Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Hi Donna -- yeah, I figure there is a lot of overlap and that each exacerbates the other. One thing I've noticed is that my right shoulder and left ankle have been repeatedly injured (most likely due to the ED) but the CMT symptoms are much more apparent in those 2 limbs. It's like the injuries have made the right arm and left leg more susceptible to CMT progression. I didn't even mention the " monster walk " . Whenever I've been gardening or mopping or anything requiring bending at the waist, I'm fine doing it until I come in and sit down. I literally feel things " settling " in my lower back and then my legs go numb, shooting pains through the hips when I try to walk and the only way I can walk is to hold on to the wall and swing my hips to make my feet land in front of me, one after the other. As long as I persist on " walking it out " it goes away in a few minutes but it's hard and it's painful. This has been happening since high school. I assume mostly an ED phenomenon but am sure CMT has something to do with it. Holli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Hi Holli, So funny about your monster walk - I get what I call " enlegs " . My hips get so tight that I feel so stiff, but after a few moments that goes away. I am not sure why it happens. Sometimes I think due to the CMT my nerves aren't telling the muscles to move in the right way, causing stiffness. I am not sure though. I find stretching out helps - my muscles through Active Isolated Stretching, not normal stretching which I take only in my joints. It is nice to have someone else with both the things I have to speak with. Email me anytime off line. I am still coming to grips with this all too. Best wishes, Donna from London Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Holli, I know about the deadened feeling. I used to get that when I was over-active then I would lay down on the floor and with my butt against the wall put my feet and legs straight up against the wall to make the swelling in my feet go down. Then when I wanted to get up, I couldn't It's kind of funny. I would be stuck in tht position and it would be painful to get my feet down. almost unbearable. but the over-active part of me was a good prat of me and I was so thin fo it. I was lucky to be so thin. Dawn Quote Link to comment Share on other sites More sharing options...
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