I took my 4 year old to the orthopedic surgeon

[Guest guest]

He was the MDA surgeon for a while. did my husbands surgeries. I'm

just a little bummed out with the info. he shared. He claims that

there is no way to prevent deformities with cmt. I was under the

impression bracing can help with that. He didn't encourage us with

phys. therapy really. I just want someone to say there is something I

CAN do right now to help my daughter. It just feels so powerless.

Like the train just keeps moving ahead until she'll need surgery.

I just don't know what to do with myself. I needed to vent sorry.

I've been working out like crazy....its almost like I can't help her so I'm just

working on my own body. I joined a group in my area for moms of special needs

kids but most of their children are mainly autistic. I feel like CMT is

different because the spirit and mind are willing but the body doesn't comply.

Just wanted to write.

Amelia