Hip replacement

[Guest guest]

Hi, all:

I am relatively new to this forum and have learned so much from all of

you already. Thank you for being here.

Today I had to see an orthopedic doctor for severe pain in my left

hip. At age 45, he advised me that my hip is " shot " . He really does

not want to rush into surgery for several reasons.....one of which is

that until recently I had been on high doses of prednisone, my young

(ha ha) age, etc.

How any one else experienced this problem? Would appreciate hearing

any information.

Thanks so much! Have a great day!

-

[Guest guest]

My husband had the hip replacement more than 10 years ago and is really glad he

did. His hip was totally shot and quite painful. The surgery hasn't seemed to

affect his CMT.

Elinor

[Guest guest]

My son's orthopedist told me that most young adults that need total hip

replacement is seconday to undiagnosed hip dysplasia as children. Hip dyspalsia

has a high incidence with CMT and isn't always symptomatic until the chronic

wear and tear leads to pain.

[Guest guest]

Amy,

Wow - you have really been thru it! I am having cortisone injected into my

joint tomorrow to try to ease some of the pain so they can put the surgery off

as long as possible. I could swear I read somewhere that hip problems often

effect people with CMT but I cannot find it again. Have you ever heard of that?

[Guest guest]

Amy,

Thank you so much for your response. I had my shots yesterday. They first put

in a temporary pain relief shot that will last approx. 72 hours until the

steroid effect of the 2nd shot kicks in. I have to say it has relieved quite a

bit of the pain but not all by any means. But, for the first time last night, I

slept all night.

I am sure you understand when I say that for months I have been like a

rotisserie chicken at night, waking every 15 minutes in pain trying to find a

comfortable position to get into. By Monday though, we will see how the 2nd

part of the shot is going to work. I pray that it brings me some relief.

I am also in physical therapy (have been for 3 weeks) to try to rebuild some

strength in that leg. It is amazing how much I have lost in a matter of a few

months. Although it won't correct my hip condition they did say that building up

some strength will also help with my mobility. So far, I am making

progress...and I have to say that I am excited that I can now lift my leg 1-2 "

in the air now. It's not much but I am learning to be greatful for even baby

steps.

My orthopedic surgeon also wants my neurologist to discuss with her the

progression of my muscle loss. He is concerned that if this continues to

progress that my muscles may not even hold a replaced hip together. For now, I

am trying to take one day at a time.

It can be a very scary process. I am currently trying to change jobs to

increase my earnings and hopefully better my benefits as well. And although I

know that legally we do not have to discuss health issues, to me I feel like you

have to address the situation in some way.....otherwise you walk out leaving

them to wonder about a person, who even though they are highly qualified, walks

with a cane and a very prominent limp. If anyone has had any similar

experiences, I welcome all suggestions. At this point, I am a CMT sponge!

Have a great day and be grateful for today!