Re: Cardiogenics Intensive Care and Plant Sterols

[Guest guest]

Geri,

Are you taking this for your heart or cholesterol under the guidance

of a doctor? I am asking this because there might be tryptophan in

this stuff, and back in the 1980s or so tryptophan supplements were

the rage (can't remember why) but many people developed severe muscle

cramping and other neurological problems. Check too to see if Vit. B6

is somehow mixed into the supplement - we know B6 is not good for CMT.

On the other hand I am guessing here, but you may be allergic to some

of the plant ingredients.

If you have heart or cholesterol problems I hope you get to a doctor

who specializes and can get you on track.

~ Gretchen

[Guest guest]

Yes it is under a guidance of a doctor ..and he has a very good reputation

supposed to be one of the top doctors in Minnesota. But as it goes ...how much

does he know about CMT???...sent him tons of stuff and web sites that you and

the group sent me..mailed it yesterday.

Noticed one of the supplements he gave me had way to much vit.B At least this

doctor seems willing to learn....we will see ..all the others I have been to

didn't care about knowing anything about CMT ..just pushing pills that CMTers

are not supposed to have...and wouldn't lesson..I will pass your email on to him

if you don't mind...I'm taking to the supplements for Diabetes and High Blood

Pressure......Need all the help I can get from you guys!..As I'm very sensitive

to everything and have adverse reacations to so many meds and supplements.

Thanks Geri

[Guest guest]

Well now what? Guess I have to eat my words about this new doctor!! Thought he

was will to learn about CMT...Sent him a paper published from Dr. and he

disagrees with him about Vit. B..and said to keep taking what he has

prescribed...he also told me to take GlucoNase and I had stopped taking that as

I think that has to much B in it...he says no.

Gees I'm so depressed I don't know what to do now!!! Does any one knows of a

doctor around Little Falls..or St Cloud that know about CMT...these docs are

killing me!

Geri

[Guest guest]

Hi Geri,

Oh this is odd. By any chance does this doc have a financial

interest in the products/supplements he has told you to take?

Doctors disagree all the time, but you know this doc of yours *

could * call up Dr. Parry (since they are both in your state) and

they could discuss the Vitamin B " issue " and CMT.

If you don't mind me asking, are you taking the Gluconase for

diabetes?

I need some time, but perhaps I can find a doc for you. Not too

familiar with your state, lol, except Mayo, but it might be worth

your while to go see Dr. Parry for an appointment - before the snow

starts and all.

Let me think on this and see if I can find someone closer to you

too. Are you looking for a regular Internist/GP doc or a Neurologist?

~ Gretchen

[Guest guest]

Gretchen,

I don't know but the supplements are sold at the office.

Gave the doctor an paper explaining CMT and Vit.B...with his phone no!

Yes to diabetes and Gluconase.

Mayo is a long way from me...Dr. Parry is three hours away..that would be to bad

and it is very hard to get there! BUT I think he only handles CMT right now the

other things that are wrong...Diabetes and High Blood pressure! Went to Duluth

MDA not to long ago and they didn't do very much of anything!

Thought this Doctor acted like he was just sure of himself but I think he is

arrogant.

Thanks,

Geri

[Guest guest]

Gretchen,

I don't know but the supplements are sold at the office.

Gave the doctor an paper explaining CMT and Vit.B...with his phone no!(Dr.

Parry's)

Yes to diabetes and Gluconase.

Mayo is a long way from me...Dr. Parry is three hours away..that would be to bad

and it is very hard to get there! BUT I think he only handles CMT right now the

other things that are wrong...Diabetes and High Blood pressure! Went to Duluth

MDA not to long ago and they didn't do very much of anything!

Thought this Doctor acted like he was just sure of himself but I think he is

arrogant.

Thanks,

Geri

[Guest guest]

Hi Geri,

It seems to me that since these supplements are " sold " at your doc's

office that he does have a financial interest in them. This and his

arrogancy would have me out of there in no time. I hope you can find

one of the docs in St. Cloud or even get to see Dr. Parry.

~ Gretchen

[Guest guest]

Gretchen,

I agree with you...I was shocked and didn't like it when he disagreed with Dr.

Parry....I know Dr. Parry is one of the best! I think the world of him...and

guess what my shoulders are feeling better like they not as frozen! The

GlucoNase has 8.2 mg of B-6...and I was taking four a day..Too much right?

Thought I was going to die I hurt so bad....hard to tell what the others had in

them perhaps some hidden B-6 like you said or something that my system couldn't

handle. Thank for you.

Geri

[Guest guest]

Hi again Geri,

When I did the math, it seems your doc had you taking a Total of 32.8

mg of B6 everyday.

Dr. Parry has advised those of us with CMT that under no circumstances

should we take more than 20 mg daily and he prefers persons with CMT

take no more than 10 mg daily. He said that 8 mg daily is certainly

safe. (that would be about ONE of those supplements a day, not four!)

Hope you are feeling better.

~ Gretchen