Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Question for the group - Does anyone know of a child with CMT who also has a brain tumor? We have found something interesting out about my son. He has Type 1A CMT, with a duplication of PMPP on Chromosome 22. He was just diagnosed with an Atypical Teraotoid Rabdoid Tumor which often times involves a DELETION of Chromosome 22. It was intriguing to our oncologist that both diseases invovle the same chromosome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 In a message dated 9/6/2007 10:01:51 A.M. Pacific Daylight Time, mkees73@... writes: <It was intriguing to our oncologist that both diseases involve the same chromosome.> Wow that is intriguing.. I have not met anyone with the problem . I wish I could be of some help. How is your son feeling? How are you holding up? Prayers and thoughts to your family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 My 4 year old has CMT and has been having alot of headaches for the past 4 months mostly in the morning and that is a symptom of brain tumors. She goes for an MRI of her brain on 9/27 too check it out and see if anything is going on in there. I sure hope it isn't anything abnormal in there. I am sorry to hear about your child, I will keep you in my prayers. Hope all goes well. J Hart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 OMG I'll pray that everythings okay and the doctors can come up with some other kind of explenation for her headaches. I'm praying for your little girl. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 I had both CMT and a spinal cord tumor. Diagnosed in the same year. They say they are not related, but I don't believe that:) Amy Hodge Quote Link to comment Share on other sites More sharing options...
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