Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Jill, you poor thing! My heart goes out to you. I highly recommend the book, " Olive Leaf Extract " by Dr. Morton . Olive leaf has been used in my family for many years. In fact, it can kill Lyme, mycoplasma pneumonia, and EBV too. Like anything there are " good " kinds and " cheaper " versions. Anytime someone in my family is sick, we give the liquid version of it and bam - less than 24 hours later it is gone! I am actually going to start using it for parasites (which the book explains also). I cannot recommend it enough! I wish your family the best! Dawn > > I've been mulling over whether to post for a couple of days and now > I'm at the point of Why Not?? > > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > tested for Lyme yet. My oldest boy, almost 11, is mostly recovered > from autism, but we still have some work to do. My middle boy, 4, > has severe anxiety and had some developmental delays, not spectrum. > My youngest, 19 mo,was just diagnosed with a speech delay. The two > little guys were adopted at birth and are biologically half brothers. > > Here's my dilemma. I had surgery about 10 months ago, got sick with > brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) > flare off and on (mostly on) ever since. One of my biggest issues > lately is fatigue, followed closely by brain fog. > > I can't even begin to figure out where to start! I have been scaling > back on my outside responsibilities, trying to marshall my energy for > taking care of myself and my family, but I'm flummoxed. I've got > some basic stuff in place for all of us, but need to step it up, > especially for me. If I don't get better, no one's going to get the > boys healthy. > > We do have 2 great DAN doctors on board, but money is tight and I > have to delay making some appointmentts. > > Any suggestions for starting points? > > Thanks!! > > Jill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 I've got some of that! I'll go crack it open. I bought it for my husband because I read somewhere that it also regulates blood lipids. Jill "Every mighty oak was once a nut that stood its ground." Re: Where to start? Jill, you poor thing! My heart goes out to you. I highly recommend the book, "Olive Leaf Extract" by Dr. Morton . Olive leaf has been used in my family for many years. In fact, it can kill Lyme, mycoplasma pneumonia, and EBV too. Like anything there are "good" kinds and "cheaper" versions. Anytime someone in my family is sick, we give the liquid version of it and bam - less than 24 hours later it is gone! I am actually going to start using it for parasites (which the book explains also). I cannot recommend it enough! I wish your family the best!Dawn>> I've been mulling over whether to post for a couple of days and now > I'm at the point of Why Not??> > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > tested for Lyme yet. My oldest boy, almost 11, is mostly recovered > from autism, but we still have some work to do. My middle boy, 4, > has severe anxiety and had some developmental delays, not spectrum. > My youngest, 19 mo,was just diagnosed with a speech delay. The two > little guys were adopted at birth and are biologically half brothers.> > Here's my dilemma. I had surgery about 10 months ago, got sick with > brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) > flare off and on (mostly on) ever since. One of my biggest issues > lately is fatigue, followed closely by brain fog.> > I can't even begin to figure out where to start! I have been scaling > back on my outside responsibilities, trying to marshall my energy for > taking care of myself and my family, but I'm flummoxed. I've got > some basic stuff in place for all of us, but need to step it up, > especially for me. If I don't get better, no one's going to get the > boys healthy.> > We do have 2 great DAN doctors on board, but money is tight and I > have to delay making some appointmentts.> > Any suggestions for starting points?> > Thanks!!> > Jill> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Hi, Jill! You are absolutely right, you have to be healthy, because you kids rely on you! You didn't mention current situation with your diet and supplements, so it's kind of hard to give an advice. But in general, the basics which you could do without a doctor would be: adjusting your diet, taking steps to reduce toxins input into your body, cleaning your environment and getting good night rest by creating a "sleeping sanctuary". In my opinion, we need to give our bodies a break from toxic burden in the first place. Take care, Dina. Where to start? I've been mulling over whether to post for a couple of days and now I'm at the point of Why Not??Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't tested for Lyme yet. My oldest boy, almost 11, is mostly recovered from autism, but we still have some work to do. My middle boy, 4, has severe anxiety and had some developmental delays, not spectrum. My youngest, 19 mo,was just diagnosed with a speech delay. The two little guys were adopted at birth and are biologically half brothers.Here's my dilemma. I had surgery about 10 months ago, got sick with brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) flare off and on (mostly on) ever since. One of my biggest issues lately is fatigue, followed closely by brain fog.I can't even begin to figure out where to start! I have been scaling back on my outside responsibilities, trying to marshall my energy for taking care of myself and my family, but I'm flummoxed. I've got some basic stuff in place for all of us, but need to step it up, especially for me. If I don't get better, no one's going to get the boys healthy.We do have 2 great DAN doctors on board, but money is tight and I have to delay making some appointmentts.Any suggestions for starting points?Thanks!!Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 See, brain fog at work. Diet wise: I am gluten-free, but do still eat dairy, like yogurt and cheese. Very low sugar, no grains. No frankenfoods. As much organic as we can afford. Environment is a work in progress. I use non toxic cleaners, but can't always get the 2x month cleaning lady to remember to do the same. Shoes are off at the door. Wi-fi and cell phones are off at night. I run Austin Air cleaners at night. We haven't done a sleeping sanctuary yet. I've been under the care of my son's DAN docs, but seem stuck. I take a boat load of supplements every day--lots of anti-oxidants, good oils, B complex, CoQ10, methylation support, also homeopathics for drainage, lymphatic support, liver support. I suspect I just hit some tipping point and need to unburden my system so I can tip back. The sleeping sanctuary is a good idea. Thank you! Jill "Every mighty oak was once a nut that stood its ground." [borreliaMultipleIn fectionsAndAutis m] Where to start? I've been mulling over whether to post for a couple of days and now I'm at the point of Why Not??Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't tested for Lyme yet. My oldest boy, almost 11, is mostly recovered from autism, but we still have some work to do. My middle boy, 4, has severe anxiety and had some developmental delays, not spectrum. My youngest, 19 mo,was just diagnosed with a speech delay. The two little guys were adopted at birth and are biologically half brothers.Here's my dilemma. I had surgery about 10 months ago, got sick with brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) flare off and on (mostly on) ever since. One of my biggest issues lately is fatigue, followed closely by brain fog.I can't even begin to figure out where to start! I have been scaling back on my outside responsibilities, trying to marshall my energy for taking care of myself and my family, but I'm flummoxed. I've got some basic stuff in place for all of us, but need to step it up, especially for me. If I don't get better, no one's going to get the boys healthy.We do have 2 great DAN doctors on board, but money is tight and I have to delay making some appointmentts.Any suggestions for starting points?Thanks!!Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Hi Jill, Did you get that FIR sauna yet? If the deal is still going though, start supplementing with minerals and trace elements to build up your reserves in advance. I was totally wiped out (confirmed with Doc Data UEE) of everything when first starting because I didn't supplement my self. I can loan you Sherry Rodgers " Detox or Die " so you can read her sauna detox protocol and come up with one of your own (personally, I skipped the whole coffee enema concept!) Remember that book I had at the last PHP meeting by Pall - Explaining Unexplained Illnesses? He's a researcher working on Chronic Fatigue Syndrome, Multiple Chemical Sensitivity, Fibromyalgia and Gulf War Syndrome. He believes it's a nitric oxide cycle disorder and autism might be related. The book is not an easy read, but the paper he sent me is much more approachable. He also sent me a suggested supplement list. It's basically a subset of our biomed supplements, so you should have most of them to hand. It's all about down regulating no/onoo activity. I've put my little guy back on most of the suggested supps and yesterday he has his best day ever. My mother was video conferencing with us on Skype last night and asked what I'd done differently. She noticed how calm, focused and attentive he was compared to a few days prior. He'd had a post-cold regression (as usual) plus a mystery chemical exposure at an indoor playground that totally stoned him off his gourd. Double whammy. His been just a bit " off " ever since with receptive language and compliance problems at home. He's been holding it together pretty well at school though. Only took two days of the right supps to bring him back to normal. But you know how super responsive he is - so for everyone else it would probably take two months..... ;-) When you have time, google chronic fatigue FIR sauna, fibromyalgia FIR sauna etc. You might find protocols/supplements for those specific conditions. I'll e-mail you the paper and supplement list now. Read the supp list first, it's less overwhelming than than the paper. Hope it helps. > > I've been mulling over whether to post for a couple of days and now > I'm at the point of Why Not?? > > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > tested for Lyme yet. My oldest boy, almost 11, is mostly recovered > from autism, but we still have some work to do. My middle boy, 4, > has severe anxiety and had some developmental delays, not spectrum. > My youngest, 19 mo,was just diagnosed with a speech delay. The two > little guys were adopted at birth and are biologically half brothers. > > Here's my dilemma. I had surgery about 10 months ago, got sick with > brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) > flare off and on (mostly on) ever since. One of my biggest issues > lately is fatigue, followed closely by brain fog. > > I can't even begin to figure out where to start! I have been scaling > back on my outside responsibilities, trying to marshall my energy for > taking care of myself and my family, but I'm flummoxed. I've got > some basic stuff in place for all of us, but need to step it up, > especially for me. If I don't get better, no one's going to get the > boys healthy. > > We do have 2 great DAN doctors on board, but money is tight and I > have to delay making some appointmentts. > > Any suggestions for starting points? > > Thanks!! > > Jill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Jill, Good Herbs, Inc out of Troy, MI is the liquid version I use. Works wonders. > > > > I've been mulling over whether to post for a couple of days and now > > I'm at the point of Why Not?? > > > > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > > tested for Lyme yet. My oldest boy, almost 11, is mostly recovered > > from autism, but we still have some work to do. My middle boy, 4, > > has severe anxiety and had some developmental delays, not > spectrum. > > My youngest, 19 mo,was just diagnosed with a speech delay. The two > > little guys were adopted at birth and are biologically half > brothers. > > > > Here's my dilemma. I had surgery about 10 months ago, got sick > with > > brochitis 6 weeks later, and have been in a chronic fatige/fibro > (??) > > flare off and on (mostly on) ever since. One of my biggest issues > > lately is fatigue, followed closely by brain fog. > > > > I can't even begin to figure out where to start! I have been > scaling > > back on my outside responsibilities, trying to marshall my energy > for > > taking care of myself and my family, but I'm flummoxed. I've got > > some basic stuff in place for all of us, but need to step it up, > > especially for me. If I don't get better, no one's going to get > the > > boys healthy. > > > > We do have 2 great DAN doctors on board, but money is tight and I > > have to delay making some appointmentts. > > > > Any suggestions for starting points? > > > > Thanks!! > > > > Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Thanks. I do have the sauna, but no power cord. I will spend the next few days increasing my minerals. When I bought the sauna, the woman I bought it from included a bag full of supplements they don't use anymore (lots of Yasko stuff, so if anyone needs 3 bottles of Ora-Placenta, I'll send them over) and it included 2 bottles of trace minerals. Yesterday I went through all my piles and bags of supplements. Between Elephant Pharmacy going out of business and the sauna bonus, I have a huge tub of assorted supplements. Molybdenum is one. This is to support sulfur chemistry, correct? My oldest is having a flare of eczema, rough skin, and dark circles under his eyes, which we haven't seen in a long time. He was getting more fragile, but some neurofeedback session short circuited that. I think I'll add the molybdenum to his pile of pills and look at the no/onoo information. Thanks everyone. I needed help breaking this bad cycle and feel like I have some good option, clearly laid out. Jill "Every mighty oak was once a nut that stood its ground." Re: Where to start? Hi Jill, Did you get that FIR sauna yet? If the deal is still going though,start supplementing with minerals and trace elements to build up yourreserves in advance. I was totally wiped out (confirmed with Doc DataUEE) of everything when first starting because I didn't supplement myself. I can loan you Sherry Rodgers "Detox or Die" so you can read hersauna detox protocol and come up with one of your own (personally, Iskipped the whole coffee enema concept!)Remember that book I had at the last PHP meeting by Pall -Explaining Unexplained Illnesses? He's a researcher working on ChronicFatigue Syndrome, Multiple Chemical Sensitivity, Fibromyalgia and GulfWar Syndrome. He believes it's a nitric oxide cycle disorder andautism might be related.The book is not an easy read, but the paper he sent me is much moreapproachable. He also sent me a suggested supplement list. It'sbasically a subset of our biomed supplements, so you should have mostof them to hand. It's all about down regulating no/onoo activity.I've put my little guy back on most of the suggested supps andyesterday he has his best day ever. My mother was video conferencingwith us on Skype last night and asked what I'd done differently. Shenoticed how calm, focused and attentive he was compared to a few daysprior.He'd had a post-cold regression (as usual) plus a mystery chemicalexposure at an indoor playground that totally stoned him off hisgourd. Double whammy. His been just a bit "off" ever since withreceptive language and compliance problems at home. He's been holdingit together pretty well at school though.Only took two days of the right supps to bring him back to normal. Butyou know how super responsive he is - so for everyone else it wouldprobably take two months..... ;-)When you have time, google chronic fatigue FIR sauna, fibromyalgia FIRsauna etc. You might find protocols/supplemen ts for those specificconditions.I'll e-mail you the paper and supplement list now. Read the supp listfirst, it's less overwhelming than than the paper.Hope it helps. >> I've been mulling over whether to post for a couple of days and now > I'm at the point of Why Not??> > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > tested for Lyme yet. My oldest boy, almost 11, is mostly recovered > from autism, but we still have some work to do. My middle boy, 4, > has severe anxiety and had some developmental delays, not spectrum. > My youngest, 19 mo,was just diagnosed with a speech delay. The two > little guys were adopted at birth and are biologically half brothers.> > Here's my dilemma. I had surgery about 10 months ago, got sick with > brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) > flare off and on (mostly on) ever since. One of my biggest issues > lately is fatigue, followed closely by brain fog.> > I can't even begin to figure out where to start! I have been scaling > back on my outside responsibilities, trying to marshall my energy for > taking care of myself and my family, but I'm flummoxed. I've got > some basic stuff in place for all of us, but need to step it up, > especially for me. If I don't get better, no one's going to get the > boys healthy.> > We do have 2 great DAN doctors on board, but money is tight and I > have to delay making some appointmentts.> > Any suggestions for starting points?> > Thanks!!> > Jill> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Can you tell me which brand of the liquid OLE you use? Subject: Re: Where to start?To: BorreliaMultipleInfectionsAndAutism Date: Saturday, October 18, 2008, 11:40 PM Jill, you poor thing! My heart goes out to you. I highly recommend the book, "Olive Leaf Extract" by Dr. Morton . Olive leaf has been used in my family for many years. In fact, it can kill Lyme, mycoplasma pneumonia, and EBV too. Like anything there are "good" kinds and "cheaper" versions. Anytime someone in my family is sick, we give the liquid version of it and bam - less than 24 hours later it is gone! I am actually going to start using it for parasites (which the book explains also). I cannot recommend it enough! I wish your family the best!Dawn>> I've been mulling over whether to post for a couple of days and now > I'm at the point of Why Not??> > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > tested for Lyme yet. My oldest boy, almost 11, is mostly recovered > from autism, but we still have some work to do. My middle boy, 4, > has severe anxiety and had some developmental delays, not spectrum. > My youngest, 19 mo,was just diagnosed with a speech delay. The two > little guys were adopted at birth and are biologically half brothers.> > Here's my dilemma. I had surgery about 10 months ago, got sick with > brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) > flare off and on (mostly on) ever since. One of my biggest issues > lately is fatigue, followed closely by brain fog.> > I can't even begin to figure out where to start! I have been scaling > back on my outside responsibilities, trying to marshall my energy for > taking care of myself and my family, but I'm flummoxed. I've got > some basic stuff in place for all of us, but need to step it up, > especially for me. If I don't get better, no one's going to get the > boys healthy.> > We do have 2 great DAN doctors on board, but money is tight and I > have to delay making some appointmentts.> > Any suggestions for starting points?> > Thanks!!> > Jill>__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Off he top of my head - phenolsulfurtransferase support supps: Magnesium (Natural Calm is good) Epsom salts baths (magnesium plus sulfate, which bypasses the PST traffic jam and goes straight to toxin binding without having to be converted) Molybdenum Manganese Selenium (careful with this one - do a UEE after starting to make sure you are not giving too much) Other supports: Low phenol and low sulfur diet. Skip sulfur based supps till the log jam is cleared. No-Fenol (whether you are eating phenol foods or not). Zero chlorine exposure (change those filters in your shower heads for fresh ones!) and no exposure to perfumes or other chemically stinky stuff. Remember phenolsulfurtransferase is only one of the many sulfurtransferase processes. I haven't studied all of them, because just supporting this one fixed the problems in our family. Side note - if your son's skin is less red/eczema and more dry/chicken skin, might be fatty acid metabolism. We have that going on here - something about the season change perhaps? Giving more fats (fishy supps and healthy animal fats) and I'm going to do a run up to Belmont tomorrow for some DFH Carnitine Synergy. Haven't needed it for a long time, but I think his FA metabolism got messed up with the cold virus regression and cleaning or air-freshener chemical exposure. It's so much easier to catch these things in the beginning - now that I know what to look for and how to fix it. It's a shame each kid doesn't come with an instructional flow chart.... if x -> then -> y. :-) > > Thanks. I do have the sauna, but no power cord. I will spend the next few days increasing my minerals. When I bought the sauna, the woman I bought it from included a bag full of supplements they don't use anymore (lots of Yasko stuff, so if anyone needs 3 bottles of Ora-Placenta, I'll send them over) and it included 2 bottles of trace minerals. > > Yesterday I went through all my piles and bags of supplements. Between Elephant Pharmacy going out of business and the sauna bonus, I have a huge tub of assorted supplements. Molybdenum is one.  This is to support sulfur chemistry, correct? My oldest is having a flare of eczema, rough skin, and dark circles under his eyes, which we haven't seen in a long time. He was getting more fragile, but some neurofeedback session short circuited that. I think I'll add the molybdenum to his pile of pills and look at the no/onoo information. > > Thanks everyone. I needed help breaking this bad cycle and feel like I have some good option, clearly laid out. >  Jill > > > " Every mighty oak was once a nut that stood its ground. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Limin, and I also have low MSH and the HLD-4 patterning. I went on Cholestryamine a few years ago. Back then I wasn't very compliant with my protocol. This explains why I feel better when on Nanotek Chitosan! Thanks for the post. Tami DuncanPresident and Co-Founderwww.liafoundation.orgRead about the Lyme-Autism Connection in the new book by Rosner. Purchase online at: www.liafoundation.org Join our online support group at: BorreliaMultipleInfectionsAndAutism-subscribe Hi Jill,You're an old-timer/ deep-ender. I don't want to suggest just another supplement to try. I am sure that you must have taken whole load of supplements already. But I want to encourage you to look into what Peggy had mentioned about Dr. Ritchie Shoemaker's work.Website:http://www.chronicneurotoxins.com/Book:http://www.amazon.com/Mold-Warriors-Ritchie-C-Shoemaker/dp/0966553535/ref=sr_1_1?ie=UTF8 & s=books & qid=1224483178 & sr=8-1This morning at ILADS conference, Dr. Gordon and his colleagues mentioned that in their practice, they found 70% of the patients have the genetic type of not being able to excrete biotoxins, and of not being able to get well. This group of people have a genetic makeup that makes them unable to produce the needed antibodies for neurotoxins, biotonxins. These patients usually have persistently elevated C4a. Their biotoxin pathway in the liver is clogged. Because their livers are so gummed, the biotoxins sent to the livers are not broken down and excreted harmlessly, and instead, they bind to fat-cell receptors, get absorbed by the gut, and then dump in gall blanders. As a result, the gall blander also get gummed up, because of trying to process lipids/fats. The biotoxins increase Leptin, increase Cytokines, and reduce MSH, a hormone with many functions. The reduced MSH leads to sleep disturbance, chronic pain, gastrointestinal problems, prolonged illness, resistant Staph bacteria ( causing formation of biofilm), changes in cortisol and ACTH levels, reduced sex hormones, and reduced ADH. Not to mention that high cytokine levels in the capillaries attach white blood cells, leading to restricted blood flow and lower oxygen levels, persistent fatigue, muscle cramps, shortness of breath, and difficulty concentrating, problems thinking, remembering things, or with word recall.LabCorp's HLA typing tests for certain HLA genotypes. Dr. Shoemaker has observed specific patterns of HLA sybtypes associating with persistent symptoms. He also created Visual Contrast Sensitivity Test, available at the neurotoxins website mentioned above.I just have Ingvar tested for HLA typing. His pattern matches the profile of "low MSH" (Dr. Gordon interpreted the test result for me this morning.) There are also other patterns that can be interpreted as chronic Lyme, or the "dreaded" (very susceptible to biotoxin problems, or the "dreaded of the dreaded" (people who are difficult to get well.) In Ingvar's case, low MSH usually leads to decreasing melatonin, endorphin production, and increasing problems with Staph, biofilm, and leaky gut.Dr. Shoemaker usually prescribes Cholestyramine (CSM) to bind biotoxins, neurotoxins. The alternatives to CSM suggested by Dr. Gordon are Welchol, Chlorella, Nanotech Chitosan, PectaSol, Modifilan, and Zeolite.Hope this provides you another angle to examine your conditions.Limin--------------------------------------------------From: "jillrege" <jillrege>Sent: Saturday, October 18, 2008 21:28To: <BorreliaMultipleInfectionsAndAutism >Subject: Where to start?> I've been mulling over whether to post for a couple of days and now> I'm at the point of Why Not??>> Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't> tested for Lyme yet. My oldest boy, almost 11, is mostly recovered> from autism, but we still have some work to do. My middle boy, 4,> has severe anxiety and had some developmental delays, not spectrum.> My youngest, 19 mo,was just diagnosed with a speech delay. The two> little guys were adopted at birth and are biologically half brothers.>> Here's my dilemma. I had surgery about 10 months ago, got sick with> brochitis 6 weeks later, and have been in a chronic fatige/fibro (??)> flare off and on (mostly on) ever since. One of my biggest issues> lately is fatigue, followed closely by brain fog.>> I can't even begin to figure out where to start! I have been scaling> back on my outside responsibilities, trying to marshall my energy for> taking care of myself and my family, but I'm flummoxed. I've got> some basic stuff in place for all of us, but need to step it up,> especially for me. If I don't get better, no one's going to get the> boys healthy.>> We do have 2 great DAN doctors on board, but money is tight and I> have to delay making some appointmentts.>> Any suggestions for starting points?>> Thanks!!>> Jill>>>> ------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hi Jill, You're an old-timer/ deep-ender. I don't want to suggest just another supplement to try. I am sure that you must have taken whole load of supplements already. But I want to encourage you to look into what Peggy had mentioned about Dr. Ritchie Shoemaker's work. Website: http://www.chronicneurotoxins.com/ Book: http://www.amazon.com/Mold-Warriors-Ritchie-C-Shoemaker/dp/0966553535/ref=sr_1_1\ ?ie=UTF8 & s=books & qid=1224483178 & sr=8-1 This morning at ILADS conference, Dr. Gordon and his colleagues mentioned that in their practice, they found 70% of the patients have the genetic type of not being able to excrete biotoxins, and of not being able to get well. This group of people have a genetic makeup that makes them unable to produce the needed antibodies for neurotoxins, biotonxins. These patients usually have persistently elevated C4a. Their biotoxin pathway in the liver is clogged. Because their livers are so gummed, the biotoxins sent to the livers are not broken down and excreted harmlessly, and instead, they bind to fat-cell receptors, get absorbed by the gut, and then dump in gall blanders. As a result, the gall blander also get gummed up, because of trying to process lipids/fats. The biotoxins increase Leptin, increase Cytokines, and reduce MSH, a hormone with many functions. The reduced MSH leads to sleep disturbance, chronic pain, gastrointestinal problems, prolonged illness, resistant Staph bacteria ( causing formation of biofilm), changes in cortisol and ACTH levels, reduced sex hormones, and reduced ADH. Not to mention that high cytokine levels in the capillaries attach white blood cells, leading to restricted blood flow and lower oxygen levels, persistent fatigue, muscle cramps, shortness of breath, and difficulty concentrating, problems thinking, remembering things, or with word recall. LabCorp's HLA typing tests for certain HLA genotypes. Dr. Shoemaker has observed specific patterns of HLA sybtypes associating with persistent symptoms. He also created Visual Contrast Sensitivity Test, available at the neurotoxins website mentioned above. I just have Ingvar tested for HLA typing. His pattern matches the profile of " low MSH " (Dr. Gordon interpreted the test result for me this morning.) There are also other patterns that can be interpreted as chronic Lyme, or the " dreaded " (very susceptible to biotoxin problems, or the " dreaded of the dreaded " (people who are difficult to get well.) In Ingvar's case, low MSH usually leads to decreasing melatonin, endorphin production, and increasing problems with Staph, biofilm, and leaky gut. Dr. Shoemaker usually prescribes Cholestyramine (CSM) to bind biotoxins, neurotoxins. The alternatives to CSM suggested by Dr. Gordon are Welchol, Chlorella, Nanotech Chitosan, PectaSol, Modifilan, and Zeolite. Hope this provides you another angle to examine your conditions. Limin -------------------------------------------------- Sent: Saturday, October 18, 2008 21:28 To: <BorreliaMultipleInfectionsAndAutism > Subject: Where to start? > I've been mulling over whether to post for a couple of days and now > I'm at the point of Why Not?? > > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > tested for Lyme yet. My oldest boy, almost 11, is mostly recovered > from autism, but we still have some work to do. My middle boy, 4, > has severe anxiety and had some developmental delays, not spectrum. > My youngest, 19 mo,was just diagnosed with a speech delay. The two > little guys were adopted at birth and are biologically half brothers. > > Here's my dilemma. I had surgery about 10 months ago, got sick with > brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) > flare off and on (mostly on) ever since. One of my biggest issues > lately is fatigue, followed closely by brain fog. > > I can't even begin to figure out where to start! I have been scaling > back on my outside responsibilities, trying to marshall my energy for > taking care of myself and my family, but I'm flummoxed. I've got > some basic stuff in place for all of us, but need to step it up, > especially for me. If I don't get better, no one's going to get the > boys healthy. > > We do have 2 great DAN doctors on board, but money is tight and I > have to delay making some appointmentts. > > Any suggestions for starting points? > > Thanks!! > > Jill > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hi, I am new but I have to warn you that I tried EVERYTHING in Sherry books with my severely ill and disabled husband and they only made him worse. The concept of needing to detox was correct but her supplements and methods were off in my opinion. One of the biggies is her recommendation for high doses of ala, alpha lipoic acid which are dangerous in that it is a powerful chelator and displaces mercury. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Thanks. I was looking for something beyond my tried-and-true. My DH put a deep freeze on the credit card this week, so I will try the visual acuity test another time. I am sure I have impaired detox pathways--I did do the big Yasko panel a few years ago and it was "worse" than my son with autism, go figure. I will go through my stash of supplements and see what I can put together. I wonder if a gall bladder cleanse, per Hulda , would be useful in light of this information? Can I send this on to my mom? Anyone know what Cholacal is good for? Got it in a bag of goodies with my sauna purchase. Jill "Every mighty oak was once a nut that stood its ground." [borreliaMultipleIn fectionsAndAutis m] Where to start?> I've been mulling over whether to post for a couple of days and now> I'm at the point of Why Not??>> Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't> tested for Lyme yet. My oldest boy, almost 11, is mostly recovered> from autism, but we still have some work to do. My middle boy, 4,> has severe anxiety and had some developmental delays, not spectrum.> My youngest, 19 mo,was just diagnosed with a speech delay. The two> little guys were adopted at birth and are biologically half brothers.>> Here's my dilemma. I had surgery about 10 months ago, got sick with> brochitis 6 weeks later, and have been in a chronic fatige/fibro (??)> flare off and on (mostly on) ever since. One of my biggest issues> lately is fatigue, followed closely by brain fog.>> I can't even begin to figure out where to start! I have been scaling> back on my outside responsibilities, trying to marshall my energy for> taking care of myself and my family, but I'm flummoxed. I've got> some basic stuff in place for all of us, but need to step it up,> especially for me. If I don't get better, no one's going to get the> boys healthy.>> We do have 2 great DAN doctors on board, but money is tight and I> have to delay making some appointmentts.>> Any suggestions for starting points?>> Thanks!!>> Jill>>>> ------------ --------- --------- ------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Yes, I agree - her dosages and aggressive detox methods are not for everyone. I picked through what I wanted - mostly increasing supps that my son was already on, plus additional minerals and trace elements. None of the potentially dangerous stuff. I checked with his doctor and we did Urinary Essential Elements testing for both of us. He has not been on ALA at all. I went on ALA (plus other stuff) briefly after having amalgam removal , but only after doing a LOT of detox drainage support (particularly liver and lymph) for quite some time in advance. I had some incredible mercury pulls - because I was prepared and churned it out fast. Still, I believe I didn't get it all - I'm a bit " off " so might go back on it again in the future. With lots of prep. The important thing in the book is the concept of supplementation to replace lost essential elements during sauna sessions. I DIDN'T do that in the beginning and totally depleted myself. It was a mistake and it took me some time to get back in the " green zone " in the UEE's. We did regular UEE tests for the first few months of sauna session WITH " guesstimate " supplementation. To make sure we weren't going over or under what I wanted on each specific essential element. Once I figured out how much and of what we were loosing each time, I was able to come up with a specific supplement plan for each session for each of us. My son and have different needs - so it's unlikely my doses would be perfect for anyone else either. I'm always hesitant to give people exact doses of anything. You really need testing and a doctor to help you interpret the results and calculate precise dosages - taking into consideration not only age and weight, but more importantly your personal track record of processing and excretion capability. But it seems that Sherry Rodgers doesn't follow that type of caution. I believe the basis of her advice is sound (if overly dramatic), but everyone needs to figure out what's best for their situation without following the advice of an unknown author word for word. This author or any other for that matter. First, do no harm...... > > Hi, > > I am new but I have to warn you that I tried EVERYTHING in Sherry books with my severely ill and disabled husband and they only made him worse. The concept of needing to detox was correct but her supplements and methods were off in my opinion. One of the biggies is her recommendation for high doses of ala, alpha lipoic acid which are dangerous in that it is a powerful chelator and displaces mercury. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Jill, Please go ahead to forward the information to whoever you think this is useful or helpful to them. Limin From: Jill Rege Sent: Monday, October 20, 2008 13:49 To: BorreliaMultipleInfectionsAndAutism Subject: Re: Where to start? Thanks. I was looking for something beyond my tried-and-true. My DH put a deep freeze on the credit card this week, so I will try the visual acuity test another time. I am sure I have impaired detox pathways--I did do the big Yasko panel a few years ago and it was "worse" than my son with autism, go figure. I will go through my stash of supplements and see what I can put together. I wonder if a gall bladder cleanse, per Hulda , would be useful in light of this information? Can I send this on to my mom? Anyone know what Cholacal is good for? Got it in a bag of goodies with my sauna purchase. Jill "Every mighty oak was once a nut that stood its ground." [borreliaMultipleIn fectionsAndAutis m] Where to start?> I've been mulling over whether to post for a couple of days and now> I'm at the point of Why Not??>> Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't> tested for Lyme yet. My oldest boy, almost 11, is mostly recovered> from autism, but we still have some work to do. My middle boy, 4,> has severe anxiety and had some developmental delays, not spectrum.> My youngest, 19 mo,was just diagnosed with a speech delay. The two> little guys were adopted at birth and are biologically half brothers.>> Here's my dilemma. I had surgery about 10 months ago, got sick with> brochitis 6 weeks later, and have been in a chronic fatige/fibro (??)> flare off and on (mostly on) ever since. One of my biggest issues> lately is fatigue, followed closely by brain fog.>> I can't even begin to figure out where to start! I have been scaling> back on my outside responsibilities, trying to marshall my energy for> taking care of myself and my family, but I'm flummoxed. I've got> some basic stuff in place for all of us, but need to step it up,> especially for me. If I don't get better, no one's going to get the> boys healthy.>> We do have 2 great DAN doctors on board, but money is tight and I> have to delay making some appointmentts.>> Any suggestions for starting points?>> Thanks!!>> Jill>>>> ------------ --------- --------- ------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 I have the dreaded gene and low msh gene... did he mention cholestrapure? Did he sound hopeful about the alternatives? SAl > > Hi Jill, > > You're an old-timer/ deep-ender. I don't want to suggest just another > supplement to try. I am sure that you must have taken whole load of > supplements already. But I want to encourage you to look into what Peggy > had mentioned about Dr. Ritchie Shoemaker's work. > > Website: > http://www.chronicneurotoxins.com/ > Book: > http://www.amazon.com/Mold-Warriors-Ritchie-C- Shoemaker/dp/0966553535/ref=sr_1_1? ie=UTF8 & s=books & qid=1224483178 & sr=8-1 > > This morning at ILADS conference, Dr. Gordon and his colleagues > mentioned that in their practice, they found 70% of the patients have the > genetic type of not being able to excrete biotoxins, and of not being able > to get well. This group of people have a genetic makeup that makes them > unable to produce the needed antibodies for neurotoxins, biotonxins. These > patients usually have persistently elevated C4a. Their biotoxin pathway in > the liver is clogged. Because their livers are so gummed, the biotoxins > sent to the livers are not broken down and excreted harmlessly, and instead, > they bind to fat-cell receptors, get absorbed by the gut, and then dump in > gall blanders. As a result, the gall blander also get gummed up, because of > trying to process lipids/fats. The biotoxins increase Leptin, increase > Cytokines, and reduce MSH, a hormone with many functions. The reduced MSH > leads to sleep disturbance, chronic pain, gastrointestinal problems, > prolonged illness, resistant Staph bacteria ( causing formation of biofilm), > changes in cortisol and ACTH levels, reduced sex hormones, and reduced ADH. > Not to mention that high cytokine levels in the capillaries attach white > blood cells, leading to restricted blood flow and lower oxygen levels, > persistent fatigue, muscle cramps, shortness of breath, and difficulty > concentrating, problems thinking, remembering things, or with word recall. > > LabCorp's HLA typing tests for certain HLA genotypes. Dr. Shoemaker has > observed specific patterns of HLA sybtypes associating with persistent > symptoms. He also created Visual Contrast Sensitivity Test, available at > the neurotoxins website mentioned above. > > I just have Ingvar tested for HLA typing. His pattern matches the profile > of " low MSH " (Dr. Gordon interpreted the test result for me this morning.) > There are also other patterns that can be interpreted as chronic Lyme, or > the " dreaded " (very susceptible to biotoxin problems, or the " dreaded of the > dreaded " (people who are difficult to get well.) In Ingvar's case, low MSH > usually leads to decreasing melatonin, endorphin production, and increasing > problems with Staph, biofilm, and leaky gut. > > Dr. Shoemaker usually prescribes Cholestyramine (CSM) to bind biotoxins, > neurotoxins. The alternatives to CSM suggested by Dr. Gordon are Welchol, > Chlorella, Nanotech Chitosan, PectaSol, Modifilan, and Zeolite. > > Hope this provides you another angle to examine your conditions. > > Limin > > -------------------------------------------------- > > Sent: Saturday, October 18, 2008 21:28 > To: <BorreliaMultipleInfectionsAndAutism > > Subject: Where to start? > > > I've been mulling over whether to post for a couple of days and now > > I'm at the point of Why Not?? > > > > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > > tested for Lyme yet. My oldest boy, almost 11, is mostly recovered > > from autism, but we still have some work to do. My middle boy, 4, > > has severe anxiety and had some developmental delays, not spectrum. > > My youngest, 19 mo,was just diagnosed with a speech delay. The two > > little guys were adopted at birth and are biologically half brothers. > > > > Here's my dilemma. I had surgery about 10 months ago, got sick with > > brochitis 6 weeks later, and have been in a chronic fatige/fibro (??) > > flare off and on (mostly on) ever since. One of my biggest issues > > lately is fatigue, followed closely by brain fog. > > > > I can't even begin to figure out where to start! I have been scaling > > back on my outside responsibilities, trying to marshall my energy for > > taking care of myself and my family, but I'm flummoxed. I've got > > some basic stuff in place for all of us, but need to step it up, > > especially for me. If I don't get better, no one's going to get the > > boys healthy. > > > > We do have 2 great DAN doctors on board, but money is tight and I > > have to delay making some appointmentts. > > > > Any suggestions for starting points? > > > > Thanks!! > > > > Jill > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Sal, Cholestrapure was not discussed. Dr. Gordon suggests to use Actos to replace Cholestyramine for patients who have a flare of symptoms with CSM. He found that no many people can tolerate CSM. He mentioned that some have reported that Zeolite is effective in binding biotoxins. Limin -------------------------------------------------- Sent: Monday, October 20, 2008 22:55 To: <BorreliaMultipleInfectionsAndAutism > Subject: Re: Where to start? > I have the dreaded gene and low msh gene... did he mention > cholestrapure? Did he sound hopeful about the alternatives? SAl > > >> >> Hi Jill, >> >> You're an old-timer/ deep-ender. I don't want to suggest just > another >> supplement to try. I am sure that you must have taken whole load > of >> supplements already. But I want to encourage you to look into what > Peggy >> had mentioned about Dr. Ritchie Shoemaker's work. >> >> Website: >> http://www.chronicneurotoxins.com/ >> Book: >> http://www.amazon.com/Mold-Warriors-Ritchie-C- > Shoemaker/dp/0966553535/ref=sr_1_1? > ie=UTF8 & s=books & qid=1224483178 & sr=8-1 >> >> This morning at ILADS conference, Dr. Gordon and his > colleagues >> mentioned that in their practice, they found 70% of the patients > have the >> genetic type of not being able to excrete biotoxins, and of not > being able >> to get well. This group of people have a genetic makeup that makes > them >> unable to produce the needed antibodies for neurotoxins, > biotonxins. These >> patients usually have persistently elevated C4a. Their biotoxin > pathway in >> the liver is clogged. Because their livers are so gummed, the > biotoxins >> sent to the livers are not broken down and excreted harmlessly, and > instead, >> they bind to fat-cell receptors, get absorbed by the gut, and then > dump in >> gall blanders. As a result, the gall blander also get gummed up, > because of >> trying to process lipids/fats. The biotoxins increase Leptin, > increase >> Cytokines, and reduce MSH, a hormone with many functions. The > reduced MSH >> leads to sleep disturbance, chronic pain, gastrointestinal > problems, >> prolonged illness, resistant Staph bacteria ( causing formation of > biofilm), >> changes in cortisol and ACTH levels, reduced sex hormones, and > reduced ADH. >> Not to mention that high cytokine levels in the capillaries attach > white >> blood cells, leading to restricted blood flow and lower oxygen > levels, >> persistent fatigue, muscle cramps, shortness of breath, and > difficulty >> concentrating, problems thinking, remembering things, or with word > recall. >> >> LabCorp's HLA typing tests for certain HLA genotypes. Dr. > Shoemaker has >> observed specific patterns of HLA sybtypes associating with > persistent >> symptoms. He also created Visual Contrast Sensitivity Test, > available at >> the neurotoxins website mentioned above. >> >> I just have Ingvar tested for HLA typing. His pattern matches the > profile >> of " low MSH " (Dr. Gordon interpreted the test result for me this > morning.) >> There are also other patterns that can be interpreted as chronic > Lyme, or >> the " dreaded " (very susceptible to biotoxin problems, or > the " dreaded of the >> dreaded " (people who are difficult to get well.) In Ingvar's case, > low MSH >> usually leads to decreasing melatonin, endorphin production, and > increasing >> problems with Staph, biofilm, and leaky gut. >> >> Dr. Shoemaker usually prescribes Cholestyramine (CSM) to bind > biotoxins, >> neurotoxins. The alternatives to CSM suggested by Dr. Gordon are > Welchol, >> Chlorella, Nanotech Chitosan, PectaSol, Modifilan, and Zeolite. >> >> Hope this provides you another angle to examine your conditions. >> >> Limin >> >> -------------------------------------------------- >> >> Sent: Saturday, October 18, 2008 21:28 >> To: <BorreliaMultipleInfectionsAndAutism > >> Subject: Where to start? >> >> > I've been mulling over whether to post for a couple of days and > now >> > I'm at the point of Why Not?? >> > >> > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't >> > tested for Lyme yet. My oldest boy, almost 11, is mostly > recovered >> > from autism, but we still have some work to do. My middle boy, 4, >> > has severe anxiety and had some developmental delays, not > spectrum. >> > My youngest, 19 mo,was just diagnosed with a speech delay. The > two >> > little guys were adopted at birth and are biologically half > brothers. >> > >> > Here's my dilemma. I had surgery about 10 months ago, got sick > with >> > brochitis 6 weeks later, and have been in a chronic fatige/fibro > (??) >> > flare off and on (mostly on) ever since. One of my biggest issues >> > lately is fatigue, followed closely by brain fog. >> > >> > I can't even begin to figure out where to start! I have been > scaling >> > back on my outside responsibilities, trying to marshall my energy > for >> > taking care of myself and my family, but I'm flummoxed. I've got >> > some basic stuff in place for all of us, but need to step it up, >> > especially for me. If I don't get better, no one's going to get > the >> > boys healthy. >> > >> > We do have 2 great DAN doctors on board, but money is tight and I >> > have to delay making some appointmentts. >> > >> > Any suggestions for starting points? >> > >> > Thanks!! >> > >> > Jill >> > >> > >> > >> > ------------------------------------ >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I use Cholestepure with my son, Dr Amy placed Zander on it to kill the toxins that were stored in his fatty tissues and its been a god sent! Just an FYI on this supplement Lorina > >> > >> Hi Jill, > >> > >> You're an old-timer/ deep-ender. I don't want to suggest just > > another > >> supplement to try. I am sure that you must have taken whole load > > of > >> supplements already. But I want to encourage you to look into what > > Peggy > >> had mentioned about Dr. Ritchie Shoemaker's work. > >> > >> Website: > >> http://www.chronicneurotoxins.com/ > >> Book: > >> http://www.amazon.com/Mold-Warriors-Ritchie-C- > > Shoemaker/dp/0966553535/ref=sr_1_1? > > ie=UTF8 & s=books & qid=1224483178 & sr=8-1 > >> > >> This morning at ILADS conference, Dr. Gordon and his > > colleagues > >> mentioned that in their practice, they found 70% of the patients > > have the > >> genetic type of not being able to excrete biotoxins, and of not > > being able > >> to get well. This group of people have a genetic makeup that makes > > them > >> unable to produce the needed antibodies for neurotoxins, > > biotonxins. These > >> patients usually have persistently elevated C4a. Their biotoxin > > pathway in > >> the liver is clogged. Because their livers are so gummed, the > > biotoxins > >> sent to the livers are not broken down and excreted harmlessly, and > > instead, > >> they bind to fat-cell receptors, get absorbed by the gut, and then > > dump in > >> gall blanders. As a result, the gall blander also get gummed up, > > because of > >> trying to process lipids/fats. The biotoxins increase Leptin, > > increase > >> Cytokines, and reduce MSH, a hormone with many functions. The > > reduced MSH > >> leads to sleep disturbance, chronic pain, gastrointestinal > > problems, > >> prolonged illness, resistant Staph bacteria ( causing formation of > > biofilm), > >> changes in cortisol and ACTH levels, reduced sex hormones, and > > reduced ADH. > >> Not to mention that high cytokine levels in the capillaries attach > > white > >> blood cells, leading to restricted blood flow and lower oxygen > > levels, > >> persistent fatigue, muscle cramps, shortness of breath, and > > difficulty > >> concentrating, problems thinking, remembering things, or with word > > recall. > >> > >> LabCorp's HLA typing tests for certain HLA genotypes. Dr. > > Shoemaker has > >> observed specific patterns of HLA sybtypes associating with > > persistent > >> symptoms. He also created Visual Contrast Sensitivity Test, > > available at > >> the neurotoxins website mentioned above. > >> > >> I just have Ingvar tested for HLA typing. His pattern matches the > > profile > >> of " low MSH " (Dr. Gordon interpreted the test result for me this > > morning.) > >> There are also other patterns that can be interpreted as chronic > > Lyme, or > >> the " dreaded " (very susceptible to biotoxin problems, or > > the " dreaded of the > >> dreaded " (people who are difficult to get well.) In Ingvar's case, > > low MSH > >> usually leads to decreasing melatonin, endorphin production, and > > increasing > >> problems with Staph, biofilm, and leaky gut. > >> > >> Dr. Shoemaker usually prescribes Cholestyramine (CSM) to bind > > biotoxins, > >> neurotoxins. The alternatives to CSM suggested by Dr. Gordon are > > Welchol, > >> Chlorella, Nanotech Chitosan, PectaSol, Modifilan, and Zeolite. > >> > >> Hope this provides you another angle to examine your conditions. > >> > >> Limin > >> > >> -------------------------------------------------- > >> From: " jillrege " <jillrege@> > >> Sent: Saturday, October 18, 2008 21:28 > >> To: <BorreliaMultipleInfectionsAndAutism > > >> Subject: Where to start? > >> > >> > I've been mulling over whether to post for a couple of days and > > now > >> > I'm at the point of Why Not?? > >> > > >> > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't > >> > tested for Lyme yet. My oldest boy, almost 11, is mostly > > recovered > >> > from autism, but we still have some work to do. My middle boy, 4, > >> > has severe anxiety and had some developmental delays, not > > spectrum. > >> > My youngest, 19 mo,was just diagnosed with a speech delay. The > > two > >> > little guys were adopted at birth and are biologically half > > brothers. > >> > > >> > Here's my dilemma. I had surgery about 10 months ago, got sick > > with > >> > brochitis 6 weeks later, and have been in a chronic fatige/fibro > > (??) > >> > flare off and on (mostly on) ever since. One of my biggest issues > >> > lately is fatigue, followed closely by brain fog. > >> > > >> > I can't even begin to figure out where to start! I have been > > scaling > >> > back on my outside responsibilities, trying to marshall my energy > > for > >> > taking care of myself and my family, but I'm flummoxed. I've got > >> > some basic stuff in place for all of us, but need to step it up, > >> > especially for me. If I don't get better, no one's going to get > > the > >> > boys healthy. > >> > > >> > We do have 2 great DAN doctors on board, but money is tight and I > >> > have to delay making some appointmentts. > >> > > >> > Any suggestions for starting points? > >> > > >> > Thanks!! > >> > > >> > Jill > >> > > >> > > >> > > >> > ------------------------------------ > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Which zeolite? I have some of the Waiora zeolite product, but have been too chicken to open it. (Despite all the other things I've done!) Jill "Every mighty oak was once a nut that stood its ground." [borreliaMultipleIn fectionsAndAutis m] Where to start?>>>> > I've been mulling over whether to post for a couple of days and> now>> > I'm at the point of Why Not??>> >>> > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't>> > tested for Lyme yet. My oldest boy, almost 11, is mostly> recovered>> > from autism, but we still have some work to do. My middle boy, 4,>> > has severe anxiety and had some developmental delays, not> spectrum.>> > My youngest, 19 mo,was just diagnosed with a speech delay. The> two>> > little guys were adopted at birth and are biologically half> brothers.>> >>> > Here's my dilemma. I had surgery about 10 months ago, got sick> with>> > brochitis 6 weeks later, and have been in a chronic fatige/fibro> (??)>> > flare off and on (mostly on) ever since. One of my biggest issues>> > lately is fatigue, followed closely by brain fog.>> >>> > I can't even begin to figure out where to start! I have been> scaling>> > back on my outside responsibilities, trying to marshall my energy> for>> > taking care of myself and my family, but I'm flummoxed. I've got>> > some basic stuff in place for all of us, but need to step it up,>> > especially for me. If I don't get better, no one's going to get> the>> > boys healthy.>> >>> > We do have 2 great DAN doctors on board, but money is tight and I>> > have to delay making some appointmentts.>> >>> > Any suggestions for starting points?>> >>> > Thanks!!>> >>> > Jill>> >>> >>> >>> > ------------ --------- --------- ------>> >>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 He did not specify a brand. Ingvar vomited on Zeolite HP twice. I do not want to venture to go there again. I am trying other things first. I spoke with a representative from Allergy Research Group at the conference. He said that they are developing a liquid form of Zeolite, which contains aluminum in its matrix/structure and will not release aluminum into the body. They are doing some studies on this new product and will be able to come out with researched data to verify this, before the product hits the market. Limin From: Jill Rege Sent: Wednesday, October 22, 2008 09:38 To: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Where to start? Which zeolite? I have some of the Waiora zeolite product, but have been too chicken to open it. (Despite all the other things I've done!) Jill "Every mighty oak was once a nut that stood its ground." [borreliaMultipleIn fectionsAndAutis m] Where to start?>>>> > I've been mulling over whether to post for a couple of days and> now>> > I'm at the point of Why Not??>> >>> > Briefly, I have chronic mycoplasma pneumonia and EBV. I haven't>> > tested for Lyme yet. My oldest boy, almost 11, is mostly> recovered>> > from autism, but we still have some work to do. My middle boy, 4,>> > has severe anxiety and had some developmental delays, not> spectrum.>> > My youngest, 19 mo,was just diagnosed with a speech delay. The> two>> > little guys were adopted at birth and are biologically half> brothers.>> >>> > Here's my dilemma. I had surgery about 10 months ago, got sick> with>> > brochitis 6 weeks later, and have been in a chronic fatige/fibro> (??)>> > flare off and on (mostly on) ever since. One of my biggest issues>> > lately is fatigue, followed closely by brain fog.>> >>> > I can't even begin to figure out where to start! I have been> scaling>> > back on my outside responsibilities, trying to marshall my energy> for>> > taking care of myself and my family, but I'm flummoxed. I've got>> > some basic stuff in place for all of us, but need to step it up,>> > especially for me. If I don't get better, no one's going to get> the>> > boys healthy.>> >>> > We do have 2 great DAN doctors on board, but money is tight and I>> > have to delay making some appointmentts.>> >>> > Any suggestions for starting points?>> >>> > Thanks!!>> >>> > Jill>> >>> >>> >>> > ------------ --------- --------- ------>> >>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Lorina, Which brand of Cholestepure does Dr. Amy recommend? Thanks. Limin -------------------------------------------------- Sent: Wednesday, October 22, 2008 08:57 To: <BorreliaMultipleInfectionsAndAutism > Subject: Re: Where to start? > I use Cholestepure with my son, Dr Amy placed Zander on it to kill > the toxins that were stored in his fatty tissues and its been a god > sent! > > Just an FYI on this supplement > > Lorina > > >> >> >> >> Hi Jill, >> >> >> >> You're an old-timer/ deep-ender. I don't want to suggest just >> > another >> >> supplement to try. I am sure that you must have taken whole load >> > of >> >> supplements already. But I want to encourage you to look into > what >> > Peggy >> >> had mentioned about Dr. Ritchie Shoemaker's work. >> >> >> >> Website: >> >> http://www.chronicneurotoxins.com/ >> >> Book: >> >> http://www.amazon.com/Mold-Warriors-Ritchie-C- >> > Shoemaker/dp/0966553535/ref=sr_1_1? >> > ie=UTF8 & s=books & qid=1224483178 & sr=8-1 >> >> >> >> This morning at ILADS conference, Dr. Gordon and his >> > colleagues >> >> mentioned that in their practice, they found 70% of the patients >> > have the >> >> genetic type of not being able to excrete biotoxins, and of not >> > being able >> >> to get well. This group of people have a genetic makeup that > makes >> > them >> >> unable to produce the needed antibodies for neurotoxins, >> > biotonxins. These >> >> patients usually have persistently elevated C4a. Their biotoxin >> > pathway in >> >> the liver is clogged. Because their livers are so gummed, the >> > biotoxins >> >> sent to the livers are not broken down and excreted harmlessly, > and >> > instead, >> >> they bind to fat-cell receptors, get absorbed by the gut, and > then >> > dump in >> >> gall blanders. As a result, the gall blander also get gummed up, >> > because of >> >> trying to process lipids/fats. The biotoxins increase Leptin, >> > increase >> >> Cytokines, and reduce MSH, a hormone with many functions. The >> > reduced MSH >> >> leads to sleep disturbance, chronic pain, gastrointestinal >> > problems, >> >> prolonged illness, resistant Staph bacteria ( causing formation > of >> > biofilm), >> >> changes in cortisol and ACTH levels, reduced sex hormones, and >> > reduced ADH. >> >> Not to mention that high cytokine levels in the capillaries > attach >> > white >> >> blood cells, leading to restricted blood flow and lower oxygen >> > levels, >> >> persistent fatigue, muscle cramps, shortness of breath, and >> > difficulty >> >> concentrating, problems thinking, remembering things, or with > word >> > recall. >> >> >> >> LabCorp's HLA typing tests for certain HLA genotypes. Dr. >> > Shoemaker has >> >> observed specific patterns of HLA sybtypes associating with >> > persistent >> >> symptoms. He also created Visual Contrast Sensitivity Test, >> > available at >> >> the neurotoxins website mentioned above. >> >> >> >> I just have Ingvar tested for HLA typing. His pattern matches > the >> > profile >> >> of " low MSH " (Dr. Gordon interpreted the test result for me this >> > morning.) >> >> There are also other patterns that can be interpreted as chronic >> > Lyme, or >> >> the " dreaded " (very susceptible to biotoxin problems, or >> > the " dreaded of the >> >> dreaded " (people who are difficult to get well.) In Ingvar's > case, >> > low MSH >> >> usually leads to decreasing melatonin, endorphin production, and >> > increasing >> >> problems with Staph, biofilm, and leaky gut. >> >> >> >> Dr. Shoemaker usually prescribes Cholestyramine (CSM) to bind >> > biotoxins, >> >> neurotoxins. The alternatives to CSM suggested by Dr. Gordon > are >> > Welchol, >> >> Chlorella, Nanotech Chitosan, PectaSol, Modifilan, and Zeolite. >> >> >> >> Hope this provides you another angle to examine your conditions. >> >> >> >> Limin >> >> >> >> -------------------------------------------------- >> >> From: " jillrege " <jillrege@> >> >> Sent: Saturday, October 18, 2008 21:28 >> >> To: <BorreliaMultipleInfectionsAndAutism > >> >> Subject: Where to start? >> >> >> >> > I've been mulling over whether to post for a couple of days and >> > now >> >> > I'm at the point of Why Not?? >> >> > >> >> > Briefly, I have chronic mycoplasma pneumonia and EBV. I > haven't >> >> > tested for Lyme yet. My oldest boy, almost 11, is mostly >> > recovered >> >> > from autism, but we still have some work to do. My middle > boy, 4, >> >> > has severe anxiety and had some developmental delays, not >> > spectrum. >> >> > My youngest, 19 mo,was just diagnosed with a speech delay. The >> > two >> >> > little guys were adopted at birth and are biologically half >> > brothers. >> >> > >> >> > Here's my dilemma. I had surgery about 10 months ago, got sick >> > with >> >> > brochitis 6 weeks later, and have been in a chronic > fatige/fibro >> > (??) >> >> > flare off and on (mostly on) ever since. One of my biggest > issues >> >> > lately is fatigue, followed closely by brain fog. >> >> > >> >> > I can't even begin to figure out where to start! I have been >> > scaling >> >> > back on my outside responsibilities, trying to marshall my > energy >> > for >> >> > taking care of myself and my family, but I'm flummoxed. I've > got >> >> > some basic stuff in place for all of us, but need to step it > up, >> >> > especially for me. If I don't get better, no one's going to > get >> > the >> >> > boys healthy. >> >> > >> >> > We do have 2 great DAN doctors on board, but money is tight > and I >> >> > have to delay making some appointmentts. >> >> > >> >> > Any suggestions for starting points? >> >> > >> >> > Thanks!! >> >> > >> >> > Jill >> >> > >> >> > >> >> > >> >> > ------------------------------------ >> >> > >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Pure Encapsulations > >> >> > >> >> Hi Jill, > >> >> > >> >> You're an old-timer/ deep-ender. I don't want to suggest just > >> > another > >> >> supplement to try. I am sure that you must have taken whole load > >> > of > >> >> supplements already. But I want to encourage you to look into > > what > >> > Peggy > >> >> had mentioned about Dr. Ritchie Shoemaker's work. > >> >> > >> >> Website: > >> >> http://www.chronicneurotoxins.com/ > >> >> Book: > >> >> http://www.amazon.com/Mold-Warriors-Ritchie-C- > >> > Shoemaker/dp/0966553535/ref=sr_1_1? > >> > ie=UTF8 & s=books & qid=1224483178 & sr=8-1 > >> >> > >> >> This morning at ILADS conference, Dr. Gordon and his > >> > colleagues > >> >> mentioned that in their practice, they found 70% of the patients > >> > have the > >> >> genetic type of not being able to excrete biotoxins, and of not > >> > being able > >> >> to get well. This group of people have a genetic makeup that > > makes > >> > them > >> >> unable to produce the needed antibodies for neurotoxins, > >> > biotonxins. These > >> >> patients usually have persistently elevated C4a. Their biotoxin > >> > pathway in > >> >> the liver is clogged. Because their livers are so gummed, the > >> > biotoxins > >> >> sent to the livers are not broken down and excreted harmlessly, > > and > >> > instead, > >> >> they bind to fat-cell receptors, get absorbed by the gut, and > > then > >> > dump in > >> >> gall blanders. As a result, the gall blander also get gummed up, > >> > because of > >> >> trying to process lipids/fats. The biotoxins increase Leptin, > >> > increase > >> >> Cytokines, and reduce MSH, a hormone with many functions. The > >> > reduced MSH > >> >> leads to sleep disturbance, chronic pain, gastrointestinal > >> > problems, > >> >> prolonged illness, resistant Staph bacteria ( causing formation > > of > >> > biofilm), > >> >> changes in cortisol and ACTH levels, reduced sex hormones, and > >> > reduced ADH. > >> >> Not to mention that high cytokine levels in the capillaries > > attach > >> > white > >> >> blood cells, leading to restricted blood flow and lower oxygen > >> > levels, > >> >> persistent fatigue, muscle cramps, shortness of breath, and > >> > difficulty > >> >> concentrating, problems thinking, remembering things, or with > > word > >> > recall. > >> >> > >> >> LabCorp's HLA typing tests for certain HLA genotypes. Dr. > >> > Shoemaker has > >> >> observed specific patterns of HLA sybtypes associating with > >> > persistent > >> >> symptoms. He also created Visual Contrast Sensitivity Test, > >> > available at > >> >> the neurotoxins website mentioned above. > >> >> > >> >> I just have Ingvar tested for HLA typing. His pattern matches > > the > >> > profile > >> >> of " low MSH " (Dr. Gordon interpreted the test result for me this > >> > morning.) > >> >> There are also other patterns that can be interpreted as chronic > >> > Lyme, or > >> >> the " dreaded " (very susceptible to biotoxin problems, or > >> > the " dreaded of the > >> >> dreaded " (people who are difficult to get well.) In Ingvar's > > case, > >> > low MSH > >> >> usually leads to decreasing melatonin, endorphin production, and > >> > increasing > >> >> problems with Staph, biofilm, and leaky gut. > >> >> > >> >> Dr. Shoemaker usually prescribes Cholestyramine (CSM) to bind > >> > biotoxins, > >> >> neurotoxins. The alternatives to CSM suggested by Dr. Gordon > > are > >> > Welchol, > >> >> Chlorella, Nanotech Chitosan, PectaSol, Modifilan, and Zeolite. > >> >> > >> >> Hope this provides you another angle to examine your conditions. > >> >> > >> >> Limin > >> >> > >> >> -------------------------------------------------- > >> >> From: " jillrege " <jillrege@> > >> >> Sent: Saturday, October 18, 2008 21:28 > >> >> To: <BorreliaMultipleInfectionsAndAutism > > >> >> Subject: Where to start? > >> >> > >> >> > I've been mulling over whether to post for a couple of days and > >> > now > >> >> > I'm at the point of Why Not?? > >> >> > > >> >> > Briefly, I have chronic mycoplasma pneumonia and EBV. I > > haven't > >> >> > tested for Lyme yet. My oldest boy, almost 11, is mostly > >> > recovered > >> >> > from autism, but we still have some work to do. My middle > > boy, 4, > >> >> > has severe anxiety and had some developmental delays, not > >> > spectrum. > >> >> > My youngest, 19 mo,was just diagnosed with a speech delay. The > >> > two > >> >> > little guys were adopted at birth and are biologically half > >> > brothers. > >> >> > > >> >> > Here's my dilemma. I had surgery about 10 months ago, got sick > >> > with > >> >> > brochitis 6 weeks later, and have been in a chronic > > fatige/fibro > >> > (??) > >> >> > flare off and on (mostly on) ever since. One of my biggest > > issues > >> >> > lately is fatigue, followed closely by brain fog. > >> >> > > >> >> > I can't even begin to figure out where to start! I have been > >> > scaling > >> >> > back on my outside responsibilities, trying to marshall my > > energy > >> > for > >> >> > taking care of myself and my family, but I'm flummoxed. I've > > got > >> >> > some basic stuff in place for all of us, but need to step it > > up, > >> >> > especially for me. If I don't get better, no one's going to > > get > >> > the > >> >> > boys healthy. > >> >> > > >> >> > We do have 2 great DAN doctors on board, but money is tight > > and I > >> >> > have to delay making some appointmentts. > >> >> > > >> >> > Any suggestions for starting points? > >> >> > > >> >> > Thanks!! > >> >> > > >> >> > Jill > >> >> > > >> >> > > >> >> > > >> >> > ------------------------------------ > >> >> > > >> >> > Quote Link to comment Share on other sites More sharing options...
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