Re: we can get noticed POSITIVELY

[Guest guest]

Good one.

[Guest guest]

Hi Liz,

You bet we can! Loved your post - made my day! Trying new things is

how we learn. It is such a pleasure to hear from you. I think you were

14 or 15 when you joined , and I'm so happy to have shared these

years with you. I hope G school is going well, also the wedding plans!

~ Gretchen

[Guest guest]

Thanks Gretchen. I just believe that despite all the negative aspects of having

this disease (and I do know all of them and there are plenty of times when it

gets me down), that we can also find a way to make it positive and become

advocates for ourselves and CMT.

There are a lot of people out there that hold terrible stereotypes about people

with diseases. They believe that we're lazy and can't do anything. Sometimes

they even believe that it affects our

mental capacity. Part of my job is to prove them wrong.

And yes, it's not always fair because we already have to work twice as hard to

get stuff done and then we have to work even harder above and beyond that to

prove the ignorant people wrong. It's a lot of work, but it's all worth it to me

to hear " well I never thought you could do this, but you proved me wrong. " I

just think going

out with a positive attitude helps things.

The wedding planning is going along, slowly. We're going to get married in

September of 08 though, so there's plenty of time. If anyone has a good

recommendation of where to get married in the NH/MA/VT/ME area, let me know!

Graduate school is going well too. I start up again next week.

Liz

[Guest guest]

Hi Liz,

Congrats on all of the good news.

I got married in NH at a place called cathedral in the pines. It was rustic and

beautiful. All of our guests stayed at the woodbound in in Rindge NH. It was

rustic and sort of an old-timey retreat. The inn

is on a lake and you can stay in the inn or a private cottage. We stayed in a

cottage - it was beautiful.

Chris