Re: How does CMT know when to stop

[Guest guest]

Thanks Gretchen for explaining that. I have always heard that CMT

affects the knees down and the elbows down. I always had trouble in my thighs

and just thought I was out of shape when bicycling.

Hmmmmmm......always a mystery, huh?

 Karon:)

Karon,

Research has told us for years that CMT can affect the entire leg,

hands and arms, also the phrenic nerve and therefore swallowing and

breathing. There is also substantial evidence based research on CMT

affecting the heart. And we know that some with CMT experience sleep

apnea and sleep related disorders.

So, as for CMT " knowing when to stop " , that's written in our own

unique genetic codes, as to how the type we have will manifest itself.

That is what makes CMT so idiosyncratic - it is not Exact, Cut and

Dried symptoms and that's it.

~ Gretchen

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[Guest guest]

Thanks so much for this information, Gretchen. More than a dozen

members of my family have CMT, and all of us share many similar

symptoms while we yet have differing symptoms. I, myself, have

problems breathing while lying down, have sleep apnea, hurt from my

hips downward, have heart problems, etc. My eyesight is suddenly

getting worse, and I wonder if CMT might have some effect on my eyes.

I do not wear or use walking aids other than a walking cane

occasionally, but I do lose my balance and fall. But I realize my

limitations and live life as best as I can. I want to leave this world

with a BANG!, not a whimper.

Joe