonella -

> > Fry Labs smear), has been increasing symptomatic during treatment

> > this calendar year, especially since he was removed from his

bedroom

> > which turned out to be seriously compromised with all sorts of

molds,

> > including the neurotoxic black molds, etc ... room remediated,

> > consulted with Dr. Schaller, etc ...

> >

> > At any rate, he has had several (3) sustained bouts of double

vision

> > (2 weeks at a time with a 2 week break in between), which,

thought

> > inconvenient, did not prevent him from living his life.

> >

> > But since he has started the ceftin/sulfa combination of

medicine, he

> > has developed what seems to be " migraine-like " symptoms.

> >

> > The symptoms are: bouts of blurred vision, bouts of loss of color

> > vision, bouts of tunnel vision (without headache pain) - bouts

> > lasting a few seconds to up to 6 hours.

> >

> > Then, as treatment with ceftin continued, he began to get intense

> > (non-throbbing) one-sided stabbing headaches in the forehead with

> > these ocular symptoms. The headaches would be very intense for

> > random periods with escalations, then go from awful to severe,

and

> > finally fade away, leaving him with a continual low-level

headache on

> > the one side that doesn't seem to impair his normal activities.

> > These attacks can last from a few seconds, to a few minutes, to 6

> > hours.

> >

> > To complicate matters further, these attacks are almost always

> > brought on by eating or drinking in the morning (even drinking

just

> > water). They happen instantly. He can be fine and then within

> > minutes or even seconds of eating, bang -- he gets the intense

pain

> > and visual symptoms. I don't believe that he is having a food

> > allergy attack because he has no other IgE symptoms. Lately, he

is

> > also complaining that he is seizing up and can't breathe,

although he

> > is still speaking -- I'm not sure if he is panicking because of

the

> > pain or if he is having additional symptoms. He is also having

> > intense episodes of " bone " pain (leg, arm) sometimes near

> > the " migraine " episodes. These he has always had, but not so

intense.

> >

> > These eye attacks have rarely happened at other times of the

day --

> > he eats and drinks with no problem the rest of the day.

> >

> > He seems to lack the typical migraine symptoms of

photosensitivity,

> > nausea, migraine phases, etc ... but other than that, they are

very

> > migraine like. I can tell when he is going to have a bad morning

> > because he wakes up intensely fatigued and with a headache, but

some

> > days, he his fine until eating in the morning.

> >

> > His symptoms subsided when he went off the ceftin, and have

returned

> > when he has restarted. I have been supplementing him with

additional

> > Mg and B2 (migraine cure) and these may have been helping. I am

> > concerned that he became very mineral deficient over the last

months

> > (and that abx have further depleted him).

> >

> > It is practically impossible to decouple these issues from each

other

> > as I am reluctant to change one variable at a time because this

is my

> > son, and he is hurting. I would do different experiments on

myself.

> > --------------------

> > He has seen numerous ophthalmologists, including the " Lyme-

literate "

> > neuro-opthalmologist in S.F.

> >

> > Although we had seen Dr. R. before, I was quite surprised at his

> > approach this time. He, like many of the other ophthalmologists,

> > completely latch onto his strabismus diagnosis (only caught in

the

> > last 2 years, by the way) and claims that " 90% " of his problems

would

> > go away with the strabismus surgery, claiming that at he tries to

> > resolve his misalignment, he goes into some sort of neurological

> > spasm. I can find no online evidence for this as a reaction to

> > a " decompensation of a strabismus. "

> >

> > Note that he has had 2 MRIs and 1 catscan -- all clear.

> > Not only that, he looked at my son's multiple Western Blots and

said

> > that he doesn't have enough positive IgMs to be considered an

active

> > Lyme problem! He also said my son's abnormal SPECT (markedly

> > abnormal) was not significant -- " We see these all the

time .... " and

> > claimed that there was more chance of toxicity reactions from

long-

> > term antibiotic treatment than likelihood of treating an

infection.

> > He also mentioned a woman who had been recently discharged from

the

> > hospital who came in with a Lyme diagnosis but left with an

> > autoimmune diagnosis.

> >

> > So, in summary, he discounted the Lyme diagnosis, was relatively

> > uninterested in my sons' new symptoms, and latched onto the

> > strabismus surgery as a cure-all for everything. This dismissive

> > attitude was a shock to me as he did not question me as to

> > particulars and dismissed the predictable " induced by eating "

process

> > as coincidence.

> >

> > Note that migraines do not run in my family and that my son,

except

> > for when ill, doesn't get headaches.

> >

> > It is hard to view these episodes as herxes as they are so

> > intermittent but he did not have such continual problems until he

> > went on the ceftin. I am concerned that whatever is happening, he

> > is going into a migraine-like condition in which he

becomes " trigger-

> > happy " and his body will learn this response somehow. Perhaps he

> > is sensitive to the cephalosporin family, but he does not appear

to

> > have any other " allergic " like response.

> >

> > And because this is my child, I am reluctant to do too many

> > experiments on him to see what truly induces these episodes,

because

> > they are so painful and scary. He is begging me to take the pain

> > away.

> >

> > He is on a ½ dose of his meds as an experiment. His Lyme doctor

is

> > puzzled by the manifestations of these symptoms as well.

> >

> > In crisis,

> >

> > Deb

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.138 / Virus Database: 270.5.0/1555 - Release Date:

16/07/2008 06:43

> >

>