Sites for research

May 13, 2000

I went to a parent meeting this week at the school where my MDS son Ben(16

mos) attends. It is a special school for kids with all kinds of special

needs. I talked with a mom that has twin DS girls and was asking her

thoughts on supplements. I will pass these along to you.

I had heard that talking about supplements was risky because people tend to

get heated about it (Kind of like religion I guess, everybody thinks they are

right and as soon as people can be comfortable with themselves while

accepting others' decisions maybe this issue won't be so heated). First I

want to say thank you everyone for being tolerant and open minded. From what

this mom told me, her DS LISTSERV gets down right nasty and hateful and that

is not was is going to help our children. Support and free exchange of

information is! This is such an awesome group of people!

She told me that there is another supplement out there called Nutrichem and

that is what she uses. She said that she felt that is research based. Here

is an article from the www.nutrichem.com site:

<A

l " >Biomarkers of Oxidative Stress are significantly eleveated in Down

syndrome, oxidative stress, down syndrome, 8-hydroxy-2-de</A>

Also she said that there is a pediatrician by the name of Dr. Len Leslin, MD.

His daughter was born with DS and he and come up with guidelines that he

feels are necessary to monitor DS kids. I found this site particularly

useful with a variety of concerns for potty training to piracetam.

<A HREF= " http://www.ds-health.com/ " >Down Syndrome: Health Issues</A>

Wow, I still have lots of research to do. Let me know what your finds are.

Thanks.

Carol

Mom to Ben and 4 sibs.

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