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Re: Children with CMT symptoms

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I have a 4 year old daughter with CMT. We have heard " very interesting " from

every doctor we have seen, it is very frustrating to have a disease that is such

an enigma. I have some symptoms also but not diagnosed. I don't have insurance,

so I deal with it. I do not know any males with CMT but I have 2 year old twins

that haven't been diagnosed but I have recently noticed alot of toe walking and

it is scary when you are watching you children so close, as though you are

waiting for it to appear.

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