Re: bad news that scares me

[Guest guest]

,

Only thing I can tell you is my dad had his let removed below the knee and he

said he wished he would have had it done years ago...my thoughts and blessing go

with you. I know how hard this must be.

Geri

[Guest guest]

Hi ,

On the lindacrabtree.com site there were a couple stories of folks that have

had amputations.

http://www.lindacrabtree.com/cmtnews/Feet/Feet5.htm

I found it to be an informative web site that covered a wide range of

issues, some of which I'd not seen covered anywhere else.

When I was anticipating I'd need a second foot fusion after an ER tech told

me my first one had failed (fortunately, he was incorrect), I also found a

thread on the charcot-marie-tooth.org website, in the

surgery/bracing/footwear chat forum, concerning amputation. It was from last

fall sometime. Someone was considering amputation and had posted a question

if anyone else had done it. There was one reply from someone who'd had it

done and thought it was the best thing he'd done. The recovery was quicker

than from surgeries.

I found it strangely reassuring that there was hope, when surgery after

surgery doesn't fix anything. The recurring theme I've gotten from people

that have had an amputation is that they wish they'd done it years before.

I've found that the time comes when I know I'm making a right decision, even

if it's an unpleasant one. Good luck with your decision.

O

[Guest guest]

If this 'bad news' scares you so much, you must do tons of research,

talk and meet with others who have had the same experience and get at

least 2 other orthopedists opinions. If you choose to go ahead with

this, there is no turning back, you must be absolutely 100% certain

this is what you want - and not depending on the outcome. This will not take

away your CMT either.

Being scared for me is a good sign to be extremely cautious in making

big life changing decisions.

~ Gretchen