New to this Group - Johannes 6 years old

[Guest guest]

Dear all

It has been amazing to follow the amount of messages and the kindness

in all replies. My son Johannes is 6 years old and has been diagnosed

with CMT1A. We are living in Denmark (The oldest monarchy in the

world - and not the capital of Sweden :-)) There are 5 children in

Denmark with CMT, and Johannes is the only one with 1A. This shows

something about the healthcare focus on this disease.

It is therefore with the greatest of interest that I read about all

experience with Vit. C, and I am in dialog with the only doctor in

Denmark who has knowledge of CMT, about letting Johannes try Vit. C

in larger doses.

If any of you have children with CMT1A and are involved or just tries

Vit. C please share information and/or experience.

Thanks in advance

Morten Lindegaard