introduction

[Guest guest]

Hello Guys & Ladies...

Well...Not sure were to start exactly...I came across this site one

day while kinda feeling sorry for myself and felt like I just need to talk to

someone who could relate and understand.

I have been reading the daily post; and you guys are my heros. Many

of you inspirer courage and hope to others fighting the same daily

struggles which you accept and move on.

I am 40y/o male and it feels like I am falling apart. I was

diagnosed about a year ago with CMT by a neuro Doc in Tupelo MS who

basically told me there was no hope. Since then, it seems I have

become more aware of people watching me walk, whether they are

looking at my nice shirt or whatever...I have become extremely self-

conscience about being in front of people, walking down long halls,

or any place were people are watching...Seems strange, but I think

when it's just me walking,I feel more confident (HMMM...strange? I

know this sounds like I'm whinning, but Trying to learn to deal).

I've always growing up and even until the last few years...have been

pretty active, being able to do whatever I wanted, including jogging.

My biggest problem right now with the CMT is with foot drop. It

causes the high step. I do have a brace from walk-aid...it's a black carbon

(metal?) which runs up to about my calf then fits into the sole of my shoe...Not

real flexible but it does seem to help, however after alittle while is hurts in

the ball of my foot.

Then there is the problem of finding shoes...some my brace doesn't work well in

and without it they are to heavy, causing an exetremly high step gait. With the

brace, as I've read in some of your posts...driving with it is more

difficult...going down steps is terrible.

I guess...I could use a dose of quit your whinning tough love...but

somehow I was hoping to make a couple of connections with someone in

the same boat who could share some HOPE and encouragement.

Well, Lord Bless you all...